Spina Bifida
Printed From: OHbaby!
Category: Pregnant
Forum Name: Pregnancy
Forum Description: Pregnant! Wanting to chat to other mums-to-be (or dads-to-be)? Share your thoughts, experiences, and ideas... This is that place!
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=25345
Printed Date: 17 August 2025 at 11:38pm Software Version: Web Wiz Forums 12.05 - http://www.webwizforums.com
Topic: Spina Bifida
Posted By: kebakat
Subject: Spina Bifida
Date Posted: 20 March 2009 at 9:58am
DH and I just found out that our bubs has spina bifida but we don't know how severe yet.
We know nothing about it and I don't want to google it because google is evil. Does anyone know anything about it or know anyone who has it? My MW must have someone in labour cause I can't get ahold of her to ask her
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Replies:
Posted By: JD
Date Posted: 20 March 2009 at 10:06am
Im sorry, that must have been frightening news to hear.
I don't have personal experience with it, but we do have friends to have a boy with it. They were given a very grave prognosis and encouraged to terminate the pregnancy. They repetidly refused the terminations and have gone on to have a delightful boy. He does have some urinry thing...a cathiter perhaps? and he walks funny...I think this is due to him having no feeling in his feet. They were told he would never walk amongst other things, but he has proved them wrong.
The medical profession tend to give you the worst case senario...I guess as a way to try and prepare you some-what.
From what I have read in your posts over the couple of years I have been a member on OB, you seem like you are a lovely couple who I am sure will rise to any challenge you are faced with.
All the best, and my thoughts are with you...
------------- http://lilypie.com">
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Posted By: CuriousG
Date Posted: 20 March 2009 at 10:16am
OMG Stacey. I really feel for you. I dont have any experience whatsoever with it but understand and agree with you about google.
I am sure there is some spina bifida support groups that you could get in contact with?
------------- http://lilypie.com">
http://lilypie.com">
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Posted By: blondy
Date Posted: 20 March 2009 at 10:30am
What a shock the news must have been for you I don't know anyone with it, but I do know it can vary from being very mild to severe, and the issues that come with it depend on where the problem is in the spine. Once you find out more details about your bubs, google might be of some help, but I agree stay away from it for the time being.  Hopefully you'll have some follow-up soon?
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Posted By: ginger
Date Posted: 20 March 2009 at 10:56am
That's scary news, but ditto what Blondy has said - there are degrees, and hopefully bubs has a mild form. Someone with a mild form can live a 99% unaffected life, and you'd never guess they had it. I'm thinking of you all!
------------- Cuinn Lachlan 23.1.09 - 22:00
Antonia Helene 4.8.11 - 09:41
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Posted By: Emmecat
Date Posted: 20 March 2009 at 11:00am
Stacey, big ((hugs)) as that must've been such a shock to hear.... good for you that you are straight onto researching what your bubs has though. Also, very good move not googling it! I also thought there was a range of severity with spina bifida; I would be inclined in the first instance to contact the SB foundation and get some info from them via phone or website. I'm sure there's tons' of support available. I hope your mw can get back to you ASAP hun so you can also get some answers from her too. 
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  http://lilypie.com" rel="nofollow">
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Posted By: Shezamumof3
Date Posted: 20 March 2009 at 11:17am
Oh stacey! Im so sorry hun. I dont know anything about it, but I just want to send you some hugs.
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Posted By: Rachael21
Date Posted: 20 March 2009 at 11:19am
I don't know anything either, I hope your midwife has some good info for you.
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Posted By: sally belly
Date Posted: 20 March 2009 at 11:22am
Sheza wrote:
Oh stacey! Im so sorry hun. I dont know anything about it, but I just want to send you some hugs. |
Ditto from me. Thinking of you & DH.
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Posted By: Mrs_B
Date Posted: 20 March 2009 at 11:38am
Stacey I'm sorry to hear that, it must be so scary for you. I work in NICU so can tell your a little bit about it. It is quite hard to explain so I have googled myself to find the right words.
