OHbaby! Forums : Factor V Leiden or APC Resistance https://www.ohbaby.co.nz/forum/ Copyright (c) 2006-2013 Web Wiz Forums - All Rights Reserved. Thu, 30 Apr 2026 15:53:17 +0000 Wed, 17 Feb 2010 20:13:06 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 12.05 360 https://www.ohbaby.co.nz/forum/RSS_post_feed.asp?TID=31666 <![CDATA[OHbaby! Forums]]> https://www.ohbaby.co.nz/forum/forum_images/web_wiz_forums.png https://www.ohbaby.co.nz/forum/ <![CDATA[Factor V Leiden or APC Resistance : Well done Julia! Promise you...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940993&title=factor-v-leiden-or-apc-resistance#940993 Author: ItchyFeet
Subject: 31666
Posted: 17 February 2010 at 8:13pm

Well done Julia! Promise you it does get easier.]]> Wed, 17 Feb 2010 20:13:06 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940993&title=factor-v-leiden-or-apc-resistance#940993 <![CDATA[Factor V Leiden or APC Resistance : Yahhh now that the first ones...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940900&title=factor-v-leiden-or-apc-resistance#940900 Author: Kazzle
Subject: 31666
Posted: 17 February 2010 at 6:52pm

Yahhh now that the first ones done you will be a pro and you just wont think about it]]> Wed, 17 Feb 2010 18:52:52 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940900&title=factor-v-leiden-or-apc-resistance#940900 <![CDATA[Factor V Leiden or APC Resistance : They practically told me nothing...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940659&title=factor-v-leiden-or-apc-resistance#940659 Author: Anonymous55
Subject: 31666
Posted: 17 February 2010 at 4:20pm

They practically told me nothing but I'm always one for reading instructions, so yeah I knew that.
Anyway, I DID IT! Didn't hurt at all but man it seemed like forever until I stuck that tiny needle in! Talk about cowardly..... ]]> Wed, 17 Feb 2010 16:20:56 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940659&title=factor-v-leiden-or-apc-resistance#940659 <![CDATA[Factor V Leiden or APC Resistance : you have a bout 1/2 grace either...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940570&title=factor-v-leiden-or-apc-resistance#940570 Author: Kazzle
Subject: 31666
Posted: 17 February 2010 at 3:06pm

you have a bout 1/2 grace either side...oh and did they tell you to make sure that you dont inject by the belly button....needs to be 5cm or more away from it]]> Wed, 17 Feb 2010 15:06:00 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940570&title=factor-v-leiden-or-apc-resistance#940570 <![CDATA[Factor V Leiden or APC Resistance : Thank you for the advice re self-injecting,...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940277&title=factor-v-leiden-or-apc-resistance#940277 Author: Anonymous55
Subject: 31666
Posted: 17 February 2010 at 10:46am

Thank you for the advice re self-injecting, I'll give it a try today but am soooooo chicken......

@ Kazzle
Sorry the Aspirin didn't work for you but atleast you found that the Clexane did.
They didn't tell me to do it always at the same time but I read it in the instructions!]]> Wed, 17 Feb 2010 10:46:19 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=940277&title=factor-v-leiden-or-apc-resistance#940277 <![CDATA[Factor V Leiden or APC Resistance : I thought clexane during pregnancy...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939905&title=factor-v-leiden-or-apc-resistance#939905 Author: ItchyFeet
Subject: 31666
Posted: 16 February 2010 at 10:19pm

I thought clexane during pregnancy was a given for FVL so interesting to hear about the aspirin (I don't have FVL myself). I second Kazzle on the clexane - do it yourself as you'll have greater control over the process, and will know where/where it hurts earlier so you can quickly remedy it. I sometimes find that the longer you stuff around psyching yourself up, the more that "leaks" onto the tip and that's the part that hurts the most (and usually the only bruising I get). Kazzle's right, do it a couple of times and it will quickly become routine. Do not rub it or you will bruise (painfully for a couple of days).]]> Tue, 16 Feb 2010 22:19:20 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939905&title=factor-v-leiden-or-apc-resistance#939905 <![CDATA[Factor V Leiden or APC Resistance : I&#039;m heterozygous for Factor...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939873&title=factor-v-leiden-or-apc-resistance#939873 Author: BuzzyB
Subject: 31666
Posted: 16 February 2010 at 10:00pm

I'm heterozygous for Factor V Leiden. I had two m/c before I was told to take low dose aspirin from pre-conception. Worked great with DS. My GP toyed with putting me on clexane, but OB decided just aspirin. I gather heterozygotes can be entirely aysmptomatic and my two m/c may have been unrelated. I'm just taking aspirin again this time too and so far so good... GL]]> Tue, 16 Feb 2010 22:00:41 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939873&title=factor-v-leiden-or-apc-resistance#939873 <![CDATA[Factor V Leiden or APC Resistance : The hospital put me on low dose...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939837&title=factor-v-leiden-or-apc-resistance#939837 Author: Kazzle
Subject: 31666
Posted: 16 February 2010 at 9:31pm

The hospital put me on low dose aspirin after my second miscarriage and i went on to have 2 more miscarriages while on aspirin.

