Jackson is tube free!
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Forum Name: General Chat
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Topic: Jackson is tube free!
Posted By: KiwiL
Subject: Jackson is tube free!
Date Posted: 07 August 2009 at 5:15pm
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Oh my god I am sh*tting myself!
Jackson pulled his tube today, so we decided to start early with the weaning and not replace it. At the same time, the paediatricians have told me to stop concentrating his formula, and stop adding extra calories with the additive we've been using. I feel like all our safety nets have been removed at once! His weight is going to plummet, but hopefully his body will start to realise that he needs to eat. That's the theory, but will it work? I am so, so scared that he won't eat. Terrified doesn't even come close to describing how I feel. I need everyone's thoughts/prayers/wishes - you name it I'll take it. It's going to be a rocky few days.... weeks?... until we know which way things are going to go. Oh my. |
Replies:
Posted By: noodle
Date Posted: 07 August 2009 at 5:18pm
wow! sending you lots of 'eat Jackson' vibes and lots of hugs and good wishes that it all works out fine!!  keep us updated on his progress! good luck chick!! ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: kebakat
Date Posted: 07 August 2009 at 5:19pm
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Good luck!
Easier said than done but try and be positive, Jackson will feed off that too
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Posted By: catisla
Date Posted: 07 August 2009 at 5:28pm
thinking of you Laurie - 
Eat wee Jackson, eat! ------------- |
Posted By: Parki
Date Posted: 07 August 2009 at 5:29pm
Wishing you all the luck in the world!
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Posted By: susieq
Date Posted: 07 August 2009 at 5:32pm
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Good luck and hugs from me too and Eat wee Jackson and will say prayers too ------------- susie |
Posted By: BugTeeny
Date Posted: 07 August 2009 at 5:35pm
Wow! Huge day for you! 
It's going to be the start of good things for you, Im sure of it 
Go Jackson! ------------- 
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Posted By: Lexidore
Date Posted: 07 August 2009 at 5:36pm
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Good luck!! hope it all goes well hun! ------------- 
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Posted By: Henna79
Date Posted: 07 August 2009 at 5:38pm
| good luck Laurie!! |
Posted By: NikkiB
Date Posted: 07 August 2009 at 5:48pm
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Eat Jackson eat!
I'll be watching this closely, as my little guy is also fully tube feed. Best of luck!!!! ------------- A very lucky mummy to two gorgeous boys: RB 3/10/2008 JB 29/12/2009 |
Posted By: KiwiL
Date Posted: 07 August 2009 at 5:51pm
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Thanks for the replies guys. Scared, scared, scared!!
NikkiB, have you become a member of the Tube Fed Kids forum? I have met the most amazing, supportive bunch of women who completely understand what I am going through. I might be falling apart right now if it weren't for them. The focus is getting the kids off the tubes, but there are a number of women still tube feeding as well. The website is: http://tubefedkids.ning.com/ - here |
Posted By: FreeSpirit
Date Posted: 07 August 2009 at 6:18pm
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EAT JACKSON EAT!!
Good luck and happy vibes coming your way, Laurie be strong, my thoughts and prayers are with you. ------------- http://www.babysfirstsite.com"> 
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Posted By: flakesitchyfeet
Date Posted: 07 August 2009 at 6:40pm
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Eat Jackson! Eat!
We'll send a wee echo around the country and who knows? Lol
Best of luck, thoughts and prayers are with you, I hope it's a smooth ride. -------------  http://lilypie.com"> |
Posted By: tropics
Date Posted: 07 August 2009 at 7:13pm
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Thinking of you hun xoxo
Jackson EAT! ------------- http://lilypie.com">    [/url]
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Posted By: Maya
Date Posted: 07 August 2009 at 7:30pm
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Woohoo, yay Jackson (and Laurie!) Eat boy, eat! -------------  Maya Grace (28/02/03)
 (02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: jaycee
Date Posted: 07 August 2009 at 7:42pm
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YOU CAN DO IT JACKSON!!
