Greer Update
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Category: General Chat
Forum Name: General Chat
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URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=26749
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Topic: Greer Update
Posted By: aimeejoy
Subject: Greer Update
Date Posted: 25 May 2009 at 8:42pm
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The other thread was getting a bit long...
Got MRI preliminary results today - there was nothing major left, just a layer that is right next to the spinal cord, which is what they were expecting. They think they got 90 something percent of it. Now we need to talk to the oncologist and decide when to start chemo, which will happen here at Starship, not Wellington. If we get a wee break before chemo, we might get home for a bit which would be great. She is doing really well from a surgical point of view, other than a few feeding issues (vomiting up her nasogastric feeds and no interest in taking bottle). Main thing now is lots of physio cos she is very floppy and needs to relearn how to hold her up, sit, possibly walk etc... But all in all, going pretty well at the moment  ------------- Aimee Hannah 22/10/05 Greer 11/02/08 |
Replies:
Posted By: Babe
Date Posted: 25 May 2009 at 8:58pm
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Hey Aimee glad to hear Greer is holding up ok. Sorry they didn't get all the tumour but glad things are looking hopeful
Hugs to you all  our prayers are still with you and Greer as you face the next step!-------------   
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Posted By: Bobbie
Date Posted: 25 May 2009 at 9:26pm
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That sounds pretty positive. I hope you guys do get a chance to go back home before starting the chemo. -------------  
 
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Posted By: fire_engine
Date Posted: 25 May 2009 at 10:02pm
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Aimee, fantastic that they got most of it and that the surgery went as well as it could. I really hope you can have some great time together as a family before the chemo starts. Fingers crossed for an events-free trip home. ------------- Mum to two wee boys |
Posted By: missy_girl
Date Posted: 25 May 2009 at 10:52pm
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Thanks for the update, I'm please the surgery has gone well.
I hope you get a chance to head back home before chemo. Always in my thoughts, Michelle ------------- Michelle http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: mummy_becks
Date Posted: 25 May 2009 at 10:53pm
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That is great news. Let me know if you do head home before the weekend. ------------- I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived! |
Posted By: ellen
Date Posted: 26 May 2009 at 6:33am
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Have been following your journey and couldn't read and run. Just wanted to let you know about a National Travel Assistance Fund through the Ministry of Health where you can get help with travel and accommodation costs. Would be worth checking out if you don't already know about it. We recently used it but no-one told us about it.
All the best for Greer's recovery. You sound like a very strong mum - it can't be easy watching your baby go through these procedures. |
Posted By: lizzle
Date Posted: 26 May 2009 at 8:28am
| sounds great! hope you guys do get home for a break - can't be easy for the family. how is Hannah? thanks for the updates too. Hey, if you get a chance, flick me your address - i have a parcel here, but not sure if you are at ronald mcdonald house or not. |
Posted By: BugTeeny
Date Posted: 26 May 2009 at 8:47am
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Aimee, that's great news
I hope you can all get home for a time before starting chemo. It's all sounding really positive though. I'm keeping you guys in my thoughts ------------- 
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Posted By: peanut butter
Date Posted: 26 May 2009 at 9:04am
| Fantastic news! SHe will amaze you with how quickly she bounces back.....adults wouldnt but kids do it just like that. |
Posted By: EmDee
Date Posted: 26 May 2009 at 10:13am
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Great news! I really hope you get to spend some time at home as a family before the chemo starts ------------- DS 8 DD 6 DS 4 DD 2 |
Posted By: My3Sons
Date Posted: 26 May 2009 at 10:52am
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Yay Aimee that all sounds really positive, what an amazing little fighter your wee girl is!! ------------- Mum to Mr 10, Mr 6 and Mr 4 
 
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Posted By: my2angels
Date Posted: 26 May 2009 at 11:30am
| Yay Greer, what a brave wee girl you are. Hope chemo goes as well as it can and you are home with your family as soon as possible. |
Posted By: jack_&_charli
Date Posted: 26 May 2009 at 11:37am
go greer!! WOOT WOOT!!! thanks so much for keeping us in the loop! 
sounds like she's doing really well and that's awesome! all the best for getting some home time in before chemo starts ------------- http://www.alternatickers.com"> 
http://lilypie.com"> 
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Posted By: MrsMojo
Date Posted: 26 May 2009 at 11:39am
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Great news Aimee. It must be such a relief that they managed to get so much. I hope you all get a rest before the chemo starts. Good luck, you're continually in my thoughts and prayers. -------------  
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Posted By: kiwisj
Date Posted: 26 May 2009 at 12:13pm
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Thanks for the update Aimee. Good to hear the op went well and that things are positive. I hope you get to have some time at home before chemo starts. Go Greer! ------------- SJ Callum - Dec 2008 Daniel - Oct 2010 |
Posted By: Glow
Date Posted: 26 May 2009 at 1:56pm
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Thats great Aimee, Im pleased. Thanks for the update
Always thinking of you, Greer & your family
Keep strong ------------- Mummy of Two Boys B: 2004 K: 2007 |
Posted By: cuppatea
Date Posted: 26 May 2009 at 8:41pm
That's awesome news
Thinking of you guys and hoping the next stage of her recovery goes well ------------- 
 