They hospital told me it was just one of those things...the fertility specialist told me it was just one of those things.

So i got a 3rd opinion and it turned out i needed clexane injections...and the aspirin didnt work becasue it wasnt strong enough to stop the blood clots around the placenta.

I had a csection because i had already had one, and i refused to be induced again (bad experience last time).

Okay as for the clexane injections...honestly it will hurt less if you do it yourself and the trick is to sit up straight on the bed or couch, grab a pouch of skin and put the needle in and away you go. (once you have done it a couple of times, its becomes second nature and part of the routine.)

Did they tell you to make sure you inject at the same time everyday?

The one thing i was told...if the needle hurts when going in, pull it out and put it in another place, because if it hurts, its because you have hit a blood vessel and you will bruise if you inject. (do not rub the site after you have injected as this will cause a lump and bruising to form).

Edited by Kazzle]]> Tue, 16 Feb 2010 21:31:07 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939837&title=factor-v-leiden-or-apc-resistance#939837 <![CDATA[Factor V Leiden or APC Resistance : Thank you for all these great...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939597&title=factor-v-leiden-or-apc-resistance#939597 Author: Anonymous55
Subject: 31666
Posted: 16 February 2010 at 7:21pm

Thank you for all these great replies!
Today I went for a routine appointment at the hossy to see how I'm going without the Aspirin and guess what?! The OB that saw me twice in the past and told me all I needed to do was take Aspirin until 36 weeks and then for 6 weeks after delivery had gone back to America and the new doctor put me straight on Clexane from now until delivery! LOL

So much to different opinions.............. Well, I don't mind letting my hubby inject me daily (I'm tooooo chicken ) so I'll just go along with it as long as I can still have my homebirth, which I hope I can, just picked up the birthing pool........

@Kazzle
Why is it that Aspirin didn't work for you?
Did you have a csec because of the Factor V?

Julia]]> Tue, 16 Feb 2010 19:21:14 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939597&title=factor-v-leiden-or-apc-resistance#939597 <![CDATA[Factor V Leiden or APC Resistance : Hey Julia87 - course I don&#039;t...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939540&title=factor-v-leiden-or-apc-resistance#939540 Author: Rovic
Subject: 31666
Posted: 16 February 2010 at 6:28pm

Hey Julia87 - course I don't mind you asking, that's what this place is for .

Yes, she has had 2 clots before in her unhealthy years when she was smoking and on the pill too, as well as being overweight. Lots of risk factors there. She also had high blood pressure before she was pregnant and was on meds for that. Overall, with all those factors, they thought she needed pretty intense monitoring. HTH

]]> Tue, 16 Feb 2010 18:28:07 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939540&title=factor-v-leiden-or-apc-resistance#939540 <![CDATA[Factor V Leiden or APC Resistance : I was tested for this as i kept...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939149&title=factor-v-leiden-or-apc-resistance#939149 Author: Kazzle
Subject: 31666
Posted: 16 February 2010 at 1:31pm

I was tested for this as i kept having miscarriages.

It turned out that i had aps, which is one of the 3 main causes for miscarriage...factor V Leiden being the main one.

I was on clexane injections from the moment i found out i was pregnant (aspirin didnt work), and i was under the highrisk team, and i had to stop taking it 24 hours before birth (csection).

Never had any problems with the pregnancy or the birth or afterwards.

]]> Tue, 16 Feb 2010 13:31:20 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939149&title=factor-v-leiden-or-apc-resistance#939149 <![CDATA[Factor V Leiden or APC Resistance : Im also heterozygous and just...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939119&title=factor-v-leiden-or-apc-resistance#939119 Author: gossamer
Subject: 31666
Posted: 16 February 2010 at 1:07pm

Im also heterozygous and just had my second baby 4 weeks ago. With my first baby I saw a few different specialists so they could decide which way to treat me, but for my second they have just gone ahead with the same programme.

With both babies I have had clexane injections for the first 6 days after birth, combined with warfarin, and then stayed on warfarin for the next 6 weeks. The most annoying thing is having to get blood tests all the time, but otherwise everythings been fine.]]> Tue, 16 Feb 2010 13:07:14 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=939119&title=factor-v-leiden-or-apc-resistance#939119 <![CDATA[Factor V Leiden or APC Resistance : @ SquishysMum I am &#039;only&#039;...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938670&title=factor-v-leiden-or-apc-resistance#938670 Author: Anonymous55
Subject: 31666
Posted: 16 February 2010 at 7:55am

@ SquishysMum
I am 'only' heterozygous, so that's good.
Glad your DH didn't die!!

