need a bit of support!!!
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Topic: need a bit of support!!!
Posted By: chonni
Subject: need a bit of support!!!
Date Posted: 08 December 2008 at 8:31pm
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hi as you all know mila has severe eczema since she was born and in the last 6months her skin on her arms have been pealing off every day (like the size of when you tuch your thumb with your index finger) in big clumps like that !! it now weeps all the time if you tuch her your hands are wet! and the back of her head weeps allday leaving it red and hair stuck to her. and eczema from head to toe! i feel like i cant enjoy my baby coz shes always crying and itching.. for the past week she has has swolen lymph nodes under her armpits and back of her neck and in the groin. shes breing admeited into hospital tomorow as shes not sleeping anymore ( didint sleep till 7.30am thismoring) the docs are starting to think that she may have congential skin disorder or lymph system disorder or they are even concidring rare skin disorder! i just needed to talk about it and get some feedback ------------- 
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Replies:
Posted By: pomikiwi
Date Posted: 08 December 2008 at 8:40pm
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aw hun thats so sad, I've got no advice for and can't even begin to imagine how you must be feeling. And your poor little girl must be in such pain too.
So bigs hugs for you. Hope you get some answers from the Dr's. xx ------------- http://lilypie.com">  
DD-Carys Amelia 17.03.06 |
Posted By: cuppatea
Date Posted: 08 December 2008 at 8:40pm
I don't have anything useful to say but just wanted to offer a cyber hug ------------- 
 
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Posted By: jack_&_charli
Date Posted: 08 December 2008 at 8:41pm
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oh hun!!! i'm sorry i have no advice but wanted to give you and mila some
i have excema and was quite bad when i was little, so i can relate to how poor wee mila must be feeling....although not quite as bad. good luck at the hospital hun, i hope they can get it diagnosed for you and do something to help her  ------------- http://www.alternatickers.com"> 
http://lilypie.com"> 
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Posted By: my4beauties
Date Posted: 08 December 2008 at 8:41pm
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oh Chonni, that's so sad! I feel for you right now, as Jett has eczema, but not nearly as bad as Mila by the sounds, and his is bad enough to drive himself and me mad! I hope the Dr's can find out the cause, and get Mila better!! Lots of hugs hun, and keep us up-to-date with how things are going. ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow"> 
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Posted By: .Mel
Date Posted: 08 December 2008 at 8:53pm
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Thinking of you and Mila, I hope the doctors can find some answers, and that you've got lots of family support to get you thru this.
------------- Mr Mellow (16) Miss Attitude (8) Destructa Kid (3) 
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Posted By: EmDee
Date Posted: 08 December 2008 at 8:53pm
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Oh no, poor Mila and poor you I really hope the doctors are able to figure out whats going on. ------------- DS 8 DD 6 DS 4 DD 2 |
Posted By: Snappy
Date Posted: 08 December 2008 at 8:56pm
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Ohhh poor wee poppet... I really hope the docs have some answers for you. . It must be heartbreaking for you to see her like that. ------------- Mummy to two beauties... Formerly Kaiz. |
Posted By: lovingmummyhood
Date Posted: 08 December 2008 at 9:29pm
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Oh poor Mila and you
Hope there's something they can do ------------- http://lilypie.com">  http://lilypie.com">
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Posted By: AandCsmum
Date Posted: 08 December 2008 at 9:31pm
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There was a documentary not that long ago about a little girl in England who had skin that rubs off?
I remember childhood eczema & it was so itchy, I hope she gets better soon. ------------- Kel http://lilypie.com"> 
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: kiwisj
Date Posted: 08 December 2008 at 10:24pm
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I have no advice either, just a big for you and Mila. Good luck with the doctors, hopefully they find some answers for you both xxx ------------- SJ Callum - Dec 2008 Daniel - Oct 2010 |
Posted By: caitlynsmygirl
Date Posted: 08 December 2008 at 11:53pm
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oh man , the poor little pet, that must be so horrible for her ...and for you ! i really hope the hospital can give you some answers, and your little girl can be happy and comfy again
big cyber hugs hun ------------- 
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Posted By: MrsMojo
Date Posted: 09 December 2008 at 8:26am
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poor wee Mila and poor you too. I can't imagine how hard that must be. I hope the doctors can find an answer quickly and give her some relief. -------------  
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Posted By: My3Sons
Date Posted: 09 December 2008 at 8:53am
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awwww Chonni, that stinks, your poor wee girl! ------------- Mum to Mr 10, Mr 6 and Mr 4 
 
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Posted By: caraMel
Date Posted: 09 December 2008 at 10:19am
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to you guys!
