I just want to crawl into a hole...
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Forum Name: General Chat
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URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=15934
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Topic: I just want to crawl into a hole...
Posted By: my4beauties
Subject: I just want to crawl into a hole...
Date Posted: 02 April 2008 at 4:39pm
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.... and make my baby boy's problem go away!!
After his abscesses that he got back in January haven't healed up, he saw the Paediatrician today from Waikato, who comes to Tga once a month for an out-clinic day. He said Jett needs to go under General Anaesthetic AGAIN (already been under twice this year) so they can find out what is going on inside. I HATE that he has to go through this!!!! I've been exceptionally tired today, and felt nervous/sick about this appt as I knew he'd probably need to go under GA again, and I DON'T want him too. Also we have to go to Waikato Hospital and I hate it over there. Away from the kids and family. And the worst case, is that it could be Crohns causing it  .
I just feel sick now and don't want to do anything but hug my little boy. He's such a happy little chap, it's hard to imagine what could be going on inside his little body. I think being tired has made me feel much worse about it all. I won't relax either till the surgery's done and he's awake from the anaesthetic. ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow"> 
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Replies:
Posted By: Snickerdoodle
Date Posted: 02 April 2008 at 4:57pm
Oh Italiah 
I guess the positives out of this are that he's come through GA twice and been fine, and that he's in good hands. I friend of mine has Crohns and has a fab lifestyle 
It doesn't make it any easier, I know
Rico and Gia are old enough to understand that Mummy has to go away with Jett, I suppose? So they'll be fine
Big hugs to you!! Whatever the outcome, Jett has a wonderful Mummy who cares a lot for her kids
------------- 
http://lilypie.com">  
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Posted By: .Mel
Date Posted: 02 April 2008 at 5:30pm
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My SIL has Crohns too. I'm sure they will be able to find some answers for you Italiah.
So sorry that your little man has to go thru this at such a young age. Take Care. ------------- Mr Mellow (16) Miss Attitude (8) Destructa Kid (3) 
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Posted By: EmDee
Date Posted: 02 April 2008 at 5:36pm
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------------- DS 8 DD 6 DS 4 DD 2 |
Posted By: my4beauties
Date Posted: 02 April 2008 at 6:16pm
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Aww thanks girls.
I know Crohns isn't the worst thing one could have, but for him to get it this young is very strange. I just hate he has to go through these procedures. It's a lot for a little boy.
Speaking of which he's being a grumpy bum now and needs to go bed. Thanks heaps for your kind words, it's really appreciated!  ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: nicolaann
Date Posted: 02 April 2008 at 6:37pm
Big Hugs!!!  ------------- Nicky, Mum to Alex (5) & Sophie (3) http://lilypie.com"> 
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Posted By: sparkle
Date Posted: 02 April 2008 at 6:49pm
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Big hugs to you and Jett ------------- http://lilypie.com"> 
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Posted By: hooper
Date Posted: 02 April 2008 at 6:53pm
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big hugs to you ------------- Desiree 
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Posted By: Kels
Date Posted: 02 April 2008 at 6:54pm
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------------- http://lilypie.com"> 
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Posted By: AliaDawn
Date Posted: 02 April 2008 at 6:54pm
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It would be strange for a baby to get crohns My uncle has it, I think pretty bad... has had to have a few operations because of it, and works from home mainly because of the pain and other problems... but other than that he's actually done pretty well for himself.
