Eye problems
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Topic: Eye problems
Posted By: daikini
Subject: Eye problems
Date Posted: 14 October 2005 at 3:43pm
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Josiah has trouble with his eyes. We noticed he "scans", looking for something to focus on. His eyes are almost constantly moving. You can tell when he's seen something - his eyes lock postion, and his face lights up. Don't get me wrong - Josiah can see. He reaches for toys, and has good (developing) hand-eye coordination. He just apparently can't see at distance.
The plunket nurse referred us to our GP, who referred us to an opthamologist (specialist in eyes and eye muscles) at Wanganui Hospital. The first appointment had to be delayed due to snow, but we were able to get a new appointment for a week later. This was the end of last month. Ellen (the opthamologist) said that there is definitly something wrong, and we go back after Labour Weekend to do some more tests. We'll see Ellen again, and a colleauge of hers who is a specialist in the back of the eye, as well as a paediatrician. The paed. app. is just to check everything else has developed as expected for his age. Nathaniel and I hope they find something! We really don't want to hear that its just a muscle strength thing, and that he'll get better as he gets older. Have any of you other mums experienced anything similar? ------------- Becca, mum of 2 girls & 3 boys |
Replies:
Posted By: k&jsmum
Date Posted: 15 October 2005 at 12:39am
i havent experienced that prob but jaidyn my younger twin has a lazy eye and has monthly visits with opthamologist. Its really frustrating as they wont operate instead he has to have his good eye patched (what a mission) or eye drops to blur the vision in his good eye and this is for the next 2-3 years and might i add the drops do effect the vision in his good if taken for too long!!!!! They wont operate which really annoys me as my friends girl who is the same age had both eyes lazy and no vision impairment because the eyes just switched sides and they operated this was down in palmy nth. And jaidyn had vision loss as its been the one eye constantly - very frustrating as i dont wnat him to have probs later in life. I keep telling them this and they wont give me a decent reason for no op. ggggrrrrr ------------- Marlene Keegan ~ 14 October 2003 Jaidyn ~ 14 October 2003 |
Posted By: paigesmum
Date Posted: 15 October 2005 at 7:50am
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I hope it comes right and you find out what is causing it!!
Karen. ------------- http://www.babysfirstsite.com"> 
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Posted By: nuttymama
Date Posted: 22 October 2005 at 8:31am
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Becca we had the same problems with my oldest boy his eyes were constanly moving trying to scan and he was diangnosed with pendular Nystagmus. Bascially it means his eyes never stop and he has trouble focusing on objects they may appear fuzzy or blurred. At first I didn't think it was serious as he met all of his baby Milestones, however he was diagnosed at 3 months and is now eight and after millions of tests and hospitals appointments we now know that it won't get worse but will never change. It can cause things like light sensitivity, and problems seeing in dull light. Micheal is now legally blind, however he also has no pherifal vision no 3D vision, no uper vision is short sighted and suffers from a squint so he has a lot of problems all rolled into one. The good news is if they have a great personalitiy they cope amamzingly well, micheal plays rugy at school (Badly he always misses the ball) and runs and plays with his mates. He has trouble reading and has to have eveything magnified as glasses don't work for him and will always need a teachers aide at school but he just deals with it. The other problem they quite oftem have is problems seeing proparly in large groups, like maybe the supermarket if they wander away etc, micheal memorises what I'm wearing and even then he loses me at times. What you are going through sound exactly what we went through all those years ago. Stay strong and ask lots of questions. There are alot of people in NZ who suffer from Nystagmus and all lead mostly normal slightly adapted lives. Good Luck with all the tests and if you have any questions you want to ask me go for it. By the way how old is he? Gosh there is so much I could wite about this subject I had better stop. Ps the bad thing is there is nothing they can do if it is Nystagmus except moniter it. ------------- Abigail 06/01/2005 Jayden 21/11/2001 Micheal 03/04/1997 |
Posted By: nuttymama
Date Posted: 22 October 2005 at 8:46am
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K$ Js mum, We also went through this with Micheal and it was two years of treatment before they operated on him. He had a huge squint and we did the patching and the drops we also paid $500 for glasses as this sometimes stop them squinting. Eventually they decided that his vision in his bad eye was getting to bad so they operated. Not nice it entails taking the eye out of the socket and shortning the muscle. They did both of Micheals eyes at the same time and boy was he miserable. We were told that if the squint is not fixed by the age of eight the vision loss in the bad eye is usually permanent. Patch helps strenthen the weak eye blah blah. I can understand you getting frustrated. If you are anything liike me you want it fixed. They seem very slow on moving with squints. ------------- Abigail 06/01/2005 Jayden 21/11/2001 Micheal 03/04/1997 |