Spina Bifida is complex condition involving the spinal cord, brain and meninges which is the protective covering around the brain and spinal cord. It has varying degrees of severity and the complications of spina bifida can range from minor physical problems to severe physical and mental disabilities. It is important to note, however, that most people with spina bifida are of normal intelligence. Severity is determined by the size and location of the malformation, whether or not skin covers it, whether or not spinal nerves protrude from it, and which spinal nerves are involved.
You have a scary upsetting few weeks ahead of you as you find out more about your little boys condition but I would encourage you to start researching now. You will be referred to a specialist team, that will do further scans to determine the severity of his condition and will then have councelling with a specialist team involving obstetricians, paediatricians and surgeons, where they will discuss the implications of his condition on both his and your lives. As JD mentioned you may be offered a medical termination if it is believed the condition is very severe, this is entirely you and your families decision and you should in no way feel pressured into it. No one will ever judge you. Just wanted to prepare you for that.
I have "screened" google for you and found a few appropriate websites for you to look at if you are ready for that.
http://www.neurological.org.nz/html/article.php?documentCode=6947 - Here and http://www.asbah.org/Spina+Bifida/informationsheets/whatisspinabifida.htm - Here
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Posted By: BaAsKa
Date Posted: 20 March 2009 at 11:39am
oh gosh! what scary news!.
My son has a girl in his class that has severe spina bifida, she is paraysed from the chest down but other than being in a wheelchair it doesnt seem to bother her! Shes super happy all the time!.
I knew someone a few years back (adult) who had a mild form and we wouldnt have known had she not told us!
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Posted By: febbabe
Date Posted: 20 March 2009 at 11:47am
Oh I'm sorry to hear that.
We were told at our 20week scan that we had a chance of Spina Bifida with our baby. Defiantly don't go google crazy as I did and it did me more harm than good.There are so many variations of Spina Bifida but you always assume the worst. I cried for 3 days until we had another scan.
Luckily our little one only has a little dimple in her back, she had an ultrasound when she was born and got the all clear. My Aunt and Uncle both have dimples so its obviously a family thing.
Hopefully its a mild form.
Take care of yourself
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Posted By: Mum2ET
Date Posted: 20 March 2009 at 11:49am
very sorry to hear this. I don't much about this, but I hope you find out some answers soon.
------------- Mum to
Ella (5) and Tom (2)
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Posted By: Katep
Date Posted: 20 March 2009 at 12:00pm
Sorry Stacey. I hope you can get some information about your bub soon. Thinking of you.
------------- http://lilypie.com">
Mum to the Gorgeous Leah!
7 months
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Posted By: surfergirl
Date Posted: 20 March 2009 at 12:06pm
I have nothing to add, other than load of hugs to all of your family, and I hope you hear from your midwife soon.
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Posted By: fire_engine
Date Posted: 20 March 2009 at 12:10pm
Stacey, I'm so sorry. It must have been a real shock and it's so hard when you have the diagnosis but little information. SB is very variable and until you've had more scans and tests, you won't know what the possible outcomes are. I hope you can get more scans and information soon.
------------- Mum to two wee boys
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Posted By: peachy
Date Posted: 20 March 2009 at 12:48pm
Stacey I have no advice/info, but I couldn't leave your thread without giving you a big big cyber hug
------------- http://lilypie.com"> http://lilypie.com">
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Posted By: MrsH23
Date Posted: 20 March 2009 at 12:53pm
Stacey, this must be a very difficult time for you and your DH. I'm sure you will be able to find out more info from a specialist and support groups.
When I was younger the girl next door had Spina Bifida, the only thing that made you realise that she had it was that she was in a wheelchair, although she sometimes used a walker thing or crutches. Although I have not had any contact with her in several years my Mum told me earlier this week that she will be turning 30 soon. She has always had a very positive outlook and her physical disability has never been an issue in how she lives her life.
------------- Lisa mummy to Ryan
http://www.alterna-tickers.com">
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Posted By: cuppatea
Date Posted: 20 March 2009 at 12:57pm
I have no info either but just wanted to give you a hug. Hope that your mw gets back to you soon so you can get some info.
