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EVERYONE! please lend your support...

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Category: General Chat
Forum Name: General Chat
Forum Description: For mums, dads, parents-to-be, grandparents, friends -- you name it! And you name the topic you want to chat about!
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=17098
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Topic: EVERYONE! please lend your support...
Posted By: Andie
Subject: EVERYONE! please lend your support...
Date Posted: 10 May 2008 at 7:37pm

Hi everyone.  Please consider sending an e-mail in support of all the kids on here who live with constant allergy battles, and all the mums on here beating their heads against brick walls just trying to get the medical services our kids need, when they need it.  Thanks ever so much - every bit helps.  All you need to do it read this and send one wee e-mail.  Please feel free to copy and paste the whole thing and pass it on as well, so long as you send it in it's entirety (all the text below this blue).  Cheers! 

 

Support Allergy New Zealand in making a major submission on the need for better access to allergy services for all New Zealanders.

 

We would like to show the DHB’s that we have the support of those affected by allergies and to give weight to our submissions.  To do this we need your help!

 

To do so, simply email mailto:dhbsubmissions@allergy.org.nz - dhbsubmissions@allergy.org.nz stating your support for Allergy New Zealand’s submission to the [insert name] District Health Board. Please make sure your name and place you live is in the email.

 

You could also forward this e-mail on to your family and friends so they can do the same.

 

Please consider getting some signatures. We can send you (or e-mail) a form, covering information letter and a map of your DHB area.  You could then take it around to your family/neighbours/friends/work/kindy/school … We just need to have it posted back to Allergy New Zealand before May 18th. If every member and supporter collected just 10 signatures each we would have more than 24,000.  Every little bit you do can help.

 

The more support, the louder our voice on your behalf and that of your family and friends.

 

The Submission

 

As part of Allergy Awareness Week, 18-24 May, Allergy New Zealand will be presenting a submission to each of New Zealand’s 21 District Health Boards. The purpose of these submissions is to raise awareness of the substantial burden that allergies, as one of the leading forms of chronic disease, imposes on New Zealanders as a whole.

 

New Zealand has one of the highest prevalence of allergic disease in the developed world, affecting up to 20% of the population, mainly young people of working age and their children. Allergic diseases are a significant underlying cause of avoidable hospital admissions including for asthma and anaphylaxis; repeat GP visits for conditions such as eczema, ear and chest infections and conjunctivitis, and high use of medications such as antibiotics. They are also responsible for complex conditions such as food allergy, and life-threatening reactions such as anaphylaxis.

 

However as people in many regions of New Zealand report, it is very difficult to access specialist care, whether public or private. In fact the Australasian Society of Clinical Immunology and Allergy has stated that the number of allergy/immunology specialists in New Zealand “is well below international benchmarks and inadequate to manage the burden of disease.”

 

This chronic condition is usually triggered by substances which are difficult to avoid in every day life, from house dust and pollens to eggs and dairy food. Even mild symptoms often have hidden effects, such as lack of sleep due to itching from eczema; while life-threatening reactions such as anaphylaxis to food, happen within minutes and require an emergency response.

 

Yet in most regions of New Zealand people report significant delays in getting a proper diagnosis let alone advice and treatment; and in all but a few DHB areas, many patients have to pay for services such has laboratory tests or a referral to a specialist, even when such referrals are standard clinical practice overseas. There is also little or no recognition of the impact on the individual and/or family in managing complex chronic allergic conditions such as food allergy and/or anaphylaxis. This is compounded by the ongoing reluctance of Pharmac to fund the adrenaline auto-injector (i.e. EpiPen®) for those at risk of anaphylaxis.

 

In these submissions, Allergy New Zealand will call on District Health Boards to:

1.         Acknowledge that the lack of access to specialist allergy and clinical immunology services for the majority of New Zealanders is a serious issue that needs to be resolved as soon as possible;

2.         Commit resources urgently to improve access to tertiary-level clinical services for both paediatric and adult patients with severe and/or complex conditions and/or at risk of life-threatening allergies.