Posted By: daikini
Date Posted: 22 October 2005 at 2:51pm
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Thanks for your reply, Vicky. Josiah is 5 1/2 months old. We go back to the hospital on Wednesday. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: nuttymama
Date Posted: 22 October 2005 at 4:36pm
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Good Luck hopefully it's something simple that can be corrected. ------------- Abigail 06/01/2005 Jayden 21/11/2001 Micheal 03/04/1997 |
Posted By: k&jsmum
Date Posted: 22 October 2005 at 11:31pm
hi vick luckiy jaidyn doesnt have to have glasses as was tested for it. dont know how they figured he didnt need glasses something about it not being too bad - well i think when they have vision loss then it is bad but i guess when its not their child they can easily say that to you - moaning again lol. have appoint on tuesday so will see what garbage they tell me thins time and good luck with your visit on wed becca ------------- Marlene Keegan ~ 14 October 2003 Jaidyn ~ 14 October 2003 |
Posted By: daikini
Date Posted: 23 October 2005 at 10:57am
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Thanks Marlene. Good luck for your visit on Tuesday! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: daikini
Date Posted: 25 October 2005 at 4:23pm
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How'd it go today, Marlene? ------------- Becca, mum of 2 girls & 3 boys |
Posted By: k&jsmum
Date Posted: 26 October 2005 at 2:03pm
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hey becca actually pretty good jaidyn has been off eye drops and patches for a month and he hasnt gone backwards (he improved a little while on them) which is good and is back on patches again to see how he goes. between him and his brother ripping them off all the time it can be a mission keeping them on so if it doenst work they want him back on drops but am reluctant as it can have effects on the good eye - which they told me is minimal but i stood up tp them and said today that i didnt feel any effect was "minimal" when it comes to my sons vision whcih made her stop in her tracks abit and have a think. but other than that its good news and we will just have to see how it goes. how did your appoint go?? ------------- Marlene Keegan ~ 14 October 2003 Jaidyn ~ 14 October 2003 |
Posted By: Maya
Date Posted: 26 October 2005 at 3:13pm
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Becca, Maya had a definite squint from about 8 weeks, and we were referred to a paediatric opthamlologist (thank God for private insurance so we didn't have to wait long!). She has hypermetropia (far sightedness) and a slightly lazy eye, which is probably hereditary since I had a lazy eye and now wear glasses to correct astigmatism.
Anyways, long story short, her eyes are improving, her lazy eye only flicks when she is really tired, and when she last saw the orthoptist last week her eyes were working together nicely. Apparently she (subconsciously) works at keeping her eyes straight, which in turn strengthens the weak eye muscles. Just thought this might be a bit reassuring for you. -------------  Maya Grace (28/02/03)
 (02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: daikini
Date Posted: 26 October 2005 at 10:25pm
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Marlene, that's fantastic! So nice to get good news, isn't it?
Thanks, Emma, that's really great to hear. Okay... today. My best friend of 13.5 years lives in Wanganui. Her husband took the day off work to look after Kiya for us (he has built up quite a lot of time off, which he needs to use up before the end of the year, so it worked really well for both of us!) So Kiya had a picnic at Kowhai Park, and fed the ducks at the lake, and played and played and played. It was so good not to have to try to keep her busy! We had 3 appointments today: Paediatrics at 11:15am, the paediatric opthamologist (Ellen) at 1pm, and another opthamologist (Mr de Kock) at 1:30pm. As we were coming in from Ohakune, Ellen got someone to do a whole lot of running around and organise these appointments to happen in one day. The first appointment, with the Paediatrician, went really well. Ellen wanted Josiah checked out to be totally sure there wasn't anything else going on as well. He did a 6mth milestones checkup, and said Josiah has reached all the proper milestones and is slightly advanced in some areas. He wanted to know what we were there for! At 1pm, we saw Ellen. She did some little tests and confirmed that Josiah is seeing more/further than he was last time she saw him. She put some drops in his eyes to fix the dilation, then we waited around for just over 45 minutes before we got to see Mr de Kock. He checked the general health of Josiah's eyes.