It must be so heartbreaking and stressful for you. I hope the hospital can give you some solutions and she's all better soon! ------------- Mel, Mummy to E: 6, B: 4 and: 
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Posted By: Kellygirl
Date Posted: 09 December 2008 at 10:33am
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Atleast with her in the hospital she will be monitored so the Dr's can see what it is like over a longer period of time rather than just at appts.
Hopefully they can find some sort of solution for her or atleast make it managable for her and you. I know it is heartbreaking to see our little one's in pain but know that you are doing everything that you can for her. Give her lots of cuddles and kisses. |
Posted By: jack_&_charli
Date Posted: 09 December 2008 at 1:16pm
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i hope it's going well at the hospital chonni....... ------------- http://www.alternatickers.com">
http://lilypie.com">
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Posted By: Andie
Date Posted: 09 December 2008 at 3:52pm
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Far out, Chonni, that sounds awful for little Mila and for you, you poor things! I really hope they can find out what's causing it - can't be nice at all. Good luck with the hospital stay - let us know how you both doing in there. ------------- Andie |
Posted By: meow
Date Posted: 09 December 2008 at 8:37pm
 ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: jaymiegirl
Date Posted: 09 December 2008 at 11:06pm
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Massive hugs for you DD and your family!!!
------------- Mummy to Caide 08/01/2006 & Ruby 24/10/2008 http://www.babysfirstsite.com"> 
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Posted By: Gaelic Lass
Date Posted: 09 December 2008 at 11:20pm
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Ohhh Chonni, I am SO sorry to hear about your struggle with poor little Mila. Eczema is SUCH a horrible horrible thing...and it doesn't get the recognition from people that it deserves. It can make you so totally miserable!!! Your poor wee girl - thank goodness she is going into hospital so they can try and figure out what is going on. Huge hugs to you and your family. I have suffered from terrible eczema and asthma from before I was 1 yr old and have been hospitalised many times because of it. I am on oral and cream steriods all the time, and antiobiotics cos it always ends up getting infected. It is such an awful thing to get and is so hard to get any relief from itching etc. My Mum had to sew gloves and socks onto my PJ's so I wouldn't itch! My second born (5 mths) has ezcema. While you can't clear it up easily, there are a few things you can do to help a little. Let me know if you want some info etc. ------------- 
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Posted By: chonni
Date Posted: 13 December 2008 at 11:37pm
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thankyou everyone!!!!!
we are back from the hospital now they didint do any tests on her!!! they were pritty slack but they used tubifast wet wraps on her and steroids with lots of cream (all my cloths are wreckd haha) her eczemas looking realy good at the moment hopfully i can keep it under control now. we had to stay in the isolation room!! such a tinny lil room for us to stay in and i coildint leave her alone so i had to stay with her 24/7 unless someone was visiting i had a break. lol. -------------
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Posted By: Rackhell
Date Posted: 14 December 2008 at 1:57pm
| www.kumfycotton.co.nz does clothing specifically for kids with sensitive skin. We bought a top with closed mittens when cath was scratching at her head and it really seemed to help. They sell arm socks so maybe check out their website now that your daughters skin is a little better? |
Posted By: my4beauties
Date Posted: 14 December 2008 at 2:45pm
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Yeah I went to school with the girl who developed kumfycotton, and her son had severe eczema as well and she founded the business as she couldn't find any clothing that would be suitable for her son. She was on NZ Dragon's Den and they liked her business and invested with her. I'd say her products would be great! ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow">
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