I really hope that your little one is just feeling temporarily off -------------  
 
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Posted By: arohanui
Date Posted: 02 April 2008 at 7:10pm
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Aw Italiah.. that must be such a worry for you having to see your wee boy go through yet another operation Hope the wait til he has surgery isn't too long for you. ------------- Mama to DS1 (5 years), DS2 (3 years) and... http://alterna-tickers.com" rel="nofollow"> 
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Posted By: Andie
Date Posted: 02 April 2008 at 7:24pm
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Oh man, that's stinking tough. I hope the news just gets better. Hang in there, you're doing all the very best you can for him. Big hugs, chick. ------------- Andie |
Posted By: kebakat
Date Posted: 02 April 2008 at 7:27pm
| Awww poor lil guy! |
Posted By: cuppatea
Date Posted: 02 April 2008 at 7:41pm
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Awwwww poor lil Jett that's heartbreaking that he has to go through all that and hugs to his mummy as well. ------------- 
 
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Posted By: BellaBoo
Date Posted: 02 April 2008 at 7:41pm
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Fingers crossed that this is the last time he has to go to hospital. Thinking of you guys ------------- http://lilypie.com">   http://lilypie.com">
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Posted By: my4beauties
Date Posted: 02 April 2008 at 7:50pm
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Thanks again chickies, you're all sooo lovely!
I so hope the news is good and he doesn't have crohns. But I do want to know what is going on in there. It's frustrating it's gone on this long. So I know that in order to find what the cause is, he has to have the surgery, so I'm trying to think that it's NOT a bad thing he has to go through, and once he wakes up I'll be there to give him the biggest cuddles and boobie-feed - as I have done the past 2 times he came around. ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: Maya
Date Posted: 02 April 2008 at 8:58pm
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Big hugs Italiah and Jett! Poor wee thing I've got a Kidney Kid so I know how scary the unknown can be, but I have my fingers crossed that this will be Jett's last surgery and will give you some answers.
My brother has Crohns, but he pretty much ignores it, he's a bad patient. He was diagnosed as an adult but has always had digestive system issues ever since he was born, and had two lots of surgery on his stomach as a kid so it wasn't exactly a random diagnosis. -------------  Maya Grace (28/02/03)
 (02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: Bombshell
Date Posted: 02 April 2008 at 8:59pm
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Oh hon I hope he doesnt have it either....Poor bubba boy!
and a big hug from afar from me! Your kiddies are too cute to be sick! |
Posted By: Bubbaloo
Date Posted: 02 April 2008 at 9:06pm
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Aww poor wee boy big hugs to you. ------------- http://lilypie.com" rel="nofollow">  Was danni-chick Mum to James My Angel 28/07/08 |
Posted By: Kelpa
Date Posted: 02 April 2008 at 9:15pm
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Awwwwww....that just made me wonder who makes these decisions about making these little people suffer.
Poor wee guy and poor Mum...Its so horrible having to see your little one go through all that..............Im sure everything will be fine..... Big hugs..... -------------  
 
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Posted By: Shorty
Date Posted: 02 April 2008 at 9:32pm
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Bigs hugs from us!
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Posted By: james
Date Posted: 03 April 2008 at 7:50am
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big hugs hun ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: nictoddie
Date Posted: 03 April 2008 at 12:27pm
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big hugs from here too ------------- 
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Posted By: mummy_becks
Date Posted: 03 April 2008 at 5:59pm
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Awww poor little boy. I hope he doesn't have crohns. ------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived! |
Posted By: AnnC
Date Posted: 03 April 2008 at 8:19pm
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oh i do hope he doesn't have crohns. Its very rare for a baby to have crohns and normally teen and young adult sp??) disease although not saying its not that just rare.... What are his syptoms?
I myself have crohns... diganosed when i was 23yrs old. ------------- Ann 
Also Mum to Josh (15) and Brooke (10) |
Posted By: AnnC
Date Posted: 03 April 2008 at 8:19pm
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any questions just ask ------------- Ann
Also Mum to Josh (15) and Brooke (10) |
Posted By: Leish
Date Posted: 03 April 2008 at 8:53pm
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Hugs Italiah ------------- http://lilypie.com">  http://lilypie.com">
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Posted By: hailstones
Date Posted: 03 April 2008 at 8:55pm
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Hugs from me too ------------- http://lilypie.com">  http://lilypie.com">
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Posted By: BabyKiwi
Date Posted: 03 April 2008 at 10:11pm
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from our family to yours!!
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Posted By: my4beauties
Date Posted: 04 April 2008 at 9:05am
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Aww thanks guys!! As much as I'm not a Doctor, I don't think it would be that, as if he did have it - wouldn't he be in pain because of it?!?