Turns out, the pigment at the back of his eyes is speckled. This could be part of the problem or it could be completely irrelevant - pretty much only time will tell us. Mr de Kock told us Josiah is long-sighted, and can see things far off but not at short or middle distance. Ellen told us afterwards that at Josiah's age, his brain is compensating for being unable to see, and is working harder so that he can focus up close. Mr de Kock suggested glasses, but Ellen wants to wait until Josiah is closer to 18months old. The next step is that we go back in December, when they will put Josiah under general anestetic and dilate his eyes again, then check the responses properly. It was a little hard to do today, as his eyes kept roaming trying to focus on something. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: Maya
Date Posted: 26 October 2005 at 10:30pm
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What a busy day! Sounds like you are in very capable hand tho! All the best with your appointment in December. ------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: nuttymama
Date Posted: 27 October 2005 at 6:48am
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that's great news for both of you. I'm glad to hear things are comming along. K&Jsmum good on you for standing up to them, for ages I kept asking them if Micheal was colour blind on top of his other problems and they tested him and said no I was sure he was as he kept confusing colours al the time, anyway after months of arguing with the hospital we got him checked independantly and he has a huge colour deficet, greens yellow browns black, blue is purple and brown is red. The hospital has now conceded that they missed it. All I can say is a mother knows, and sometimes best. Becca glad to hear it may be something simple, good luck with the testing in December, I was a big baby and cried the first time they put micheal under a nurse had to give me a hug and said it was very normal, so I'll be thinking about you. After the nineth time I started getting used to it. You'll be amazed at how quickly you get used to all their names for eye problems although I still can't prnounce most of micheals so I use the dumbed down meanings. ------------- Abigail 06/01/2005 Jayden 21/11/2001 Micheal 03/04/1997 |
Posted By: nikkitheknitter
Date Posted: 27 October 2005 at 12:44pm
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Sounds like you've got great support in Ellen Becca!
Hope everything turns out ok |
Posted By: k&jsmum
Date Posted: 27 October 2005 at 7:08pm
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thats great news becca about josiahs milestones!! Good luck for the next visit and let us know what happens ------------- Marlene Keegan ~ 14 October 2003 Jaidyn ~ 14 October 2003 |
Posted By: daikini
Date Posted: 29 November 2005 at 11:08am
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I rung the hospital yesterday, to find out what was going on. I've just heard back: Josiah's proceedure will be in January. The opthamologist wants to wait until Josiah is a little older, and as he is so young they need two anethatists(?) there during the proceedure.
Its so good to finally have a better idea whats happening! Now I can get on and confirm our christmas plans. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: k&jsmum
Date Posted: 29 November 2005 at 1:01pm
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wow thats great news. must be a load off your mind. now you can go and enjoy xmas without and niggles in the back of your mind. yay!! ------------- Marlene Keegan ~ 14 October 2003 Jaidyn ~ 14 October 2003 |
Posted By: daikini
Date Posted: 29 November 2005 at 1:34pm
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Its also going to be good that we'll be back home when he's really light sensitive! It will be so much easier to look after him here than at my parents or inlaws place - especially as my parents are getting a pool next week! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: Maya
Date Posted: 29 November 2005 at 2:33pm
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Good luck with the procedure Becca! I know from very recent experience how awful it is when your baby has to have an anasthetic (awful for the Mum I mean - the kids are always fine!). ------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: daikini
Date Posted: 14 February 2006 at 10:53am
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UPDATE:
Last Tuesday, we finally had the proceedure. Josiah had to be nill-by-mouth from 2am, so I gave him an extra bottle at 1am to help him get through the morning. We got to the hospital at 7:30am, and he went under anestetic (sp?) just after 9am. The proceedure was all over by about 9:20, and I was holding him in Recovery as he woke up properly. The specialist came in to let us know what he found out: Josiah is longsighted, and has a lack of pigment at the back of his eyes. The specialist thinks that the lack of pigment might stem from a lack of pigment in his whole body, as Josiah is quite fair. He (the specialist) thought Josiah might have a slight tendancy towards Albinoism. The Nystamus (slow scanning from side to side) is a symptom of his longsightedness, as we initially suspected. It is literally Josiah looking for something to look at. Ellen (our opthamologist) should be getting in contact with us in the next couple of weeks, and we'll start working out when to fit Josiah with glasses for the longsightedness. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: lizzle
Date Posted: 14 February 2006 at 10:57am
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I'm not sure whether to say thats gerat- as you know what's wrong adn everything is done and finished, or to asy too bad - as josiah is long sighted and will need glasses.
Hope that You are feeling okay Beeca, as it is so rough when the kiddies aren't 100% and there isn't a lot you can do. take care of Josiah, and YOURSELF!!! |
Posted By: daikini
Date Posted: 14 February 2006 at 11:02am
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I understand Liz... and as far as we're concerned, it was the best possible bad news!
