So sad..
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Category: General Chat
Forum Name: General Chat
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URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=22399
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Topic: So sad..
Posted By: MissCandice
Subject: So sad..
Date Posted: 12 November 2008 at 7:44am
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Poor wee Kyah isnt able to hold on much longer. Iv been reading this little girls journey through cancer for awhile now, and its so gut wrenching i cant help but cry.
I really feel for her family as its something i couldnt ever imagine having to do. http://kyahsjourney.livejournal.com/ - Kyahs Journey ------------- ~ Mummy to a beautiful girl ~ |
Replies:
Posted By: fire_engine
Date Posted: 12 November 2008 at 8:12am
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Oh, that's absolutely heartbreaking. I just can't imagine having to go through that with my child. They are amazing. ------------- Mum to two wee boys |
Posted By: Hopes
Date Posted: 12 November 2008 at 8:13am
Oohhh...  -------------   
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Posted By: Lisha
Date Posted: 12 November 2008 at 8:17am
My heart goes out to them too.... I couldn't imagine what it is like to have a sick child. Have a massive lump in my throat  ------------- http://lilypie.com">  http://lilypie.com">
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Posted By: mum2emj
Date Posted: 12 November 2008 at 8:28am
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i have been following her journey for ages now myself, my heart is breaking for her and her family, it has been such a sad sad thing for them all to go through- words cannot describe it.
reading her last journal entry last night i had a huge lump in my throat and tears flowing, it is amazing how a wee child who i have never personally met and her family can touch the hearts of soooooooo many people around the country (and world) my hugest love, thoughts etc... for shanelle and jason and the boys and all the family xoxoxoxoxoxoxo |
Posted By: clover
Date Posted: 12 November 2008 at 8:38am
| I've also been following her journey, it is the first blog I read every day. it is heartbreaking and I can't believe how strong her parents are. |
Posted By: Jessica
Date Posted: 12 November 2008 at 8:45am
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It is the first time I have read it and I am in floods of tears, imagine dealing with that and being so strong. My thoughts are with Kyah and her family ------------- 
Our con-joined boys 20 wk |
Posted By: NeoshasMummy
Date Posted: 12 November 2008 at 8:46am
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------------- https://secure.fertilityfriend.com/home/30c4ec/" rel="nofollow">  Mrs Te Kani ❤️ Neosha 26/5/2007 |
Posted By: mummy_becks
Date Posted: 12 November 2008 at 8:47am
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Awww that poor little girl. My thoughts are with her and her family today. ------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived! |
Posted By: kriss
Date Posted: 12 November 2008 at 9:06am
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That is the first time I have read also, absolutely heartbreaking..
Thoughts and big hugs to little Kyah and her family.. ------------- http://lilypie.com"> 
http://lilypie.com"> 
 Little Angel, April 10
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Posted By: MrsMojo
Date Posted: 12 November 2008 at 9:24am
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Posted By: caitlynsmygirl
Date Posted: 12 November 2008 at 9:25am
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Her mother was on another forum I used to go on , I hadn't realised what was happening until a friend from the forum sent me the link a couple of months ago , and now I read it everyday .
Sure puts life in perspective , how much pain must one child go through ? how much pain does a parent have to stand by helplessly and watch their child suffer ? My thoughts are with the bravest girl Ive ever heard of , her amazing strong parents and her awesome big brothers . My friend went to her birthday party , she said it was fantastic, but very very bittersweet . ------------- 
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Posted By: .Mel
Date Posted: 12 November 2008 at 9:28am
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It took me 3 days and many hours to read from the beginning of their journey until I was up todate. I found last nights entry so heartbreaking to read.... I just hope Kyah passes quietly and in as little pain as possible.
------------- Mr Mellow (16) Miss Attitude (8) Destructa Kid (3) 
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Posted By: caitlynsmygirl
Date Posted: 12 November 2008 at 9:33am
so do I , its beyond cruel now -------------
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.Mel wrote:Posted By: DzinerGirl
Date Posted: 12 November 2008 at 9:34am
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Poor wee girl....I'm the same as you .Mel only just learnt about her fight (and she sure is a fighter!) the other day and went back and read all the entries.