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Posted By: Rachael21
Date Posted: 26 May 2009 at 9:27pm
| Thats great Aimee, thanks for updating us. Thinking of you guys a lot xoxo |
Posted By: aimeejoy
Date Posted: 26 May 2009 at 9:43pm
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Thanks everyone
Just wanted to mention how fantastic the National Travel Assistance Scheme is.... Daniel has gone home today to work so we actually have some money! But he gets a return flight per week paid for by this scheme, and all he has to do is ring up the co-ordinator and she books the flight he wants. Its great cos it means he can go back home and work 4 or 5 days, and then fly up here for the weekend. I would get very lonely otherwise The social workers have been great about getting it sorted for us.
And I have managed to find a positive in having to do chemo - we will get to stay on the brand new oncology ward that opened here less than 2 weeks ago. Apparently its very flash! ------------- Aimee Hannah 22/10/05 Greer 11/02/08 |
Posted By: Daizy
Date Posted: 26 May 2009 at 9:51pm
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Thats awesome. Glad to see you finding positives in amongst it all.
You have a real wee fighter there. Wishing you all the best! ------------- 
 
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Posted By: my4beauties
Date Posted: 27 May 2009 at 10:35am
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Thanks so much aimee on the update of Greer, have been thinking of you guys lots, sounds like things are very positive for her. And what a great scheme the NTA is - must be a bit of a relief to have that! How is Hannah holding up through all this? love and hugs to you guys xox ------------- My babies: R (9),G (7), J (5) http://lilypie.com" rel="nofollow"> 
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Posted By: mum2emj
Date Posted: 28 May 2009 at 3:56pm
wow! i havent been on for sooooooo long, i didnt even know  
i need to go do some catch up reading i think. |
Posted By: aimeejoy
Date Posted: 29 May 2009 at 9:26pm
New update! Saw oncologist today. Plan is to start chemo in 3 weeks, up here at Starship. Treatment lasts about 18 months, all going well. Initially we will spend 3 days in Auckland every three weeks, and the in between weeks will be a day patient at Palmy Hospital. This is for the first 3 months, then our Auck visits spread out to 4 weekly for 3 months. Then for the next year, its up here every 6 weeks! Me and Greer and going to get very used to flying!! 
She is still vomiting regularly with the naso-gastric feeding tube, which is the only thing still holding us here. Tomorrow they are going to put the tube down further beyond the stomach which should help. Then once she is having bottles and eating again we can go home!! Its been over 5 weeks already... I am excited though, as I get to go and have a haircut tomorrow thanks to Child Cancer Foundation - need to get rid of those stress induced greys!  ------------- Aimee Hannah 22/10/05 Greer 11/02/08 |
Posted By: BugTeeny
Date Posted: 29 May 2009 at 9:37pm
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While it'll be a long road, it sounds really really positive!
Man, I hope you're an Airpoints member!
Enjoy your haircut tomorrow. I hope the hairdresser gives you an extra long scalp massage mmmmmmm -------------
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Posted By: Freesia
Date Posted: 29 May 2009 at 11:10pm
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Wow, I didn't realise treatments went for so long. It must be a bit of a relief to have it all planned out and to know exactly what's happening though.
Fingers crossed the feeding issue can be sorted soon so you can all go home. -------------  
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Posted By: Chickoin
Date Posted: 30 May 2009 at 12:03am
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Wow that does sound like a long time, but it will be nothing compared to having a happy healthy little girl
Yay for a haircut! -------------   
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Posted By: pepsi
Date Posted: 30 May 2009 at 9:09am
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Yay for having a plan of attack!
And I have to say, I love how positive you are about everything, it will surely make all the difference
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Posted By: aimeejoy
Date Posted: 30 May 2009 at 10:47am
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Pepsi, I drive myself crazy if I get in the dumps about it all, so its just easier to stay positive! I said to someone the other day that I am waiting to have a big meltdown one day when I stop trying to stay positive all the time... But I think its what we all would do in this situation, self-preservation! ------------- Aimee Hannah 22/10/05 Greer 11/02/08 |
Posted By: KH25
Date Posted: 30 May 2009 at 12:00pm
Aimee, I'm so glad things are going reasonably well for you guys! Greer is a  ! And you are totally right about self-preservation - I often think back to Ashleigh's first few months in hospital and wonder how the hell I coped without falling apart. But you just get on with things and cope because...well, you kinda have to lol!! Good on you for staying strong and being such a good mum. I'm sure Greer wouldn't be doing half as well as she is if she didn't have such a great mum! Enjoy your haircut today ------------- Kelly, mum to DD, 19Jun06 (26wks 1lb15oz) DS1, 24Oct10 (32wks 4lb11oz) and DS2, 31Dec11 (32wks, 4lb11) http://lilypie.com"> 
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Posted By: Bubbaloo
Date Posted: 30 May 2009 at 6:54pm
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Yay Aimee it all is sounding very poostive and what a trooper Greer is big hugs to you and your family. ------------- http://lilypie.com" rel="nofollow">  Was danni-chick Mum to James My Angel 28/07/08 |
Posted By: kabe
Date Posted: 30 May 2009 at 7:59pm
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Big hugs to you all. I so admire your strength. ------------- http://alterna-tickers.com"> 
http://lilypie.com"> 
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Posted By: LittleBug
Date Posted: 01 June 2009 at 12:08pm
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------------- Chloe (4 years) and Oliver (3 years). |