It's good because now we know what's going on properly, and at least part of it is treatable... and we weren't imagining things! It's bad because there is something wrong, and Josiah is getting frustrated again as the Atropine (used to fix the dilation so the specialist could have a good look) wears off. I hope he isn't too overwhelmed when he does get glasses and things suddenly look better. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: k&jsmum
Date Posted: 14 February 2006 at 1:25pm
Thats good news that they have sorted out the prob and now you can all work towards making life better for Josiah. Jaidyn is due to have another eye glasses test in the next month so will be interesting to see how that goes. Hes been sqinting abit when looking at certain things. Does Josiah do this? The Atropine is a bummer aye. Had Jaidyn on those drops for a month as he was being a pain with the patches and still is so he may have to go back on them. I felt so mean as last time one morning in a rush I wasn't concentrating and put the drops in the wrong eye (his good eye) . Talk about making his life hard for the day - its a wonder he could see anything at all that day poor little dude  ------------- Marlene Keegan ~ 14 October 2003 Jaidyn ~ 14 October 2003 |
Posted By: daikini
Date Posted: 14 February 2006 at 1:28pm
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I haven't noticed Josiah squinting, except recently with the atropine making everywhere too bright. He does tip his head to the side to look at things though. Does Jaidyn do that? ------------- Becca, mum of 2 girls & 3 boys |
Posted By: k&jsmum
Date Posted: 14 February 2006 at 1:34pm
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he does tip his head to the side quite abit - never even related ti though. Guess I have heaps of questions when we go for our next visit. ------------- Marlene Keegan ~ 14 October 2003 Jaidyn ~ 14 October 2003 |
Posted By: daikini
Date Posted: 14 February 2006 at 1:51pm
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The only reason I noticed it, was because I was filling in the pre-checkup page in Josiah's Well Child book before his 9mth plunket visit, and Nathaniel pointed out that I'd marked "no" for that when he actually does do it. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: newmum
Date Posted: 14 February 2006 at 5:59pm
Glad the procedure went well Becca!  ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: nuttymama
Date Posted: 14 February 2006 at 7:28pm
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The tipping their head to one side is called finding there null point. It's a place where they will find there sight slightly better. You may find when he is tired his head may also bob slightly. My 8 and a half year old son micheal has pendular nystagmus as well as several different other vision problems so I am very well versed in this subject. What we found was a huge lack of information volunteered by the hospital we were told and sent on our way and thought nothing of it as they didn't say how it would impact him, so I did a lot of my own research. We never found out how bad my sons vision actually was until we researched it and then I was able to bombard them with revelant questions. He now has teachers aide help and is registered with the blind foundation as legally blind (keeping in mind he also suffers from Amblyopia, Strabismus, Anisometropia and Estropia as well as nystagmus. If you have any questions please feel free to ask. ------------- Abigail 06/01/2005 Jayden 21/11/2001 Micheal 03/04/1997 |
Posted By: daikini
Date Posted: 15 February 2006 at 7:52am
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Josiah doesn't bob his head when he's tired, although his scanning does get worse. I'm still not 100% convinced Josiah's scanning could actually be called nystagmus, as it is quite a slow movement. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: nuttymama
Date Posted: 15 February 2006 at 8:58am
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From what what we have been told the speed can vary depending on how severe the condition is. Micheals speed up considerably when he is tired but any other time it is a slow steady movement unless he is trying to focus on something. It's a really hard condition to understand and can be very overwhelming, micheal was diagnosed at 3 months and 8 years later we are still learning about his condition. If you aren't convinced maybe it might be worth getting a second opinion. If it is it definately isn't the end of the world my husbands cousin is and albino and she has nystagmus and is legally blind because of it and she is a forensic scientist in Australia. You may be lucky and it could be a very mild version, with not to much disruption to sight. I'm so sorry I hope I haven't freaked you out. I just really pi**es me off that hospitals etc don't think to give out information packs when people are told they have a certain condition. Most people with nystagmus are usually registered as partially sighted, not all are legally blind. ------------- Abigail 06/01/2005 Jayden 21/11/2001 Micheal 03/04/1997 |
Posted By: daikini
Date Posted: 15 February 2006 at 9:03am
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Josiah's movement is literally him looking for something (usually specific, and just out of range) to look at. As soon as he finds it, his eyes lock onto it and the movement stops.