@ Rovic
Hope you don't mind me asking but has she had any problems before her pregnancies from the Factor V?
Because as I haven't clotted yet my pregnancy isn't actually classed as high risk and all I was advised to do is take a Baby Aspirin everyday and I'm even planning a homebirth.
Wonder if every doctor has a different approach to this....]]> Tue, 16 Feb 2010 07:55:15 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938670&title=factor-v-leiden-or-apc-resistance#938670 <![CDATA[Factor V Leiden or APC Resistance : My sister has FV Leiden . For...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938608&title=factor-v-leiden-or-apc-resistance#938608 Author: Rovic
Subject: 31666
Posted: 15 February 2010 at 10:24pm

My sister has FV Leiden . For her it meant that she was under the high risk teams for bother her pregnancies, was on clexane jabs every day and that she had to have a managed birth each time as she had to stop the clexane within so many hours of the birth. Apart from that, was relatively straight forward pregnancies and births each time. Not much help sorry, but if you have any specific stuff you want to know, let me know and I'll check it out with her.

]]> Mon, 15 Feb 2010 22:24:18 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938608&title=factor-v-leiden-or-apc-resistance#938608 <![CDATA[Factor V Leiden or APC Resistance : Don&#039;t want to read and run...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938401&title=factor-v-leiden-or-apc-resistance#938401 Author: SquishysMum
Subject: 31666
Posted: 15 February 2010 at 7:25pm

Don't want to read and run either.

Sorry, no idea about having FV Leiden while pregnant, but my DH is heterozygous for the mutation. Are you heterozygous or homozygous, do you know? Heterozygous is generally not as severe, although in DH's case, when combined with another blood disorder meant he had a heart attack and nearly died at age 23 (and perfectly healthy until then).

I wouldn't think it would mean too much, as long as your MW is aware that there MAY be an increased risk of clotting. ]]> Mon, 15 Feb 2010 19:25:07 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938401&title=factor-v-leiden-or-apc-resistance#938401 <![CDATA[Factor V Leiden or APC Resistance : Very nice of you not to read and...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938160&title=factor-v-leiden-or-apc-resistance#938160 Author: Anonymous55
Subject: 31666
Posted: 15 February 2010 at 4:13pm

Very nice of you not to read and run!!

MW has had a couple of people with it in the past (that knew of it) but noone at the moment.

Most people get diagnosed when they have a DVT or clotting in the lungs or someone in their family has but I was diagnosed more by accident as I had some real nasty ear problems as a kid (my hearing got all stuffed one day in the right ear) and they couldn't figure what it was so did a million (blood) tests and I was positive for Factor V Leiden so they assumed I MAY have had a tiny blood clot in a small artery in the ear causing my hearing to crash but that wasn't really proven ever so who knows.... Hearing is all back to normal anyway.

There are no symptoms until you actually get clots in your blood (that don't always produce symptoms either).
About 5-10% of all people with european ancestory suffer from it so it is very common!
Most people never experience any problems but sometimes people will suffer repeat miscarriages/stillbirths/clotting etc.... I don't think there is too much reliable information out there as it has only been discovered in the mid 90's.

Cheers,
Julia]]> Mon, 15 Feb 2010 16:13:47 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938160&title=factor-v-leiden-or-apc-resistance#938160 <![CDATA[Factor V Leiden or APC Resistance : Just wanted to say all the best,...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938146&title=factor-v-leiden-or-apc-resistance#938146 Author: High9
Subject: 31666
Posted: 15 February 2010 at 4:02pm

Just wanted to say all the best, never heard of it before but did a quick google search so have a 'brief' idea!

Does your mw/ob/doctor know of anyone that's also had it and been pregnant that you might be able to talk to?

Also just wondering, how was it diagnosed? Are there certain symptoms you have or is it just picked up in a blood test? - Couldn't find anything online.

Anyway all the best! Didn't want to read and run! ]]> Mon, 15 Feb 2010 16:02:37 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938146&title=factor-v-leiden-or-apc-resistance#938146 <![CDATA[Factor V Leiden or APC Resistance : Hello ladies, I am wondering...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938139&title=factor-v-leiden-or-apc-resistance#938139 Author: Anonymous55
Subject: 31666
Posted: 15 February 2010 at 3:54pm

Hello ladies,

I am wondering if anyone here knows that they have this genetic condition?
I was diagnosed at the age of 12 and am awaiting the arrival of my first child at the moment. I actually don't know anyone else that is/has been pregnant with this condition and what it meant for them (if anything).

It would be great to hear from anyone who knows that they have this as sometimes I worry a lot about it (even tho I had no reason so far!).

I'm sure there is quite a few people here with it it's just not that common to know about it...

Thanks heaps,
Julia ]]> Mon, 15 Feb 2010 15:54:17 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=31666&PID=938139&title=factor-v-leiden-or-apc-resistance#938139