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confused??? View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote confused??? Quote  Post ReplyReply Direct Link To This Post Posted: 28 November 2012 at 4:56pm
I have two children with developmental delay. A boy who is 8 but has Duchenne Muscular Dystrophy. He is a lot slower physically than his friends and academically he is about two years behind his peers. He struggles with writing, maths and reading in particular. He is a real little trooper. What he struggles with in one area he makes up for in another. I get the whole "awkward" moment thing when other parents find out. It's almost like there's this unwritten thing where I must have done or not done something to have my son have this condition. I don't know. I find it hard to have the teachers take me seriously too. It's almost like they assume I mustn't be helping my son with his homework which is contributing to his issues at school funnily enough however the school has documentation about my son's condition stating that boys with this condition do often have learning disabilities. My daughter who is 2 has a similar delay to my son as she is most likely a carrier for the condition my son has which may have caused her muscular weakness. She has been a late walker and talker (so only months of delay). My son was like that but of course the gap widened once he got to school. I don't know if my daughter will be the same as my son. It's too hard to say I guess. She's a real trooper too.
I find it so hard relating to parents with "normal" children. There seems to be that judgement there that I don't play with my kids enough, read to them enough etc etc. I even get this from family members. One family member tried to tell me duchenne muscular dystrophy is caused by a vitamin D deficiency which must have been caused by my kids not getting enough sunlight!
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escadachic View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote escadachic Quote  Post ReplyReply Direct Link To This Post Posted: 28 November 2012 at 5:46pm
I find some kids avoid my daughter, who is 9. Due to her developmental delay. She's 2 yrs delayed.

I find parents seem to be better. As it's not as obvious now she's 9.

Yeah, I think it's normal to blame ourselves for the delays. Though it actually never is our fault.

I think we compare ourselves too much to other parents and children.

School is pretty supportive with her and her learning which is good.

But yeah, some kids are mean to her. Though I think that's improving.

She went to Otaki Health Camp earlier this year, which did wonders for her self esteem, confidence and taught her self management and self care and lots of useful stuff.

She's so much easier then she was before that camp.

My family can sometimes hassle me about my parenting. But fact is, no one is perfect parent wise and we all have our own way that works for us.


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james View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote james Quote  Post ReplyReply Direct Link To This Post Posted: 29 November 2012 at 12:55pm
soo ture, well put escadachic my son has dyspraxia which effects his speach co-oradnation and spaceicl awearness I blamed myself for a long time has I too have Dyspraxia but found i wasnt helping myself or my son playing the blame game. although i have been lucky with outhers opions i know it would hurt for people who are trying to be helpful have you tryed to tell them to back off or get your partner to help big hugs
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Jelena126297 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jelena126297 Quote  Post ReplyReply Direct Link To This Post Posted: 16 August 2013 at 5:33am
Hi my son is 8years old, diagnosed with GDD.Is there anyone keen to meet and talk?If there is any gathering or group I would like to join and have a chat.Also, as play dates are rare for many kids with this problem, do you think it is good idea to bring kids and maybe we can have experimental play day?I hope to hear from anyone soon, thanks.
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susieq View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote susieq Quote  Post ReplyReply Direct Link To This Post Posted: 16 August 2013 at 8:01am
Hi Jelena126297
where abouts are you, i have a 28 year old daughter who is developmentally delayed, she is about 11/12 in her delay i think, I live in Pakuranga Auckland and we have a special needs support group for parents.caregivers of children.adults and there are recreation programmes here in Auckland that our children can access. I send a newsletter out once a term

susie
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Jela View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jela Quote  Post ReplyReply Direct Link To This Post Posted: 16 August 2013 at 1:48pm
Hi i am in Wellington, i didn't find any group here....Thanks for your reply susieq:)
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Care View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Care Quote  Post ReplyReply Direct Link To This Post Posted: 04 March 2014 at 4:53am
hi there i to have a gdd i find it hard to relate to anyone seem to many people compare i feel like its every where around me and i dont want to get out of the house i live in auckland feel free to email me or add me on facebook
caz-maa@hotmail.com
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sahithya176687 Quote  Post ReplyReply Direct Link To This Post Posted: 16 March 2015 at 7:32pm
To overcome Developmental delay in you child, Plan for simple physical activities for your kid.
Get your child socialize with other kids.
Speech therapy can help children with articulation and expressive disorders.

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