https://www.ohbaby.co.nz/forum/ Copyright (c) 2006-2013 Web Wiz Forums - All Rights Reserved. Thu, 07 May 2026 22:37:51 +0000 Tue, 04 Dec 2012 10:00:31 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 12.05 360 https://www.ohbaby.co.nz/forum/RSS_post_feed.asp?TID=41838 https://www.ohbaby.co.nz/forum/forum_images/web_wiz_forums.png https://www.ohbaby.co.nz/forum/ https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5820693&title=has-anybodys-baby-have-billiary-atersia#5820693 Author: Kane100839
Subject: 41838
Posted: 04 December 2012 at 10:00am

Hi Guest_74646
How are you and your son doing?
We had the Kasai prcedure at 5 weeks old and then transplant at 5 months, our daughter is now seven months old and doing well so far. We have had some set back however are making steady progress.
We are you at in the process? I do see that things started earlier in the year for you but do know that these wee ones all take it at a different pace. We are in Auckland... ]]> Tue, 04 Dec 2012 10:00:31 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5820693&title=has-anybodys-baby-have-billiary-atersia#5820693 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5792040&title=has-anybodys-baby-have-billiary-atersia#5792040 Author: Emmi_
Subject: 41838
Posted: 08 April 2012 at 10:57pm

How did the op go?
My daughter (3m old one) has something wrong with her liver, they have ruled out BA though, but have just been up to starship our our 2nd biopsy (which is being sent to london )
I found this FB group helpful https://www.facebook.com/groups/158326670869599/ check them out, they are a BA/liver transplant page. At the moment it looks like our daughter may need a transplant in the future but not any time soon (if she continues to go the way she is now)
Its so hard to spend so much time away from your other kids isnt it? And living out of a suitcase sucks! We are lucky that we have only spent about a month in hosp, but i always have a bag packed just in case!]]> Sun, 08 Apr 2012 22:57:11 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5792040&title=has-anybodys-baby-have-billiary-atersia#5792040 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5791814&title=has-anybodys-baby-have-billiary-atersia#5791814 Author: Guest_74646
Subject: 41838
Posted: 05 April 2012 at 10:07pm

Thanks Dophy
we are heading back up to starship next week he is in Palmy hospital now . I just find it hard as this is baby number four and my 3 other children are healthy. He has spent most his life in hospital]]> Thu, 05 Apr 2012 22:07:41 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5791814&title=has-anybodys-baby-have-billiary-atersia#5791814 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5791789&title=has-anybodys-baby-have-billiary-atersia#5791789 Author: Dophy
Subject: 41838
Posted: 05 April 2012 at 7:10pm

http://www.classkids.org/forum/forumdisplay.php?f=35
]]> Thu, 05 Apr 2012 19:10:24 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5791789&title=has-anybodys-baby-have-billiary-atersia#5791789 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5791788&title=has-anybodys-baby-have-billiary-atersia#5791788 Author: Dophy
Subject: 41838
Posted: 05 April 2012 at 7:08pm

Hey, my baby doesn't have billiary atersia and I don't know anyone who does. I hope you find some support out there, parenting a healthy baby can be hard and lonely enough without extra serious complications as your little one. I came across this forum with parents with children with what your bubs has, although its american it might be good just to talk to others who understand what you are going through too. Where abouts in the country are you in?]]> Thu, 05 Apr 2012 19:08:18 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5791788&title=has-anybodys-baby-have-billiary-atersia#5791788 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5791626&title=has-anybodys-baby-have-billiary-atersia#5791626 Author: Guest_74646
Subject: 41838
Posted: 04 April 2012 at 7:04pm

My baby is 18 weeks old and he has Billiary Atersia he was born without a gall bladder or bile ducts they did his first major surgery on the 2 nd Feb 2012 called a Kasai i would really like to get in touch with some other parents and so far im finding it hard and so lonely knowing anyone with this condition. He will eventually need a liver Transplant

Edited by Guest_74646]]> Wed, 04 Apr 2012 19:04:12 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41838&PID=5791626&title=has-anybodys-baby-have-billiary-atersia#5791626