My thoughts are with Kyah and her family
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Posted By: clover
Date Posted: 12 November 2008 at 9:38am
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It is so cruel. I had tears this morning when I read that she couldn't move her beloved giraffe from one hand to the other. I find her popping into my thoughts all the time and because of her I don't think I will ever forget just how precious every moment is
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Posted By: Bel
Date Posted: 12 November 2008 at 9:50am
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I am reading through now, tears running down my face... this is so sad, what a horrible thing for a family to go through. They have been so brave
Enjoy every moment with your kids ------------- Mum to two beautiful kids
Luke (09.11.2007) Amy (01.04.2009) |
Posted By: Busy1
Date Posted: 12 November 2008 at 9:57am
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That story is absolutely heart breaking! Poor little girl.
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Posted By: caraMel
Date Posted: 12 November 2008 at 10:19am
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I've been following since she relapsed and have been in floods of tears this morning after reading the update.
Its just so unfair that anyone has to go through this kind of pain, watching their precious, beautiful little girl suffer and fade away. My heart just breaks for them. ------------- Mel, Mummy to E: 6, B: 4 and: 
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Posted By: peachy
Date Posted: 12 November 2008 at 11:10am
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I too have been following her story. It makes me cry everytime I read the updates. Breaks my heart ------------- http://lilypie.com">  http://lilypie.com">
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Posted By: ooEvaoo
Date Posted: 12 November 2008 at 11:13am
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It's really uncomprehendable having to go through so much pain at such a young age. What strong parents she has. I don't think I'd be able to deal with this.
May she come to find peace in the arms of our creator. ------------- 
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Posted By: ohanlon82
Date Posted: 12 November 2008 at 11:14am
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this is so sad... i have tears running down my face at work
my heart goes out to this poor little girl and family ------------- http://lb2f.lilypie.com/TikiPic.php/RPaODBg.jpg |
Posted By: Neeks
Date Posted: 12 November 2008 at 11:32am
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OMG, I only read the last two posts and the tears are streaming down my face.
I am going to start the entire blog again so I can read the whole journey!! I can't imagine what this family must be feeling knowing that she's going to die -------------  
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Posted By: Jay_R
Date Posted: 12 November 2008 at 11:47am
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I just can't stop crying
That is just the saddest saddest thing I've ever read. The strength of her parents is just amazing. I'm not sure I could be even half as brave as them if it was my little man going through what Kyah is. God bless you and keep you in his arms 
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Posted By: Daizy
Date Posted: 12 November 2008 at 12:35pm
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I have been following the story for a while now too. Its so unbelievably sad! What an amazing family though! My thoughts and prayers are with them.
I check it every day and almost always end up in tears. Makes you really appreciate what we do have.
------------- 
 
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Posted By: floss
Date Posted: 12 November 2008 at 12:58pm
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I read there blog everyday to and then go and hug my guys a little tighter and tell them how much I love them.
No child, parent or family should have to go through what they have been through ------------- My beautiful big girl Sienna 15.04.06 Double the trouble double the fun Noah & Lola 10/11/07 |
Posted By: caraMel
Date Posted: 12 November 2008 at 1:13pm
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Very true Daizy, I've been so much more aware of how blessed I am and how precious the time with them is.
Its made me realise how important it is to make the most of the time I get to spend with them, no matter how much housework I'm ignoring! ------------- Mel, Mummy to E: 6, B: 4 and:
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Posted By: kiwisj
Date Posted: 12 November 2008 at 1:48pm
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I have been following this story too, since they were on Stuff for Kyah's birthday. Every time I read their journal I have tears pouring down my face, it is so so sad and seems so unfair for Kyah to have to go through all this pain and her family too.
Really does make you appreciate what you have in life.. ------------- SJ Callum - Dec 2008 Daniel - Oct 2010 |
Posted By: jack_&_charli
Date Posted: 12 November 2008 at 2:54pm
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i didn't know about wee kyah......barely read a post but am struggling to hold back the tears so will read it later when i'm alone
no one should EVER have to see their children suffer like this, let alone bury them. life is too unfair and i feel so blessed (and guilty) to have my 2 healthy ratbags ------------- http://www.alternatickers.com"> 
http://lilypie.com"> 
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Posted By: CuriousG
Date Posted: 12 November 2008 at 3:43pm
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I also have followed this for a wee while, I think about Kyah all the time and check in for updates more than once a day. I even had dreams about her the other night.