We're going to ask about that, and also about the albinoism, as everyone around here I've talked to don't like the specialist who examined Josiah's eyes... I dont' have a problem with the idea that there is a lack of pigment at the back of his eyes, its the suggestion that he's so fair comes from a lack of pigment in his whole body that I don't like. I'm quite fair skinned, and Kiya is blonde (with olive skin). My sister is fair skinned and blonde, and both Nathaniel and his brother were white blonde for the first 2 years of their lives. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: k&jsmum
Date Posted: 03 May 2006 at 3:52pm
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well we had an appoint with the eye specialist yest for jaidyn to have an eye glasses check and I explained to the doc the probs Im having keeping jaidyns patches on and all the diiferent things Ive tried and if he had any other ideas. Well his response was you have 2 choices go hard on the patches or he will end up blind in his bad eye. Needless to say I was really stunned at how coldly he said it as if i was a bad parent for not being able to get my 2 and a half year old to keep and eye patch on for the whole day!!! Anyway got back to the car and had a wee cry about it but he did give me some eye drops to use for the next 2 mths. Anyway took boys to the docs and had a moan to him and he did say the eye doc is very old sch nad prob left all that business to his wife so really wouldnt understand the joys of a 2 year old (also my doc has a 2 yr old girl so very understanding). Anyway will do the eye drops thing and have to truck on with the patches once that drops are finished.
Still pretty upset thou. ------------- Marlene Keegan ~ 14 October 2003 Jaidyn ~ 14 October 2003 |
Posted By: daikini
Date Posted: 18 May 2006 at 6:59pm
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After two months of nothing, I rung the hospital and asked when the followup appointment from Josiah's proceedure would be. The next day, I received one in the mail!
Tuesday next week, we go and see Ellen (the opthamologist). Nathaniel and I have agreed we're going to push for Josiah to be fitted for glasses as soon as possible. Hopefully Tuesday will be be the first step of this. I managed to swap my 20 week scan from next Friday to the same day, and talked nicely to Nat's principal to get him the day off, so he's able to come with me to both appointments. Originally (as it was two trips to Wanganui in a week) I was going to be going to the eye appointment alone, and Nat was coming to the scan. I'll let you know how it goes. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: nikkitheknitter
Date Posted: 18 May 2006 at 8:10pm
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A friend of mine has a child, Brayden, who has albinism and has the same scanning problem. He's had many a test and they have found the same kinds of probs that you have Becca (without knowing the exact details) but Brayden is coping fine! Don't know the deal with glasses, I don't think he has any yet but will probably need them.
And as a glasses wearing kid  (well, I was 5) It's not that bad!! Altho I kinda did ditch them until high school, but that was because Mum let me choose them and once I got out of the '80s they were terribly untrendy.
Good luck with the appointments and stuff! |
Posted By: my2angels
Date Posted: 19 May 2006 at 11:43am
| good luck with your appointment. i think kids with glasses are sooo cute. |
Posted By: newmum
Date Posted: 19 May 2006 at 1:37pm
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Yeah, think of that CUUUUUUTE kid off Jerry Maguire ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: AlyAyde
Date Posted: 19 May 2006 at 2:59pm
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Lissy went to the opthamoligist today. And she has a stigmatisim (her cornia should be round and its oval apparently) and also a lazy eye. So She has to get glasses and if that will sort out her vision and may correct the lazy eye. If not she will need a patch as well. Poor girl. Lets hope Her overbite corrects itself or she will have glasses and braces when shes a teenager.
Good luck with your appts Becca ------------- Jayde 25/12/04 Alyssa 08/04/03 http://Alyayde.bebo.com |
Posted By: daikini
Date Posted: 24 May 2006 at 11:33am
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Josiah's appointment went well. Nathaniel and I feel we now have a better understanding of what Josiah's eyesight is like, so that's good.
Josiah is quite longsighted (+5 for those that will mean something to) so will need glasses in the future. At the moment, his brain is still compensating for his lack of closeup vision, and will do so for another 12 - 24 months, so there's no rush to fit him with glasses just yet. Ellen (opthamologist) wants to wait until he's 18 months old, and has assured us that Josiah's vision will not be wreaked by waiting. We're going back to see her at the start of October to look at glasses then. There is a definite lack of pigment at the back of Josiah's eyes. Ellen said this affects his peripheral (sp?) vision. As far as we know, this means that things on the edge of sight are blurry for him whereas we see them clearly even when we're not actually focused on them. However, we're not really going to know how bad it really is until he's about 2.5yrs old, and can articulate what he can and can't see. As he gains confidence walking, and starts to go around furniture, Ellen has asked us to watch how he responds - does he actually see the barrier and avoid it or is he walking into the edges of things? We're not expecting much to have changed by October when we go back to see Ellen again, especially as his vision problems are definitely not holding Josiah back developmentally in any way. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: james
Date Posted: 24 May 2006 at 11:59am
my brother a mum both have stigmatism in both eyes and need glasses for reading jason wasnt picked up till he was 18 becase he thought thing looked like that normalay ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: nikkitheknitter
Date Posted: 24 May 2006 at 1:15pm
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Good to hear Becca!