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Posted By: sweetpea
Date Posted: 20 March 2009 at 1:34pm
Oh i am so sorry to hear that wishing you all the best and a great big
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Posted By: Two Blondinis
Date Posted: 20 March 2009 at 3:09pm
No matter how scary your news is I know you guys will still have a perfect little baby that you will love unconditionally no matter that course your lives may take.
Big hugs hun 
------------- http://lilypie.com">

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Posted By: mummy_becks
Date Posted: 20 March 2009 at 4:11pm
Yes Stace I do, I will try and get a hold of you to talkto you about her. I can tell you know she is still alive and is now 23, but has been in a wheelchair all her life.
------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived!
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Posted By: tishy
Date Posted: 20 March 2009 at 4:32pm
Two Blondinis wrote:
No matter how scary your news is I know you guys will still have a perfect little baby that you will love unconditionally no matter that course your lives may take.
Big hugs hun  |
ditto to this!
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Posted By: emz
Date Posted: 20 March 2009 at 4:46pm
Oh Stacey what a shock you have received! I'm so sorry that you have to go through this ordeal, but good idea not googling it
I went to school with a boy with SB, he was in a wheelchair (paralysed from the waist down) but was otherwise happy and healthy. My sister had a boy in her year with it too who was in a similar condition, I know that he has gone on to uni etc and other than being wheelchair-bound, you wouldn't know there was anything different about him.
Good luck for the next wee while as you get your head around things and hopefully by now you have talked to your m/w and she has pointed you in the right direction. Thinking of you
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Posted By: kebakat
Date Posted: 20 March 2009 at 4:48pm
Thanks for all the kind words
MW came and saw us just before and the report says that as well as the weird spinal thing going on there is also borderline abnormal fluid in the brain as well as club feet so it doesn't look that great. We have a follow up scan with an ob on monday though.
It's quite weird I wasn't excited about this scan like I was with Daniel. And DH and I have already decided that if its bad with mental retardation that we would terminate. I know not everyone would agree with that but we would see it as very unfair.
At least we are both ok. Kinda avoiding the emotional stuff until we have better information on monday.
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Posted By: minik8e
Date Posted: 20 March 2009 at 4:56pm
Posted By: mummyofprinces
Date Posted: 20 March 2009 at 5:10pm
Thoughts are with you and the family Stacey.
Big hugs.
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Posted By: sno0ze
Date Posted: 20 March 2009 at 5:28pm
I really sorry to hear this Stacey my thoughts are with you
------------- http://lilypie.com">
DD - 6yrs
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Posted By: katie1
Date Posted: 20 March 2009 at 5:58pm
Am so sorry to read this. Thinking of you heaps.
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Posted By: lizzle
Date Posted: 20 March 2009 at 6:01pm
hugs for you and DH Stacey, with whatever decision you come to. we are thinking of you guys.
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Posted By: SquishysMum
Date Posted: 20 March 2009 at 6:04pm
Stacey, DH and Daniel, I'm so sorry to hear this. It's just so insanely unfair.Thinking of you.
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Posted By: yummymummy
Date Posted: 20 March 2009 at 7:04pm
Big hugs.
------------- http://lilypie.com"> http://lilypie.com">
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Posted By: CuriousG
Date Posted: 20 March 2009 at 7:06pm
I think its fair to say that we are all behind you guys whatever the outcome and the decisions you make and that we are all thinking of you at this difficult time.
------------- http://lilypie.com">
http://lilypie.com">
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Posted By: pepsi
Date Posted: 20 March 2009 at 7:24pm
Ditto what everyone else has said
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Posted By: Bexee
Date Posted: 20 March 2009 at 7:39pm
Thinking of you and wishing we could do something.
Don't worry about what anyone thinks. You need to be comfortable with your decision and as long as you are, it's nobody elses business
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Posted By: peanut butter
Date Posted: 20 March 2009 at 8:00pm
Hey Stacey! Big hugs from us too. Hope you get more info soon. Hugs again!