It really does make you appreciate your children even more than before reading it. It has also made me research neuroblastoma a bit more also as I really had no idea what it was all about and I have cried many tears reading through other families struggles with it. ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: .Mel
Date Posted: 12 November 2008 at 3:58pm
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Its hard to imagine that the next post we will be reading is to tell us that Kyah has passed... ------------- Mr Mellow (16) Miss Attitude (8) Destructa Kid (3)
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Posted By: mummy_becks
Date Posted: 12 November 2008 at 4:04pm
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I know that is so sad. ------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived! |
Posted By: caitlynsmygirl
Date Posted: 12 November 2008 at 4:04pm
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The last entry
Day 498 - Wednesday 12th November. Kyah is just managing to hang on. We got a few hours of sleep last night but it was broken because naturally we were checking on her all the time. Today has probably been worse. She is non-responsive for the most part and because there is still pain when we move her, Ari increased the syringe driver to 180mg. Her breathing is all over the place and she still has noisy spats. New veins are appearing on her tummy and there is an area that is bruised as there is no room for the blood to move now. To combat Kyah's vomiting, her ng tube has been 'set' to drain which means rather than put things down it, it now runs freely into a bag to rid her stomach of any contents. It means that the small amount of fluids she is asking for goes straight back up the tube but she hasn't vomited so it's working in that respect. The boys and I put up the Christmas tree today to see if she would show any interest and she hasn't even opened her eyes to look at it. I'm holding onto when it gets dark and the lights sparkle :o) I've decided to make this my last entry while Kyah is still alive. There isn't any benefit to describing the 'barely there' state she is in and to be completely honest, this is the stage that I would rather forget. We would like to thank everyone who has commented in here over the past few days - the support is phenomenal! Please keep leaving messages as Jason and I will continue to check and unscreen them. We will update in the next few days but will now concentrate our time hanging out with the coolest almost three year old in the whole wide world. See you on the other side.... -------------
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Posted By: caraMel
Date Posted: 12 November 2008 at 5:47pm
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Its just so wrong. I can't imagine what they must be going through. I just keep on sending them prayers and hoping she goes in peace and without pain.
------------- Mel, Mummy to E: 6, B: 4 and:
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Posted By: Daizy
Date Posted: 12 November 2008 at 6:04pm
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Posted By: Kels
Date Posted: 12 November 2008 at 7:14pm
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------------- http://lilypie.com"> 
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Posted By: Jay_R
Date Posted: 12 November 2008 at 7:31pm
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Posted By: lovingmummyhood
Date Posted: 12 November 2008 at 7:45pm
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That is an amazing blog I can't even begin to imagine what that must be like
Good on them for writing everything down. What a strong family. ------------- http://lilypie.com">  http://lilypie.com">
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Posted By: mamanee
Date Posted: 12 November 2008 at 9:46pm
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I have just read most of the blog and I have been sitting here in tears. It's not fair! What a beautiful, amazing little girl. I had to go into Sams bedroom and just watch him and touch his little face. I have just read this bit and nearly lost it. I can't even begin to imagine what they are all going through We had a bath together tonight and it was both comforting and sad. She just lay on me but was buoyed by the water so felt weightless - extremely important given how heavy she is. We talked about the Hungry Caterpillar (one of her favourite books) and I asked her what happened to the caterpillar when he had a sore tummy. She said [in very limited language] that he was in a cocoon and turned into a butterfly, so I asked her if she was going to turn into a butterfly and she said no (quite adamantly I might add haha!) I then explained that Kyah had a sore tummy from all the bad bugs and that her cocoon was her body and it was nearly time for her to break free and turn into a beautiful butterfly. She whispered yes, but I'm certain it was a bit too profound and she just wanted me to stop talking! That analogy might work better with the boys :o) We had lots of silences and I would just watch her breath while tipping water onto her tummy. At one point she said "I'm sad.." "Why are you sad?" "Just because" "What is making you sad" "Me" "Kyah is making you sad?" "Yeah" "Why?" "Just because"
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Posted By: .Mel
Date Posted: 12 November 2008 at 9:55pm
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Yeah that got to me too.. and Jasons bit about wanting to build a wall around his wife and kids ------------- Mr Mellow (16) Miss Attitude (8) Destructa Kid (3)
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Posted By: Spirals
Date Posted: 12 November 2008 at 10:16pm
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Devastatingly sad. First time I've seen the blog, and I'm heartbroken for them. Haven't read it all yet, but definately will do.