And huge 's to your Mummy who has had a tough 10 months and really deserves a good patch for the next 18 years or so -------------   
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Posted By: LeahandJoel
Date Posted: 07 August 2009 at 7:58pm
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Cmon Jackson....your a big boy now!! -------------  
 
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Posted By: FionaO
Date Posted: 07 August 2009 at 8:22pm
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Massive hugs to you both!!!!!!!!!!!!!! Go Jackson you can do it!!!!!! |
Posted By: kiwisj
Date Posted: 07 August 2009 at 8:29pm
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GO JACKSON!!!!!!!!! You can do it!
Best of luck Laurie, will be sending loads of positive vibes your way ------------- SJ Callum - Dec 2008 Daniel - Oct 2010 |
Posted By: KiwiL
Date Posted: 07 August 2009 at 11:12pm
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Thanks for all the support guys! Jackson has eaten awfully this afternoon, but apparently the first few days is the worst of all.
I may be on here crying for the next week. Put up with me please! 
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Posted By: Bizzy
Date Posted: 07 August 2009 at 11:16pm
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he will lose weight! just like a newborn... so no point in getting upset when he does lose it and it wont be a step backwards! He will be fine, and so long as you try and not show how worried and stressed you are about it to him he wont pick up on it and it WILL come right in the end.
hang in there! ------------- http://www.myfitnesspal.com/weight-loss-ticker"> 
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Posted By: cuppatea
Date Posted: 08 August 2009 at 7:05am
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Good luck, lots of eating vibes coming your way ------------- 
 
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Posted By: Snappy
Date Posted: 08 August 2009 at 7:48am
| Best of luck Laurie, hang in there! |
Posted By: Huggles
Date Posted: 08 August 2009 at 8:56am
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you can do it Jackson.. e good to mummy and eat!
Good Luck Laurie x |
Posted By: AandCsmum
Date Posted: 08 August 2009 at 8:59am
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Sending you eating vibes as well
------------- Kel http://lilypie.com"> 
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: ISpyCharlie
Date Posted: 08 August 2009 at 9:19am
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*** sending you big vibes with lots of eating involved*** You can do it Jackson and Mum! x ------------- http://lilypie.com">  
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Posted By: KiwiL
Date Posted: 10 August 2009 at 12:42pm
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Oh God, I am having the hardest time. Jackson is eating barely anything. I can't understand why he isn't starving!!
I think at the moment he is JUST keeping himself hydrated and nothing more. Oh, please let this get better soon. It's really, really tough. |
Posted By: susieq
Date Posted: 10 August 2009 at 1:04pm
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Hugs to you, come on wee Jackson eat,
------------- susie |
Posted By: Bizzy
Date Posted: 10 August 2009 at 1:08pm
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please please hang in there.... he probably wont eat much to start with, it will take a while for his body to realise he isnt getting the sustenance the way he used to... and there are are lots of kids his age out there who just arent big eaters anyway... i'm pretty sure that at that age emmas twins still ate bugger all! and now!!!
its hard not to worry but try..and if he doesnt want to eat just let him play with his food anyway. it will all help in the end. just remember he will lose weight! but only to start with! ------------- http://www.myfitnesspal.com/weight-loss-ticker">
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Posted By: FreeSpirit
Date Posted: 10 August 2009 at 5:59pm
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Big Hugs Laurie, you're doing so well!!
Have you tried a different sippy/ straw cup to see if the novelty factor makes a difference? (I realise this may be a stupid question as you've probably tried everything but the only way my daughter will drink much is from her straw cup). It may take a few more days before he eats well, be strong!!! ------------- http://www.babysfirstsite.com">
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Posted By: lisa85
Date Posted: 10 August 2009 at 6:40pm
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He will get there chic, just keep thinking those happy thoughts. Our prayers are with you and Jackson. I'm sure he'll be wolfing down meals before you know it. Just keep strong for him -------------  
TTC #3 since Jan 2010 - PCOS MC April 2010 |
Posted By: NikkiB
Date Posted: 10 August 2009 at 6:45pm
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Eat Jackson Eat!!!
Thanks for the link Laurie, I'll check it out now ------------- A very lucky mummy to two gorgeous boys: RB 3/10/2008 JB 29/12/2009 |
Posted By: clover
Date Posted: 11 August 2009 at 9:20am
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Come on Jackson, eat little fella - you don't know what your missing! ------------- http://lilypie.com"> 
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Posted By: sally belly
Date Posted: 12 August 2009 at 9:04am
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How are things going now Laurie?