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Posted By: Brenna
Date Posted: 20 March 2009 at 8:03pm
Hugs Stacey! Thinking of you and your family
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My beautiful 2 girls...nearly 4 and 13 months
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Posted By: BugTeeny
Date Posted: 20 March 2009 at 8:18pm
Great big hugs from me too
Good luck with it all. No matter how hard it is, you're making the best decision for you
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Posted By: ElfsMum
Date Posted: 20 March 2009 at 9:35pm
My thoughts are with you too..
------------- Mum to two amazing boys!
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Posted By: Shezamumof3
Date Posted: 20 March 2009 at 9:43pm
Big hugs Stacey
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Posted By: emz
Date Posted: 20 March 2009 at 10:02pm
Stacey whatever decision you make is right for you and your family, and noone could or should ever judge you for that.
We are all here for you and I for one just wish that this sort of thing didn't happen. You've been through enough already. Just letting you know I'm still thinking of you and hope you have a lot of support around you, Richard and Daniel at this hard time
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Posted By: Gardengirl
Date Posted: 20 March 2009 at 10:05pm
I just wanted to say how very sorry I am to hear this.
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Posted By: caitlynsmygirl
Date Posted: 20 March 2009 at 10:09pm
Oh Stace, ...I don't know what to say , im so sorry to hear this , its so unfair .
Huge hugs hun , wer'e all thinking of you
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Posted By: Glow
Date Posted: 20 March 2009 at 10:46pm
Sorry to hear Stace
Thinking of you & family at this time. Take care hun
------------- Mummy of Two Boys B: 2004 K: 2007
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Posted By: AandCsmum
Date Posted: 20 March 2009 at 11:00pm
Big Stacey.
Just to let you know we will all be thinking of you.
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: WestiesGirl
Date Posted: 20 March 2009 at 11:26pm
Oh Hun! Im so sorry to read your news My eyes are filling with tears just reading it all. My thoughts are with you and your family
And as everyone has said, we are here to support you no matter what your decision
------------- Our Angel July 08 Gone but not forgotten
And to complete our family, our princess has arrived
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Posted By: mollycat
Date Posted: 21 March 2009 at 7:10am
Huge Stacey. We're all here to support you through whatever decisions you have to make. 
------------- http://tickers.cafemom.com">
193
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Posted By: mylilmosaic
Date Posted: 21 March 2009 at 7:40am
Awww big Stacey. My heart sunk to read this thread, I will be thinking of you and your family as you go through this tough time.
------------- http://lilypie.com">
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Posted By: james
Date Posted: 21 March 2009 at 8:21am
aww big hugs
------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a>
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Posted By: SMoody
Date Posted: 21 March 2009 at 8:31am
First of all big hugs.
You and your partner are the only ones that can make the decisions regarding everything.
For some personal experience. I have Spina Bifida Occulta with a closed back. Loads of people have spina bifida with a closed back without every knowing their whole lifes until they get a back scan done.
I was born with a left clubfoot and that is how they picked it up. The Spina bifida resulted in the clubfoot. I had a few operations done. My left leg is slighly shorter than the right which puts me in bigger danger of back pain but so far not really much. I have some pain in my left foot now and then which is quite bad but then again I am so used to it that it doesnt affect me at all.
Intelligence wise: I was in the top of most of my classes, graduated at top and apparently my IQ is quite high.
Sport wise: I have South African colours in 3 different sports (all Martial Arts related). Came second in the world for Musical Patterns.
It really depends on the diagnosis. My Parents had scans done but it never was picked up as such. I was at a higher risk to have kids with this but so far it seems okay. Just had to take extra folic acid compare to others.
Listen to what the specialists say and go according to that. There is such a wide variety of people out there with this that you need to find out where you sit on the scale of this first.
And I think anyone that is ready to judge you for the decision that you are faced with really dont know what they will do faced with the same decisions and kids in the family already that will also be affected by this.
Sending you some strength in this difficult time.
------------- http://lilypie.com">
http://lilypie.com">
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Posted By: BusyMum2three
Date Posted: 21 March 2009 at 10:53am
Oh Stacey, I am so sorry to hear your news. I wish there was something I could do to help you. I wish you strength in the days ahead, and I hope get the answers you need on Monday.