3.         Make a commitment to collaborate regionally and nationally to develop as a priority, publicly-funded clinical pathways for allergy and immunology services so that provision for patients is equitable, based on need, and to international best practice including those for the management of chronic disease.

 

The full submission will be available on our website http://www.allergy.org.nz/ - www.allergy.org.nz from 19 May. In the meantime, contact us if you have any questions.

 

Allergy New Zealand

PO Box 56-117, Dominion Road, Auckland
Ph. 09-623-3912 Fax 09-623-0091

www.allergy.org.nz



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Andie



Replies:
Posted By: Andie
Date Posted: 10 May 2008 at 7:57pm

oooh, and please, would you mind also dropping a post in here if you've sent an e-mail so that us allergy families know who to thank, and to stop this post dropping off the page in a hurry before people have had a chance to read it?  I know it's a loooong post above, but it's not a big task, lending your support to it, so thanks in advance to those of you kind enough to help out



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Andie


Posted By: WRXnKids
Date Posted: 10 May 2008 at 8:08pm
Sorry im tired and cant think straight. What should i write in the email to dhbsubmissions? Do i copy all of the above with my name and city at the bottom or just say hi im such & such from this place i support allergy NZ?

I know stupid question but i want to do it right and i really dont trust my brain at the moment

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Posted By: Kellz
Date Posted: 10 May 2008 at 8:33pm
I would like to be sent a form so I can gather signatures. Can u send it to me Andie we dont ahve a printer), or so I have to email someone else to get the form?


Posted By: aimeejoy
Date Posted: 10 May 2008 at 9:04pm
Kellz, I can copy my hardcopy and send to you fastpost, as they need to be back in to Allergy NZ by end of next week (18th).

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Aimee

Hannah 22/10/05
Greer 11/02/08


Posted By: Bubbaloo
Date Posted: 10 May 2008 at 9:31pm
Sweet as have done I hope you guys get heaps of signatures and email support and that DHB's get a's into g and start doing more towards helping families with allergies.

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http://lilypie.com" rel="nofollow">



Was danni-chick



Mum to James

My Angel 28/07/08


Posted By: caraMel
Date Posted: 10 May 2008 at 9:38pm
Done and forwarded!

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Mel, Mummy to E: 6, B: 4 and:



Posted By: Andie
Date Posted: 10 May 2008 at 9:57pm

Ar!  I've just addressed 2 envelopes to you for those, Kellz.  So if you beat me to it Aimee, Kelly will have 2 sheets to fill!  Mwah ha ha ha haaaa. 

I'm gonna take Ella door-knocking with me when I go.  I'll let her cute little face do the persuading! 



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Andie


Posted By: aimeejoy
Date Posted: 11 May 2008 at 8:38am
Nope havent done it yet Andie! Good luck door knocking.

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Aimee

Hannah 22/10/05
Greer 11/02/08


Posted By: cuppatea
Date Posted: 11 May 2008 at 9:38am
Yep done.

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Posted By: Maya
Date Posted: 11 May 2008 at 1:03pm
Done here too! I wish Maya was still at preschool, I could have taken a petition there as well

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Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)


Posted By: Andie
Date Posted: 11 May 2008 at 2:16pm

I got 60 sigs at church today... wa-hoo! 



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Andie


Posted By: Maya
Date Posted: 11 May 2008 at 7:08pm
Go Andie's church!

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Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)


Posted By: mummy_becks
Date Posted: 11 May 2008 at 7:53pm

Andie bring it to me I will sign it for you.



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I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived!


Posted By: Andie
Date Posted: 12 May 2008 at 2:29pm

Argh I've just posted it off, Becks!  They need to be in by the 18th and I wanted it to make it in time.  Thanks anyway... you can still do it by e-mail, which counts as another signature... and every signature and e-mail helps! 



-------------
Andie



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