and @ Maria. I had glasses and braces as a teen so I got dreads to compensate for the geekiness
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Posted By: Roksana
Date Posted: 24 May 2006 at 1:22pm
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Oh Nikki...you are funny!! I got glasses at 15 and was the youngest in my family to get glasses. I am blind with out them.
Becca...Glad to hear that you know Josiah's condition. Poor bub! But from the sound of it his eye sight hasnt stopped him from day to day things which is good. Bring on October!!! So they cant fix this with laser? I know a 2 year old who had laser treatment on her eyes...in USA. ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: daikini
Date Posted: 24 May 2006 at 1:35pm
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Don't know if laser treatment will help his longsightedness or not... I think I might bring it up with Ellen sometime. Thanks for the idea, Roksana.
Nothing can be done to help the lack of pigment, at least, until we know how badly it actually affects him. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: nikkitheknitter
Date Posted: 24 May 2006 at 1:38pm
Doesn't sound like he's suffering for it! Here's hoping he keeps being his clever happy self!!! (Atleast we know he can see to find the rubbish bin well enough  )
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Posted By: Roksana
Date Posted: 24 May 2006 at 1:41pm
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Doesnt hurt to ask I guess huh? I am sure it was to correct her longsightedness ....(???). I dont know if NZ does them this young. But then you never know. Wont know about the pigment thing.....I hope it doesnt effect him too much. ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: daikini
Date Posted: 24 May 2006 at 1:42pm
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Oh, hey, Nikki - we're not going away Queen's Birthday anymore, so if you want to see Kiya as well as Josiah and me that would be the time to call in! Otherwise, she'll be at school. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: nikkitheknitter
Date Posted: 24 May 2006 at 1:55pm
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Well I may be coming through on the 18th (Sunday) or 19th now, as I only want to be at home for 2 weeks and have a 21st to go to on the 1st of July.
Are you free those dates? I've got to get hold of someone who might be hitching with me to see which date she wants to leave, and then I can confirm exactly which one. And Roksana - will be coming to Auckland probably the weekend after, maybe the 23rd of June. Will stay until the Monday, so if you can squeeze us in then that'd be loooovely! (Sorry for deviating from thread Becca )
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Posted By: daikini
Date Posted: 24 May 2006 at 2:03pm
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We should be home that weekend, Nikki. My chief bridesmaid and her husband have offered to take our kids for a weekend so we can have a break, but it looks like that will be happening either the weekend before (10/11) or weekend after (24/25).
No worries about the thread hijack... considering I started both the thread and the current hijack, Nikki! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: nikkitheknitter
Date Posted: 24 May 2006 at 2:06pm
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Cool! Sounds like a plan then. If my trip does coincide with your weekend together then I can always make the trip to Ohakune on the way home instead.
I'll give you a PM closer to the time with phone number and stuff so we can co-ordinate
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Posted By: daikini
Date Posted: 24 May 2006 at 2:12pm
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You're on! We did our monthly shop yesterday, so I'll try and remember not to eat all the eggs before I do some baking! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: Roksana
Date Posted: 24 May 2006 at 4:52pm
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24th June at my place? Hubby will be at soccer....I would love some company. Or I can meet you some where. Let me know! ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: nikkitheknitter
Date Posted: 25 May 2006 at 8:51pm
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Done and done!
Don't worry Becca - I'll bring something. I don't expect baking when I know there is no way in heck that I'd find time to do it!
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Posted By: daikini
Date Posted: 26 May 2006 at 10:38am
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No, Nikki, I love baking! Finding time is not a problem when Josiah sleeps for a couple of hours in the morning, and similar (on a good day) in the afternoon! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: AlyAyde
Date Posted: 26 May 2006 at 2:24pm
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Sigh. Just went and got lissy fitted for her glasses today. She does look cute but im sure my baby will get teased. Plus it was $265 and they need to check her every 4 weeks then 3 months as her perscription will change. Agh why are things so expensive. you know kids im sure these glasses will be trashed within weeks. ------------- Jayde 25/12/04 Alyssa 08/04/03 http://Alyayde.bebo.com |
Posted By: AlyAyde
Date Posted: 26 May 2006 at 2:25pm
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lol Nikki i will tell lissy she has total permission to have dreads. ------------- Jayde 25/12/04 Alyssa 08/04/03 http://Alyayde.bebo.com |
Posted By: nikkitheknitter
Date Posted: 26 May 2006 at 10:43pm
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I'm not sure it did much for me. I was always destined to be geeky I'm just the librarian type.
