https://www.ohbaby.co.nz/forum/ Copyright (c) 2006-2013 Web Wiz Forums - All Rights Reserved. Thu, 30 Apr 2026 14:40:47 +0000 Mon, 15 May 2017 17:54:44 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 12.05 360 https://www.ohbaby.co.nz/forum/RSS_post_feed.asp?TID=41003 https://www.ohbaby.co.nz/forum/forum_images/web_wiz_forums.png https://www.ohbaby.co.nz/forum/ https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5905199&title=cleft-bubbas#5905199 Author: Jemesque
Subject: 41003
Posted: 15 May 2017 at 5:54pm

BeccaBecca - https://www.facebook.com/groups/faceitcleftnz/ this is the link to the New Zealand cleft support group. Really great group of mums on there!

I'm part of one that is worldwide but most members are American, called Cleft Mommies. I believe there are some people on there who have experience with breastfeeding their clefties.

My boy has/had a bilateral cleft lip & palate. He is now 1 and is having his palate repaired in September, his lip was done when he was 6 months old. Dont know what hospital you will be based in but we are in Dunedin, so if you have any questions just message me :)]]> Mon, 15 May 2017 17:54:44 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5905199&title=cleft-bubbas#5905199 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5883339&title=cleft-bubbas#5883339 Author: mizim
Subject: 41003
Posted: 06 May 2015 at 7:50am

Hi BeccaBecca. I'm a fellow cleft mum, 4 years old now, bilateral cleft lip and palate. There is a great page on Facebook for cleft affected families.
Cleft lip only it is possible to breastfeed but from what I hear requires a lot of determination.

If you message me on Facebook I can send you a link to the group. Miriam Matthews - foggy street profile photo]]> Wed, 06 May 2015 07:50:27 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5883339&title=cleft-bubbas#5883339 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5883336&title=cleft-bubbas#5883336 Author: BeccaBecca
Subject: 41003
Posted: 06 May 2015 at 7:01am

Hi There,

I have just had my 18 week scan and found out my baby girl has a cleft lip, and the palate appears to be intact, but we will need another scan with fetal medicine to check further.

I was wondering if you managed to breastfed with your bubba? And would love to hear more about having a baby with a cleft lip if that's possible.

I looked on facebook and couldn't find any support groups.

This is all so new to me still.]]> Wed, 06 May 2015 07:01:25 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5883336&title=cleft-bubbas#5883336 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5794936&title=cleft-bubbas#5794936 Author: mizim
Subject: 41003
Posted: 26 April 2012 at 10:01pm

renata wrote: Hi :) i do have facebook. my name is renata rossi. in the photo i wear a hat.need more info to find me?

Think I have found you, sending a friend request to you now. :)]]> Thu, 26 Apr 2012 22:01:33 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5794936&title=cleft-bubbas#5794936 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5794935&title=cleft-bubbas#5794935 Author: renata
Subject: 41003
Posted: 26 April 2012 at 9:56pm

Hi :)
i do have facebook. my name is renata rossi. in the photo i wear a hat.need more info to find me?]]> Thu, 26 Apr 2012 21:56:06 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5794935&title=cleft-bubbas#5794935 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5794931&title=cleft-bubbas#5794931 Author: mizim
Subject: 41003
Posted: 26 April 2012 at 9:47pm

renata wrote: hi there, I see you got no replay. I checked out your blog and your girl is beautiful. We just found out at our 20 week scan that our little boy has a cleft lip. They are unsure about the palate. It would be lovely to get to know you.

Heya,
Do you have facebook? Cause I'm more than happy to link up via that.... I also have a fb page that I run about my little girl. If not fb then txt or email.... :)]]> Thu, 26 Apr 2012 21:47:16 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5794931&title=cleft-bubbas#5794931 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5794929&title=cleft-bubbas#5794929 Author: renata
Subject: 41003
Posted: 26 April 2012 at 9:23pm

hi there,
I see you got no replay.
I checked out your blog and your girl is beautiful.
We just found out at our 20 week scan that our little boy has a cleft lip. They are unsure about the palate.
It would be lovely to get to know you.

]]> Thu, 26 Apr 2012 21:23:02 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=5794929&title=cleft-bubbas#5794929 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=1408608&title=cleft-bubbas#1408608 Author: mizim
Subject: 41003
Posted: 17 November 2011 at 10:48am

Hey all. My little girl was born in March 2011 with Bilateral Cleft Lip & Palate. She spent nearly 3 weeks in SCBU and came home partially bottle fed and partially NG fed. She is now fully NG fed (for a lot of reasons she just went downhill and chose not to accept a bottle and we're not going to force it upon her). She has recently had her first surgery to repair her lip and still needs the NG full time. She'll have her next surgery around her first birthday.]]> Thu, 17 Nov 2011 10:48:44 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003&PID=1408608&title=cleft-bubbas#1408608