Thinking of you -------------    
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Posted By: Muz
Date Posted: 12 August 2009 at 9:33am
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Hope you are doing OK - it sounds very tough, but you are doing an awesome job. ------------- http://lilypie.com"> 
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Posted By: KiwiL
Date Posted: 12 August 2009 at 10:14am
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Thanks for the support guys. It is really hard. We had an ok day yesterday after a shocker the day before, but this morning has been pretty hard again.
It's so hard to not be in control and know that your baby is just not interested. But I have to be brave. Bizzy, your comments are very encouraging. You sound like you know a bit about tube weaning... or are you just really sensible? ;-) |
Posted By: Bizzy
Date Posted: 12 August 2009 at 10:30am
 thanks, dont know when the last time i was called sensible was!
i think it is just that feeding babies is something i am passionate about, giving them the chance to explore food and go at their own pace. and it is something that so many mothers have problems with too. probably why i found baby-led weaning so great. just hang in there! the more he sees you being normal about food and it being available to him the better for him. (that isnt to say tho that you wont get the refusal to eat dinner that is common in my house. even the word dinner seems to put them off, little ratbags). ------------- http://www.myfitnesspal.com/weight-loss-ticker">
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kiwilaurie wrote:Posted By: first
Date Posted: 12 August 2009 at 10:33am
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Glad to hear you had a good day yesterday. He will get there and just think about the grief you'll be able to give him when he's a teenager and trying to eat you out of house and home!
You are doing a fantastic job with him. ------------- http://lilypie.com"> 
http://pregnancy.baby-gaga.com/"> 
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Posted By: Bizzy
Date Posted: 12 August 2009 at 10:36am
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oh and was thinking too, if you are worried about his weight have you got a list of high calorie (or fat gaining) foods that would be good for him to have. some fun things might be avocado, nice and squishy and good for you too, ice cream, lots of exploring possibilities there... oh and one thing that i was always surprised my kids liked was garlic bread. i remember being shocked that my BIL gave gabriel garlic bread when he was quite young, i thought it would be too strong but all the kids have loved it. ------------- http://www.myfitnesspal.com/weight-loss-ticker">
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Posted By: KiwiL
Date Posted: 12 August 2009 at 12:39pm
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Thanks. Jackson won't open his mouth for any food I offer, so anything mashed or pureed is out of the question. He's gone backward SO much since the tube in that respect.
We're offering JUST finger food to him, but he will only put it in his mouth if it is miniscule. So, it takes him half an hour to eat 10 kernals of corn. I just don't know how we'll get to a stage where he is eating enough to survive (and eating enough to get rid of the much hated bottle). He still is tremendously gaggy, and doesn't move the food to the back of the mouth to swallow. Any tips for overcoming this? Or is it all just about practice? |
Posted By: sally belly
Date Posted: 12 August 2009 at 1:25pm
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I would think that it is all about practice, but I am no expert.
I haven't entirely followed your journey but I'm sure you've taken Jackson to all the doctors you can to rule out anything physically wrong with his swallowing mechanism? -------------
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Posted By: kebakat
Date Posted: 12 August 2009 at 1:49pm
| Have you tried getting a jar of food that he used to eat/semi like and just tipping it out on the high chair tray and leaving him to it? That was how we got Daniel interested in food, he would suck on his fingers which had apple or pear etc all over them. He loved just making a big mess, but the point was some went down |
Posted By: SophiasMummy
Date Posted: 12 August 2009 at 1:50pm
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Laurie I have just discovered that Sophia loves scrambled eggs, if you don't stir them heaps they are kinda lumpy, I put some of the 'lumps' on her tray to pick up and she likes that. If you haven't tried that you could, they really don't need any chewing. Otherwise make omelette and cut that up.