We are here to support you no matter what....
xxoo
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Posted By: jules0403
Date Posted: 21 March 2009 at 2:38pm
Stacey, I have a friend who's son has Spina Bifida. If you want to chat and find out from a parents perspective I am sure i could ask her if you can contact her. Let me know and I will pm her number to you.
Big hugs and I am so sorry for the difficult time you are going through!
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Posted By: gannet
Date Posted: 21 March 2009 at 5:12pm
Posted By: MissCandice
Date Posted: 21 March 2009 at 5:46pm
Awwww big hugs to you and your family! It must be sooo hard for you. I hope your future becomes clearer after your scan on Monday.
------------- ~ Mummy to a beautiful girl ~
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Posted By: Aquarius
Date Posted: 21 March 2009 at 7:14pm
stacey....
sorry to read your news
was wondering where you had got to on our august thread....and im sure all of us on there will be thinking of you just that little bit more.
i do remember you saying that you weren't excited about your scan...you seem to have had abit of an instinct something wasnt quite right...
whatever you decide will be the right thing im sure
xx
------------- http://www.magicalkingdoms.com/timers/">
mum to mr 16 & mr 10
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Posted By: paulainauckland
Date Posted: 21 March 2009 at 7:21pm
Stacey, thinking of you all and wishing you all the best. I hope that the outcome isn't the worst.
------------- http://lilypie.com">
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Posted By: Leish
Date Posted: 21 March 2009 at 7:39pm
Huge hugs Stacey. Thinking of you and your family
------------- http://lilypie.com"> http://lilypie.com">
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Posted By: hailstones
Date Posted: 21 March 2009 at 7:57pm
So Sorry to hear your news. Big Hugs
------------- http://lilypie.com"> http://lilypie.com">
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Posted By: Shellis
Date Posted: 21 March 2009 at 9:19pm
Oh Stacey, I am so sorry hon
DH and I ,with both Paige and this one, had decided if there was retardation we would terminate too so don't be too hard on yourselves if this ends up being your decision. You have to think of the quality of life of not only the baby but you, DH and Daniel.
Luvs and hugs
Shellis
http://lilypie.com">
http://lilypie.com">
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Posted By: Emmecat
Date Posted: 21 March 2009 at 9:35pm
Thinking of you and your family at this time. Make whatever decision you guys feel is right, you have tons of support here . x x x
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Posted By: jack_&_charli
Date Posted: 21 March 2009 at 10:51pm
awww hun!!! i'm so sorry to hear your news
as the other ladies have said, we are all here to support you no matter what you decide. it's a heartbreaking situation to be in and no one can honestly say what they would do until they are there themselves...will be thinking of you, especially monday
love and hugs to you and DH
------------- http://www.alternatickers.com">
http://lilypie.com">
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Posted By: queenbean
Date Posted: 21 March 2009 at 11:20pm
Oh Stacey hun, I've only just seen this post now. Having been in the exact same predicament as you 16 months ago, I really understand what you and your husband are going through. Please PM me for any reason if you need to.
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Posted By: Redbedrock
Date Posted: 22 March 2009 at 9:32am
Stacey you always come accross as such a strong woman on these forums, so I know you have the strength and fortitude to come out the other side of this, one way or the other.
Love to you and yours and thinking of you all
claire
------------- http://www.babysfirstsite.com">
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Posted By: Lexidore
Date Posted: 22 March 2009 at 11:49am
Stacey i just wanted to say im so sorry to hear your news i understand this must be a heartbreaking emotional time for you right now and i send you all the support and strength i can to help you through this time. Thinking of you and your family and wish you all the best with everything. Big hugs to you!
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Posted By: Bobbie
Date Posted: 22 March 2009 at 12:44pm
Stacey. Whatever decision you make is going to be the best for your family and we'll all support it. What a horrible decision to be faced with though
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Posted By: Spicy Chick
Date Posted: 22 March 2009 at 6:22pm
Stacey, I'm so sorry to hear your news. Big hugs...
------------- 1st baby!