The strength of her parents to write the blog is phenomenal. Must be so hard to do. An amazing thing to do - a way too look back and remember the journey, even though it's a sad one. A beautiful keepsake for the boys by which to remember all those little gorgeous details about their sister when they're older as well. |
Posted By: meow
Date Posted: 12 November 2008 at 10:21pm
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------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: Gaelic Lass
Date Posted: 13 November 2008 at 12:19am
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What an unbelievably sad thing..what an amazing little girl and what courageous parents. They could teach us all a few things about inner strength, love and compassion. Her last post left me in tears... I can not even comprehend what they have gone through in these past few years..... ------------- 
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Posted By: nictoddie
Date Posted: 13 November 2008 at 7:13am
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I have been following for a while now too and it is so amazing like someone else said how a person can touch your heart that you don't even know! I had to smile at the big party they threw here what a blast and so many generous people in NZ that donanted things and time to be there. What a truely amazing family she has and what a rocky road they have been on ................ Makes you really sit and think how lucky we truely are! ------------- 
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Posted By: kabe
Date Posted: 13 November 2008 at 6:26pm
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What a courageous family and such a brave wee girl. Have spent most of today thinking about her... ------------- http://alterna-tickers.com"> 
http://lilypie.com"> 
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Posted By: susieq
Date Posted: 13 November 2008 at 6:38pm
| what an amazing story and family, so sad |
Posted By: caitlynsmygirl
Date Posted: 13 November 2008 at 11:18pm
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My friend is friends with her mother, Shanell , on Facebook , Most recent status, "Kyah still with us, mum and daughter about to have last bath together "
Please, please may the end be very close Lets all pray or wish to whoever, whatever you believe in , that the end comes soon for this amazing little girl who has endured so much , and so she can finally meet her uncle on the other side and no longer be in pain . -------------
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Posted By: .Mel
Date Posted: 14 November 2008 at 8:49am
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I've just watched the whole 12mins of this, for the first time since I started reading Kyahs Journey, I was in tears
http://www.onetruemedia.com/otm_site/view_shared?p=399b82bf35025a9f911200&skin_id=601&utm_source=otm&utm_medium=text_url - Link ------------- Mr Mellow (16) Miss Attitude (8) Destructa Kid (3)
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Posted By: my4beauties
Date Posted: 14 November 2008 at 9:29am
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She's soo beautiful and it's just soo tragic!!!!
------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow"> 
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Posted By: CuriousG
Date Posted: 14 November 2008 at 9:37am
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------------- http://lilypie.com">
http://lilypie.com">
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Posted By: sally belly
Date Posted: 14 November 2008 at 10:36am
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This is beyond tragic & no one should have to go through what this beautiful little girl has gone through. I really hope that the end is not far away so she is no longer suffering. -------------    
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Posted By: MissCandice
Date Posted: 14 November 2008 at 10:40am
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------------- ~ Mummy to a beautiful girl ~ |
Posted By: peachy
Date Posted: 14 November 2008 at 11:52am
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Tears here too, she has been in my thoughts all week ------------- http://lilypie.com"> http://lilypie.com">
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Posted By: mummy_becks
Date Posted: 14 November 2008 at 4:14pm
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Tears here too watching that. So unfair ------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived! |
Posted By: .Mel
Date Posted: 14 November 2008 at 5:15pm
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Well all I keep thinking about is that it is Friday........... ------------- Mr Mellow (16) Miss Attitude (8) Destructa Kid (3)
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Posted By: caitlynsmygirl
Date Posted: 14 November 2008 at 5:55pm
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Me too, its friday and as far as Ive heard, shes still here , made it to 500 days .