Atleast I was a confident geek.
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Posted By: aimeejoy
Date Posted: 27 May 2006 at 8:22am
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oh Nikki you crack me up!! ------------- Aimee Hannah 22/10/05 Greer 11/02/08 |
Posted By: Roksana
Date Posted: 29 May 2006 at 1:06pm
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Man Glasses for kids are expensive!!!
Maria did you get her the plastic lenses? I found that because my lenses are plastic they are more expensive and if you want them thinner too....Man I paid $800 for my glasses 3 years ago! Arrgggg ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: daikini
Date Posted: 27 October 2006 at 8:52am
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I know this thread is getting a little old, but I've got an update, so here we go!
Today we're going to go to Wanganui to choose the frames for Josiah's glasses. 
We saw Ellen (the opthamologist) at the start of the month. Josiah's eyes are not getting any worse, and as he grows he is starting to deliberately focus to look at things close up or further away. The only potential problem with this is that his left eye is starting to turn in when Josiah goes from looking at something further away to something up close. We're hoping the glasses will sort this out, otherwise we'll be looking at patches so he doesn't end up with a lazy eye. Josiah's biggest problem at the moment is that he has limited depth perception. This means that when we are somewhere new that has stairs, he doesn't see the steps downwards and will step straight out. He also doesn't see small changes in the flooring (like from tiles to carpet, a difference in height of about 1.5cm) and will trip up. At home this isn't as much of a problem, because he remembers where the steps are (all to outside) and goes down backwards. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: daikini
Date Posted: 27 October 2006 at 9:04am
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Oh, Maria: if you qualify for a Community Services Card, you can get your child's glasses subsidised - up to $282 a year until they are 8! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: AlyAyde
Date Posted: 27 October 2006 at 9:14am
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Yay for Josiah getting glasses. dont forget to post a pic. Yeah i know about the CSC but we dont qualify. Although if i took lissy to the doctor more than 12 times a year she would qualify for a high users card and get them subsidised that way. ------------- Jayde 25/12/04 Alyssa 08/04/03 http://Alyayde.bebo.com |
Posted By: daikini
Date Posted: 27 October 2006 at 9:25am
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The optomotrist makes fortnightly trips to Ohakune, so we're going to choose the frames today and see if he can bring the finished glasses with him next time he comes up this way (saves a trip! )
The other thing that has happened for Josiah is that he is now registered with the Foundation for the Blind, so we get help from a place called The Vision and Sensory Resource Centre (SRC). There is a woman (Meredith) who comes out here once a term, and goes over what sorts of things Josiah can and can't see, and where he should be developmentally. She has toys and books we can borrow, and gives us lots of information. SRC will continue to work with us and Josiah's teachers right up until the end of high school, and its free! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: 11111
Date Posted: 27 October 2006 at 10:43am
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That's great good support for you. My best friend as been through all this with her wee one he is 2 now, but SCR are great. ------------- Deborah Mum to:   
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Posted By: nuttymama
Date Posted: 27 October 2006 at 10:56am
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Becca as he gets older you will the the foundation immensly helpful, I know they have gone out of there way to help us with micheal. The extra help is great, and it's amazing the little things they can adapt that make life just that little bit easier for them. Glad to hear things are getting sorted for you. ------------- Abigail 06/01/2005 Jayden 21/11/2001 Micheal 03/04/1997 |
Posted By: nikkitheknitter
Date Posted: 27 October 2006 at 2:01pm
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Everything sounds like it is going your way Becca.
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Posted By: daikini
Date Posted: 27 October 2006 at 8:21pm
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All went good this afternoon... I had a scan (more in the November thread), then we went to Visique and chose some frames and organised the lenses. The optomotrist comes up to Ohakune fortnightly, so he'll bring the finished glasses with him on his next trip which will be in about 10 days. I'll post a photo sometime after that, once Josiah is used to them enough to let me! You all will have to be patient though, as there is a fair chance there will be a newborn in the house as well! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: daikini
Date Posted: 14 November 2006 at 11:13am
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Just to let you ladies all know we picked up Josiah's completed glasses on Friday. The optomotrist did bring them up with him last Wednesday, but he was so busy he didn't get a chance to drop them into the chemist before they closed, so they got taken back to Wanganui with him. We called in once we got home on Thursday to find the glasses weren't there. I rung Visique, and they said they were going to courier them back up to Ohakune the next day (Friday).