You are doing a great job, I think of you guys all the time and hope you are okay. We still have a wee girl here who is not fond of her bottle! ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: Bizzy
Date Posted: 12 August 2009 at 2:34pm
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oh i didnt mean to spoon feed it to him... i am all for finger food or letting them help themselves... stacey's idea of tipping a jar of baby food on his tray is a good one too... and maybe give him a spoon too to play with and practise with as well, you never know he might accidentally put food in his mouth! LOL!
and him learning to push the food to the back of the mouth is all learning... the more he eats and practises the better he will get at it... (that is why speech is linked to eating). i was remembering gabriel the other day how when he first started eating nothing went in his mouth that hadnt first been squished and mushed with his hands. he would take stuff out of his mouth to squish it and look at it.. ------------- http://www.myfitnesspal.com/weight-loss-ticker">
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Posted By: KiwiL
Date Posted: 12 August 2009 at 3:04pm
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Actually, will try scrambled eggs. He might pick it up and eat it. I'll make them with a good dose of olive oil!
Stacey, yeah, we do lots of messy play. He does lick his fingers, but you never see him get excited about what he tasted. He just doesn't seem to enjoy any food, even treats, and I am not sure what to do about it. :( Sally Belly, yes we've checked his swallow. It was before he ever had solids, but there didn't seem to be any problems. There's another test we could do but few children will willingly participate - it would involve us forcing food into him and hoping he'd swallow.... and I just think that would be a TERRIBLE idea given his trust issues anyway. |
Posted By: KiwiL
Date Posted: 12 August 2009 at 3:07pm
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Before the tube, he was keen to taste lots of things off a spoon, even if he didn't eat much. But now, zip.
It would be helpful if we even saw small amounts of progress, but we really seem to be at a standstill. 
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Posted By: fire_engine
Date Posted: 12 August 2009 at 3:13pm
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Laurie, you've probably been down this route already but is there a child psych in the child development service? I'm not sure how CCDHB is structured but in Waitemata, I'm pretty sure there is a child feeding service with dietician, SLT and psych and they are all trained, skilled, experienced (etc) in kids with behavioural feeding issues and *should* be able to help you with some of those difficulties (like transferring food back in the mouth). I'm really reluctant to suggest things cos you guys seem to have tried everything but ... ------------- Mum to two wee boys |
Posted By: kebakat
Date Posted: 12 August 2009 at 3:21pm
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Baby food doesn't take that interesting so its not surprised hes not excited about it. Daniel became a horrid feeder (not quite to Jacksons extent) and never got excited about food either until he really got the hang of it and we could get more adventurous with foods and tastes
I did all sorts to make it more fun for him. I put food on teething rusks, tipped food on the tray and let him go for it, got him involved with opening the food (yoghurt), used food colouring to make foods different interesting colours lol, poured sprinkles on top of it lol, putting a dvd of love to sing on while he watched that he forgot about "eating" and actually ate more |
Posted By: Bizzy
Date Posted: 12 August 2009 at 4:58pm
food excitement is not what i would expect from a 10 mth old anyway... to them its just all about texture and is still so new, so dont be discouraged if he doesnt seem to enjoy it... after all babies dont get excited when they first try food. ------------- http://www.myfitnesspal.com/weight-loss-ticker">
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Posted By: Bizzy
Date Posted: 12 August 2009 at 5:02pm
dont be discouraged.... it hasnt been that long without the tube. you have to give him, his body and yourself all a chance! give him his own spoon and make sure you all eat together and dont force him and when he sees how happy you can all be at meal times he just might want to join in. ------------- http://www.myfitnesspal.com/weight-loss-ticker">
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Posted By: fire_engine
Date Posted: 12 August 2009 at 5:28pm
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.. and just wanted to say ...
Laurie, you're doing a great job  Everyone can see how hard you are trying to help Jackson and we are happy to be your (and his) cheerleading squad!
And Bizzy, you're fab. You're such a good encourager ------------- Mum to two wee boys |
Posted By: KiwiL
Date Posted: 12 August 2009 at 6:23pm
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You're all fab. I am so glad I have somewhere to come and moan, and know that I'll get half a dozen people telling me all will be ok. I think you'll all believe it before I do.