Her birthday is on the 28th of November , so close but just too far . Glad they had a party for her while she could still to some level, enjoy it -------------
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Posted By: Mum2L
Date Posted: 14 November 2008 at 6:42pm
I see that Shanell has updated the blog to say that Kyah has reached day 500 and is still here  ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: kabe
Date Posted: 14 November 2008 at 7:44pm
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That video is so sad . Can't stop thinking about the wee poppet. ------------- http://alterna-tickers.com">
http://lilypie.com">
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Posted By: caitlynsmygirl
Date Posted: 14 November 2008 at 8:08pm
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Shanell updates her status on FB regularly (atm "Kyah is sleeping peacefully ' -shes still here) so my friend is keeping me up to date, so , whenever I get a text from her , Im half hoping to see shes passed away, yet Im half dreading it , because then its really the end for her parents ....but on the other hand she wont be suffering ... -------------
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Posted By: fire_engine
Date Posted: 14 November 2008 at 9:02pm
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I just really feel for her family - the video was so heartbreaking - I just wanted to go and cuddle Daniel really close.
I pray Kyah will soon be at peace and her family will have the strength to get through the next week and after. ------------- Mum to two wee boys |
Posted By: ooEvaoo
Date Posted: 14 November 2008 at 10:56pm
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Am watching the video and been bawling my eyes out. I just think what beautiful happy memories they've captured. Such a short life, and such a tragic circumstance. I am in awe of this family, of this little girl who has been fighting so long....why does this happen? When there are so many evil people in the world who deserve to die, why the life of an innocent child? I can only imagine God has wonderful things installed for her when she meets him in heaven. I am saturated in tears!. Am really wanting to get through the blog over the next few days. -------------
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Posted By: MissCandice
Date Posted: 15 November 2008 at 8:39am
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Its so sad.. i keep reading the same part and bawling all over again! ------------- ~ Mummy to a beautiful girl ~ |
Posted By: Rachael21
Date Posted: 15 November 2008 at 10:45am
| I'm not even up to day 100 yet and I've been crying for the past 2 days. Its so easy to live in denial that things like this don't actually happen to children, it has certainly made me cherish my babies so much more. |
Posted By: ooEvaoo
Date Posted: 15 November 2008 at 1:06pm
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I'm not even up to day 40!. Definitely makes me appreciate my son more and thankful to God for him being healthy. -------------
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Posted By: my4beauties
Date Posted: 16 November 2008 at 9:16pm
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Is there any news on little Kyah? I seriously can't stop thinking about her, it makes me well up all the time! ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: MissCandice
Date Posted: 16 November 2008 at 9:19pm
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She is still with us.. Its so heartbreaking! ------------- ~ Mummy to a beautiful girl ~ |
Posted By: my4beauties
Date Posted: 16 November 2008 at 9:22pm
Is it, isn't it Kandice. My heart aches when I think of her. It's too much for me to read the recent entries of the diary, how much she's suffering. ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: kathyandbub
Date Posted: 16 November 2008 at 9:35pm
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Italiah im the same i think about her all day long. Shes an amazing and beautiful girl. makes you apperciate evrything so much more
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Posted By: Daizy
Date Posted: 16 November 2008 at 10:19pm
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Same Here.
Im too scared to check up on it anymore. -------------
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Posted By: Mama2two
Date Posted: 16 November 2008 at 10:33pm
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I have been following this for a while too. The last few days I have thought of nothing else. Everytime I read the journal I end up crying my eyes out and having to go and give Samantha a huge cuddle to remind myself how lucky I am.
My heart goes out to this little girl and her family. I live in absolute fear of this happening to us as my DH's big brother died of cancer when he was only 4. Having Samantha has given me a whole new appreciation of what my MIL must have lived through and how much strength she has. I think that the families that get through this must be some of the strongest people on the planet
------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: lizzle
Date Posted: 17 November 2008 at 6:51am
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what really got me was the early entries when they said "oh, she can read this when she is older and know what a scare she gave us"- alerady knowing the outcome.