We went to pick them up, to discover that there had been a slight clerical mixup - the right glasses had been sent, but the bill was in the name of my husband's cousin, Joshua (who lives in Wanganui and is also a client of this optomotrist!) The lady at the pharmacy rung Visique and it turns out they hadn't actually entered Josiah into the system, they'd just put all his prescription information into Josh's file! Visique has just got a couple of new receptionists, and given our unusual surname plus two similar first names, it was an easy mistake to make - especially if they took a slight shortcut and just entered "jos" into the computer. Still, all sorted now. Josiah loves his glasses. We thought that by the end of the second day a reasonable accomplishment would have been to have him wearing them half a dozen times for up to 15-20 minutes a time... by the end of Saturday, he'd worn them all day except for about an hour in the middle of the day, and another hour after dinner! We've been letting him dictate how much and for how long he wears them, and he does seem to notice a difference, as he wants them on and is more settled when he's wearing them! Once the glasses are on his face, Josiah barely touches them. He's managed to break them already... although, I must admit Nat and I were impressed that it didn't happen until last night! The first thing he did was bend one of the arms straight down, putting too much stress on one of the hinges (that attaches the arm to the frame). Nat bent it back into shape, the screws are fine but the arm moves further than it should but a bit of tape just reinforces it so that the glasses are not too loose on his face. Then last night, he walked around behind the couch wearing them and walked back a minute later without them on so I went looking... he'd twisted the frame enough somehow that one of the lenses popped out! I left them for Nat to sort out (as it was right before I started cooking dinner) and he managed to twist them back into shape enough to get the lense back in place. The frames are a little crooked now, but Josiah still seems to prefer to wear them. We'll take them to Wanganui when Xavier is born and get them properly sorted out then. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: daikini
Date Posted: 14 November 2006 at 11:14am
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Oh! before I forget - we do have some photos of him wearing them... I'll post one shortly, once I've taken it off the camera. ------------- Becca, mum of 2 girls & 3 boys |
Posted By: daikini
Date Posted: 14 November 2006 at 11:34am
Here you are, our little cutie!
 ------------- Becca, mum of 2 girls & 3 boys |
Posted By: busymum
Date Posted: 14 November 2006 at 12:10pm
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Gosh he really seems to suit them! Well done ------------- |
Posted By: AlyAyde
Date Posted: 14 November 2006 at 12:11pm
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ohhh so cute! He really suits them! ------------- Jayde 25/12/04 Alyssa 08/04/03 http://Alyayde.bebo.com |
Posted By: EllenMumof2
Date Posted: 14 November 2006 at 1:42pm
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hey becca i never knew you were so close we are in wanganui i just read though your whole post and my boy had the same problem as your boy did and got glasses when he was 2 and Ellen up at the hosptial is who Kalem sees to its a small world http://lilypie.com">
  http://lilypie.com">
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Posted By: EllenMumof2
Date Posted: 14 November 2006 at 1:50pm
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heres a photo of kalem at 2 with them and one taken today at school
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Posted By: daikini
Date Posted: 14 November 2006 at 1:53pm
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Ellen is wonderful, isn't she! We're not sure how long we're going to be in this area, but if we move we are going to get her to refer us in the hopes we get someone as good! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: EllenMumof2
Date Posted: 14 November 2006 at 2:15pm
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Yes she is great and Kalem is really good with her to which is great i think it is because she gives him pictures to colour http://lilypie.com">
http://lilypie.com">
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after subsity. Posted By: daikini
Date Posted: 14 November 2006 at 2:21pm
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We were really fortunate - it only cost us $17 after subsidy AND that was with having the lenses shaved down to fit in the frames properly. Josiah's frames are actually quite cheap - they are $108, so its not going to be the end of the earth if they break and we have to buy new ones... mind you, at just under $300 all up, we can afford to buy new lenses as well if necessary! ------------- Becca, mum of 2 girls & 3 boys |
Posted By: Roksana
Date Posted: 14 November 2006 at 2:43pm
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oh wow...Josiah looks great in his new glasses!!
Glad he like them and wears them....Zaara hates any thing on her eyes ....she has these groovy sunglasses that she refuses to wear!! ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: daikini
Date Posted: 20 September 2007 at 10:42am
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Bump for cuppatea ------------- Becca, mum of 2 girls & 3 boys |