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Posted By: IVFGirl1111
Date Posted: 23 March 2009 at 8:47am
Stace so sorry to hear this thinking of you guys
------------- TTC 6 years IVF it is IVF/ICSI round one 10 eggs, 8 mature, 3 fertilised BFN IVF/ICSI #2 = 22 eggs! 20 mature, 15 fertilised, 1 fresh transfer and 2 frosties BFN 2 Frosties still in freezer thank god
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Posted By: BugTeeny
Date Posted: 23 March 2009 at 8:57am
Good luck with the specialist today Stacey.
Thinking of you
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Posted By: T_Rex
Date Posted: 23 March 2009 at 9:01am
Thinking of you today Stacey. I hope the specialist gives you a clearer idea of what you are facing.
------------- http://lilypie.com"> http://lilypie.com">
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Posted By: goldy
Date Posted: 23 March 2009 at 9:26am
Sending good thoughts your way today Stacey.
------------- http://lilypie.com">
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Posted By: LeeG
Date Posted: 23 March 2009 at 10:06am
Hey Stacey, good luck with the specialists today - I hope you get some more answers, remember that we are all here to support you whatever the outcome
------------- http://lilypie.com">
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Posted By: BusyMum2three
Date Posted: 23 March 2009 at 10:19am
Posted By: Chickaboo
Date Posted: 23 March 2009 at 10:31am
Stacey - how I missed this before this I don;t know..
I guess its one of the thing we don;t want to hear at your 20 week scan...Its Suxs .... thinking of you at this time as you have a few very hard decisions ahead of you.
But what ever it is they are for you and your DH to make no one else...
Hugs cause I think you can;t get enough hugs at a time like this.
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http://lilypie.com">
876
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Posted By: my4beauties
Date Posted: 23 March 2009 at 10:59am
Aww Stacey so sorry to hear bubs has this. I hope you get some positive answers at the specialist today.
we are here for you.
------------- My babies:
R (9),G (7), J (5)
http://lilypie.com" rel="nofollow">
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Posted By: kat_hutch
Date Posted: 23 March 2009 at 11:10am
thinking of you today stace.
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http://lilypie.com">
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Posted By: mel_01
Date Posted: 23 March 2009 at 11:48am
sori to hear about this news. Good luck for today
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Posted By: caitlynsmygirl
Date Posted: 23 March 2009 at 12:30pm
*hugs * stace (and family ) thinking of you today
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Posted By: mummy_becks
Date Posted: 23 March 2009 at 12:40pm
Just to let you all know I haven't heard from Stace yet today. I am going to give her a call soon and see how things are. Will let you know when I know something.
------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived!
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Posted By: susieq
Date Posted: 23 March 2009 at 2:04pm
I am thinking of you today too Stacey
------------- susie
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Posted By: AsliC
Date Posted: 23 March 2009 at 2:43pm
Thinking of you Stacey. We are here for you
------------- Asli
http://lilypie.com">
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Posted By: kebakat
Date Posted: 23 March 2009 at 3:17pm
Short story is that we are terminating.
Long story is that we eventually saw the doc, he was very nice to us and apologised for being late and confirmed the diagnosis of spina bifida. He has a 2cm long problem on his spine and that is causing the spinal column to pull down from his brain. What has f**ked me off about this appointment is that he didn't want to tell us or give any indication of the chances of mental and physical problems. He was very happy to show and explain the things he was seeing but not tell us the effects of the problems. I know its a very varied problem but the whole point of the appointment was to get infomation. His brain shape is odd. The fluid around the brain is well within the normal range (which I find odd since the friday scan said it was marginal) but instead of having a round shaped head his head is more shaped like a lemon and the cerebelum I think instead of being a dumbbell shape is like a banana. Doc wants us to be referred to wellys to a specialist team but me and DH both want to terminate so we sort of don't want to do the wellys thing. It's such a damned if we do, damned if we don't thing. The only thing that makes me hesitate about a termination is the actual proceedure.. going through labour again for nothing. I never thought that I'd think about an epidural and think I want that!
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Posted By: Rachael21
Date Posted: 23 March 2009 at 3:23pm
Posted By: Peanut
Date Posted: 23 March 2009 at 3:28pm
Stacey, I am sorry this happened to you and that you didn't get the answers you need from the specialist. I hope you get all the support you need over the next few weeks which no doubt will be the most difficult time for you.