Because I don't know them, sometimes it was like reading a book - Shanell writes really well - and I was wiating for the happy ending. it is so gut-wrenching to realise there is no happy ending....and too much for me to think about them being real people, and knowing where they live and such...Kyah is less than two months older than Taine |
Posted By: peanut butter
Date Posted: 17 November 2008 at 8:12am
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I started reading about her in the paper yesterday and only got half way through the article before being a total blubbering mess. I couldnt finish it. then I found this thread and was reading it last night. I can bring myself to read the blog..but I want to know when her suffering ends.
I couldnt post last night as Iwas crying so hard. Her family are truely amazing as is Kyah! |
Posted By: DzinerGirl
Date Posted: 17 November 2008 at 8:58am
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She made it to 500 days! She's such a little trooper but it's still so sad
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Posted By: my4beauties
Date Posted: 17 November 2008 at 9:15am
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Gia is a month older than Kyah, I can't think about that too much as it upsets me, how young she is and has had this illness half her life. I can't believe how much it's taken over my thoughts! ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: Nefertiti
Date Posted: 17 November 2008 at 9:26am
Thats exactly what I feel! I have shown my daughters (teenagers) the blog and they have had a read through some of it. And one of them asks me everyday how she is doing. ------------- http://lilypie.com"> 
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Posted By: Rachael21
Date Posted: 17 November 2008 at 9:58am
Me too I think about her all day its just so heartbreaking. Shes only a wee bit older than Jack and I think of all the lovely things we have been doing while that poor family have been in hospital. That picture in yesterdays paper was just devastating she looks so beautiful but so sad. |
Posted By: my4beauties
Date Posted: 17 November 2008 at 10:18am
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What newspaper was that, Rach? ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: caraMel
Date Posted: 17 November 2008 at 10:28am
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http://www.pressdisplay.com/pressdisplay/viewer.aspx - Linky For Italiah, just search 'Kyah'
I was bawling after seeing the beautiful picture of her. She's too young! And she's in so many people's hearts. How can life be so cruel? It just makes me so grateful for what we have in our wee family. We have to hold them so close, life can turn on a dime. Edited for punctuation ------------- Mel, Mummy to E: 6, B: 4 and:
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Posted By: my4beauties
Date Posted: 17 November 2008 at 12:47pm
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Thanks for that mel. ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: kabe
Date Posted: 17 November 2008 at 9:23pm
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Thanks for the link. I can't stop thinking of Kyah either. I've read most of her 'journey' as I wanted to get through it before she passes away. I well up with tears every time I think of her and her family. ------------- http://alterna-tickers.com">
http://lilypie.com">
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Posted By: caraMel
Date Posted: 17 November 2008 at 11:23pm
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New update in the journal.
Kyah's still hanging in there ------------- Mel, Mummy to E: 6, B: 4 and:
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Posted By: Mama2two
Date Posted: 18 November 2008 at 7:43am
What an amazing little girl. Just think what most of us could accomplish if we even had an ounce of her strength ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: ooEvaoo
Date Posted: 18 November 2008 at 12:55pm
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I'm not even half way through the journal yet. Was awesome to see that she's still holding on. I held my breath when I saw the latest post. But she is definitely doing it her own way. She is so beautiful!!...I think about her and the family constantly as well...even in my dreams. Also try and think of ways to help CCF and RMH...like do a sponsored run or something next year.
It's so amazing what she's had to go through, and omg you should see her and her beads!!!!. Cancer kids have to go through soooooooo much it's not funny!. Definitely thankful for my son's health and appreciate him all that bit more knowing what other mothers are having to go through. -------------
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Posted By: kathyandbub
Date Posted: 18 November 2008 at 1:08pm
| ooEvaoo yea i was thinking about that to. though i am so not the running type. though im going to donate to there head shaving 'funrazor'. they have such a strong and amazing family and though it must be hard for them to do the journal it has bought alot of awarness to child cancer. kyah has touched so many people |
Posted By: MrsMojo
Date Posted: 18 November 2008 at 1:19pm
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I organise 2 sites in Wellington for the CCF street day appeal every year (usually held in early March). If anyone would like to donate an hour of their time to collect on Willis Street or in Civic Sq (my sites) or anywhere else for that matter please pm me. If you're not in Wellington but would still like to help out during the Street Day Appeal feel free to pm me too as I can get you in touch with the fundraising development manager in your area. Also check out http://www.childcancer.org.nz/ - http://www.childcancer.org.nz/ for more sad and inspiring stories and to find out other ways you can help CCF (such as shopping at JK, buying an entertainment book through CCF, buying a Kagi bead necklace etc). -------------
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Posted By: kathyandbub
Date Posted: 19 November 2008 at 11:56am
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New update.