Fliss, we've seen a psych and a SLT but, believe it or not, we're not considered bad enough for the "feeding team" that all work together. So, it means that everyone we see is working independently, which can be frustrating. Our SLT was the best person we had, unfortunately we're about to be victim to the SLT shortage as she is leaving and not being replaced. It makes me very mad that we can be in a capital city and be so void of quality help. |
Posted By: fire_engine
Date Posted: 12 August 2009 at 6:52pm
 ------------- Mum to two wee boys |
Posted By: KiwiL
Date Posted: 12 August 2009 at 7:13pm
I know. 
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Posted By: peanut butter
Date Posted: 12 August 2009 at 7:38pm
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Hope it all improves for you. It sounds very much like the start of solids that we are going through (but you expect it in a 6 month old). Maybe try and pretend Jackson is just starting solids for the first time.
I agree with stacey about dumpin it all on the tray. We did that with Tom (mainly cos I would get annoyed at him trying to take the bowl off me and tip it himself) Plunket also recommended doing that for James as he is hardly interested. They also suggested putting it on my finger and seeing if he would suck it off that....yeah right! 
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Posted By: yummymummy
Date Posted: 12 August 2009 at 9:49pm
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Emma has never been a big eater and we've tried all sorts of things to get her eating.
I find distraction worked a treat when she was younger. I'd strap her in her high chair, give her one of 6-7 toys I kept aside for the occasion - a shape sorter was her fave. While she was busy playing, I'd feed her quickly - she did eat OK from a spoon though. Another thing that worked was being somewhere different ie McDonalnds - she'd be so busy looking around that she'd eat anything - I used to get myself a latte and feed her baby food we'd brought from home
Keep trying different things too - you never know what they'd like. Emma hates fruit (we are yet to discover one she'll eat) but likes baked fries (the frozen ones), home baked chicken nuggets, potato chips, salami sliced thinly and grated cheese (but won't touch sliced ).
Good luck ------------- http://lilypie.com">  http://lilypie.com">
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Posted By: KiwiL
Date Posted: 14 August 2009 at 3:27pm
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I am not coping well. I want to give up, but on every level.
Jackson's eating has got worse every day for the last four days. We peaked at 555ml, and today we haven't yet made 200ml. His skin is already starting to look loose on him, he's lost 400g in the last week and I am at the end of my teether. I have tried so hard to keep it together but this is taking a real toll on me. I don't know what to do. I am so scared. |
Posted By: kebakat
Date Posted: 14 August 2009 at 3:36pm
| Aww sorry to hear things aren't going well. Could a family member or friend take over for a day or two and see if that helps to maybe try and reduce your stress levels a little too.. |
Posted By: Bizzy
Date Posted: 14 August 2009 at 4:43pm
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thats a good idea stacey! take some time out - go to a movie, have a wine date with a frient and leave him with someone else for a couple of hours or the day! you wont be any good if you have gone insane! ------------- http://www.myfitnesspal.com/weight-loss-ticker">
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Posted By: cuppatea
Date Posted: 14 August 2009 at 4:47pm
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Yeah I agree, take a break if you can. -------------
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Posted By: kiwisj
Date Posted: 14 August 2009 at 5:16pm
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Just wanted to say we're still thinking of you here too. Please don't give up Hope you manage to get a break and have some time to yourself, you are doing an amazing job Laurie.------------- SJ Callum - Dec 2008 Daniel - Oct 2010 |
Posted By: sally belly
Date Posted: 14 August 2009 at 5:39pm
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Oh Laurie, it is so sad to read your latest post. I don't know what to say but a break sounds like a good idea.
It is no wonder you are near breaking point, you obviously want the best for Jackson & that of course, involves eating & drinking. -------------
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Posted By: LeahandJoel
Date Posted: 14 August 2009 at 8:00pm
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Aw Laurie...hang in there babe. I know we all say that but have no idea what you are going through. I can't imagine how hard this is for you guys but you are doing as much as you possibly can. I get so frustrated when Joel only eats what I think is a little bit....you would probably be thrilled if Jackson ate that lol (tonights dinner was a yogurt and thats it) but at least I know he will take a bottle. We had feeding issues with Leah as well but nothing like what you have had. I wish we lived closer so that we could come and help you guys , but I guess we have to support you this way instead. Thinking of you lots and keep your chin up. -------------
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Posted By: fire_engine
Date Posted: 14 August 2009 at 9:18pm
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------------- Mum to two wee boys |
Posted By: Tastic
Date Posted: 15 August 2009 at 10:12am
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oh big hugs Hun, I know how hard it is to get them off the feeding tube - mister Aidan became dependent on his one and it took awhile to get his off it
he will come off it, maybe try farex or muesli in his drink? just a little bit like a teaspoon |
Posted By: KiwiL
Date Posted: 18 August 2009 at 8:07am
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Just thought I would report back with some good news, so everyone doesn't think I am negative ALL the time.