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Posted By: sweetpea
Date Posted: 23 March 2009 at 3:30pm
oh i'm a so sorry stacey we are all here for you and your family. Make the best decision for you and your family and who cares what everyone else thinks.
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Posted By: kat_hutch
Date Posted: 23 March 2009 at 3:35pm
stacey i'm so sorry this happened to you. let me no if you need anything.
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Posted By: CuriousG
Date Posted: 23 March 2009 at 3:35pm
I am so sorry to hear your new Stacey. My heart goes out to you and your family at this really difficult time.
As for the epidural, do whatever makes you comfortable. There is no harm in wanting one at all.
Hugs x x
------------- http://lilypie.com">
http://lilypie.com">
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Posted By: susieq
Date Posted: 23 March 2009 at 3:41pm
Big hugs Stacey and bit hugs to your family too
------------- susie
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Posted By: my4beauties
Date Posted: 23 March 2009 at 3:43pm
Huge hugs Stacey!!!! I'm so sorry you and your family have to go through this!
------------- My babies:
R (9),G (7), J (5)
http://lilypie.com" rel="nofollow">
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Posted By: Emmecat
Date Posted: 23 March 2009 at 3:45pm
Posted By: emz
Date Posted: 23 March 2009 at 3:52pm
Oh Stacey, I really have no words that can express my sympathy that you're having to go through this, and also that you didn't get the answers you were wanting at the appointment.
As for the epidural, from my experience it made labour feel like not labouring at all, so in your case it might be a good idea as you wouldn't have to feel everything going on etc. I can definitely understand why you're thinking like that.
My thoughts are with you and your family hun
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Posted By: Glow
Date Posted: 23 March 2009 at 3:54pm
------------- Mummy of Two Boys B: 2004 K: 2007
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Posted By: Chickaboo
Date Posted: 23 March 2009 at 4:23pm
Stacey first of all at a time like this THANK YOU for coming and letting us know how you got on.
Next thinking more of you now and the decision you have made is the right one for your family. what a pain that the doc would not say what the problems he has would cause.
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http://lilypie.com">
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Posted By: Two Blondinis
Date Posted: 23 March 2009 at 4:32pm
Stacey I think you are so brave and strong, many would crumble under this tragic news.
If an epidural takes away the physical pain, I'd say go for it as you will have enough emotional pain to deal with.
My heart goes out to you and your family at this very sad time 
------------- http://lilypie.com">

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Posted By: BugTeeny
Date Posted: 23 March 2009 at 4:38pm
I can't say anything more than what's already been said.
My heart goes out to you and your family. I can't begin to imagine how hard this must be for you.
I've always thought your DH sounds like a total rock, so I'm glad you have him to help you through (and vice versa!).
You'll be in my thoughts
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Posted By: Shezamumof3
Date Posted: 23 March 2009 at 4:46pm
Oh stacey, Im so sorry hun
Along with with what every one else has said, my heart also goes out to you and your family.
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Posted By: T_Rex
Date Posted: 23 March 2009 at 5:04pm
My thoughts are with you and DH.
And grrr at the specialist! I'm so sorry you didn't get helpful information from him!
------------- http://lilypie.com"> http://lilypie.com">
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Posted By: Bobbie
Date Posted: 23 March 2009 at 5:07pm
and more
Nothing to say that would really cover it except I wish there was a sad faced hug emoticon.
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Posted By: Snappy
Date Posted: 23 March 2009 at 5:15pm
Im so sorry, I really dont know what to say.
I know Queenbean on here has been through the same thing, she maybe able to give you some advice. My heart goes out to you and your wee family.
------------- Mummy to two beauties... Formerly Kaiz.
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Posted By: mummy_becks
Date Posted: 23 March 2009 at 5:31pm
Stace as I said on the phone I will be there for you whenever you need me to be there, just let me know.
------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived!
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Posted By: Bexee
Date Posted: 23 March 2009 at 5:55pm
Just to let you know, thoughts are with you. Life can be incredibly unfair sometimes.
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