Really don't know what to say, i cant even comprehend what they are going through. ETA: i just realised what i said may be a bit miss leading. but kyahs still hanging in there, what a strong little girl |
Posted By: caraMel
Date Posted: 19 November 2008 at 12:13pm
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------------- Mel, Mummy to E: 6, B: 4 and:
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Posted By: Jay_R
Date Posted: 19 November 2008 at 12:16pm
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Every time I read the blog I just cry and cry
It's just so sad and so heartbreaking. |
Posted By: my4beauties
Date Posted: 19 November 2008 at 12:38pm
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I can't believe her body is continuing to break down, yet she's still breathing. What a trooper. It obviously hasn't got to her heart and she's hanging on to that. What she could've achieved in her lifetime, if only that disease left her alone. It's soo heartwrenching!! ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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Posted By: ooEvaoo
Date Posted: 19 November 2008 at 2:02pm
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Yeh I'm going to donate to the funrazor, and I've also decided I'm gonna do the Molenberg SubSeires 5km run in March....not a great distance but heck for me it is!!..thought It might be abit more achievable for me to do then the half marathon I was initially going to do in May 2009 lol.
So....just made my page up. http://www.fundraiseonline.co.nz/EveArnold/ So just remember me over the next 4 months  ...every dollar does it's bit.-------------
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Posted By: ooEvaoo
Date Posted: 19 November 2008 at 2:05pm
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OMG!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Miss Kyla has finally become an angel
Our beautiful baby girl took her last breath at 11:55am and passed peacefully with Jason and myself right beside her. She has gone to a place where she can run and play just like any other 'almost three year old' can, where she is surrounded by butterflies and Polly Pockets and where she is no longer in pain. Thanks for being there with us. xoxoxox The pain is finally over -------------
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Posted By: fire_engine
Date Posted: 19 November 2008 at 2:09pm
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I'm so pleased she's free but so sad for her family ------------- Mum to two wee boys |
Posted By: CuriousG
Date Posted: 19 November 2008 at 2:12pm
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------------- http://lilypie.com">
http://lilypie.com">
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Posted By: Daizy
Date Posted: 19 November 2008 at 2:19pm
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Posted By: Jessica
Date Posted: 19 November 2008 at 2:36pm
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So sad, at least she is finally free from pain. -------------
Our con-joined boys 20 wk |
Posted By: Mama2two
Date Posted: 19 November 2008 at 3:45pm
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------------- http://lilypie.com">
http://lilypie.com">
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Posted By: caraMel
Date Posted: 19 November 2008 at 5:57pm
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God bless you sweet Kyah, you've touched so many hearts.
You changed my life and I never even met you. You'll never be forgotten. ------------- Mel, Mummy to E: 6, B: 4 and:
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Posted By: xox6Girls1Boyxox
Date Posted: 19 November 2008 at 6:45pm
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Rest In Peace Beautiful Angel
I could not even imagine what the family are going thru...
Huge Hugs to you all, Your little girl is painfree now.... ------------- http://www.bump-and-beyond.com/"> 
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Posted By: MommyMika
Date Posted: 19 November 2008 at 9:30pm
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RIP Kyah!
Your family is in our thoughts and prayers. |
Posted By: chonny
Date Posted: 20 November 2008 at 2:19pm
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OMG!!! i don't knwo what to say. i just read Jase's last entry & it has me in tears. they are such a strong couple.... i haven't read the hwole story but really feel for this family. our thoguths are with you all!
*** RIP Wee Kyah! may you enjoy your freedom & painfree play. may your family always know you are watching them & guiding them! *** -------------   
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