Besides the abscess, he is a happy little boy who doesn't cry out like he's in pain at all - ever! I thought if crohns was causing the abscess he'd be in pain and upset over it. Thanks again for all your thoughts and warm hugs - it helps to know you guys are of great support!! ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: peanut butter
Date Posted: 04 April 2008 at 10:01am
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Hugs Italiah! I dont know much about CHrons in babies but as you may know I have ulcerative colitis (which is like the baby brother of Chrons - yes...has to be male cause it causes grief!). I would expect pain, diarrohea etc. I know when my UC flares up I am definately far from comfortable! Maybe the absesses have never healed properly in the first place and therefore keep reinfecting. I know when I have had an abscess before it was very important that it healed from the inside out rather than closing over so maybe his healed funny.
Fingers crossed it will all be over soon. |
Posted By: AnnC
Date Posted: 04 April 2008 at 1:16pm
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where does he get the absess?
When my crohns acts up (as I call it) I am in alot of pain as 'it' makes its way thru my intestines (it being a #2) which can be an hour or so before hand to just before hand... Crohns is very painful in teens and adults so i presume it would be painful for Jett. ------------- Ann
Also Mum to Josh (15) and Brooke (10) |
Posted By: my4beauties
Date Posted: 06 April 2008 at 4:12pm
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He has peri-anal abscess which is right next to the a-hole. So it's a hard place to keep clean and dry.
He's a really contented baby, but I am so sure he would cry and act in pain if the crohns was acting up. When he poo's there is no crying pain or him acting uncomfortable at all. ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: AnnC
Date Posted: 06 April 2008 at 5:17pm
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so he doesn't pull his knees up? Does he strain more than normal to have a poo? cause the poos could be cutting the anus and then creating an absess - this can happen with none crohn people too..
Thing is I can not let you know if Jett has or hasn;t got crohns only the specialist can do that. But its not all doom and gloom - I live a normal life after the operation (I got part of my intestines cut out) ------------- Ann
Also Mum to Josh (15) and Brooke (10) |
Posted By: my4beauties
Date Posted: 26 May 2008 at 9:48pm
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Well I finally got a letter from Waikato hospital with an appt for Jett to see the paed. I don't think it's going to be the actual surgery again, just a check-up. I'm so hoping that because his little tush has been good for quite some time they'll be happy to leave any more surgery.
We have to go to Waikato Hospital on 16 June. Long way for an appt  . But will be good to see where we're at. ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: AnnC
Date Posted: 26 May 2008 at 10:26pm
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Oh good luck - hop eyou come back with some answers and good news ------------- Ann
Also Mum to Josh (15) and Brooke (10) |
Posted By: Snickerdoodle
Date Posted: 27 May 2008 at 6:49am
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Hope it all goes well
DH's Dad has a brain tumor and trigeminal neuralgia (nerve damage in his jaw from brain tumor) and has to make 6 monthly trips to Waikato. It's pain in the butt! I wish TGA hospital was equipped to deal with more, huh?! -------------
http://lilypie.com">
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Posted By: my4beauties
Date Posted: 27 May 2008 at 9:27am
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Thanks Ann.
Yeah Charly, I wouldn't get so freaked out if we were just going to Tga hospital - especially now cos it's all new & flash! I hate travelling over the Kaimai's as well. Your poor FIL not only with the tumour, but having to travel that distance that often! ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: Snickerdoodle
Date Posted: 27 May 2008 at 9:35am
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Yeah, the Kaimais aren't my favourite road to drive, either
Hopefully the next 3 weeks go fast for you. Nothing worse than waiting around
**eta, thanks And I re-read my post, it's twice a year, not 6 per month.. I worded that wrong. But it's still awful as his jaw pain can be so bad sometimes that even brushing his teeth or shaving is agony - the bumpy, twisty turny roads are hell for him.
Anyway - threadjack over. -------------
http://lilypie.com">
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