Jackson drank 735ml yesterday, ate 1cm of cheese and tried a little food off my spoon. This is HUGE. He hasn't willingly and happily drank that volume since May. I feel energised by this. As Murphy would have it, Jackson has woken up clogged and with a temperature of 38.3. Sigh. Just need to ride this out and stay cool. He still started his day with a 200ml bottle. Ten days ago I could *barely* get 50ml into him. Progress is slow, but it is sure. I have also enrolled in the Graz Tube Weaning email support programme. This is email coaching from THE world-renowned expert, and she is going to answer MY questions and help ME. It's expensive, but she's weaned hundreds of babies, both at Graz and via email. If you'd have told me 6 months ago that I'd have to find someone on the opposite side of the world to help us through this, I would've said you were crazy. But here we are. Also, yesterday I skyped with a mum from Chicago for an hour. Her little boy turned 1 yesterday and his and Jackson's stories are identical. It's very surreal - it is like we've had the exact same experience for the last year. Freaky. The only difference is that this boy has graduated from the tube weaning programme and eats. Properly. And he's growing, all by himself. I am starting to believe this is possible. Sorry for the ramble! |
Posted By: fire_engine
Date Posted: 18 August 2009 at 8:27am
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Laurie, 735ml is HUGE - that's just phenomenal! AND cheese and stuff from your spoon!
Well done and you must be delighted to have had a breakthrough. There may be some ups and downs with the virus but he's showing he can do it! And fantastic that you're getting some great support
Yay for all three of you! ------------- Mum to two wee boys |
Posted By: BeLoved
Date Posted: 18 August 2009 at 9:15am
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Yay Laurie that is so great! And how wonderful that this day in age we have the technology so that you can speak with people from so far away and get help & support! ------------- http://alterna-tickers.com"> 
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Posted By: noodle
Date Posted: 18 August 2009 at 9:24am
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Yay Laurie! awesome news chick and what a star Jackson is! I hope he gets over being sick soon tho poor wee thing! and another yay for getting support from people that have 'been there' and know what you are going through! and you know that there is light at the end of the tunnel. you have had a hard road but you are doing an awesome job hun! ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: Shezamumof3
Date Posted: 18 August 2009 at 9:46am
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yay Laurie thats great news!!! Go jackson ------------- |
Posted By: Leahsmummy
Date Posted: 18 August 2009 at 10:20am
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Wow go Jackson!!! Thats Fantastic Laurie....... -------------   
Angel Baby Dec 09, We will love you forever. |
Posted By: AandCsmum
Date Posted: 18 August 2009 at 10:49am
Yay Laurie! You were so sad on the last page that I wanted to get in my car & drive down & give you a hug & some time out. Not that I know where you live ahh minor details 
BUT huge hurray for Jackson eating yesterday...a huge step forward & hopefully he keeps going forward or only had tiny steps backwards. ------------- Kel http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: Maya
Date Posted: 18 August 2009 at 11:29am
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Woohoo, yay Jackson - and yay to your mummy for persevering! Eat, eat, eat boy! ------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: jaycee
Date Posted: 18 August 2009 at 1:31pm
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Laurie, that is great news - Go Jackson . That is a great amount of milk and what a good boy to try some food.
Thank goodness for skype and finding someone who REALLY understands what you are going though every day - we don't mind cheering you on from the sidelines, but it is not the same .
Hope you are feeling a bit better yourself, and let me know if you want to catch up some time for a change of scene -------------
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Posted By: FionaO
Date Posted: 18 August 2009 at 4:45pm
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Wow thats so cool about the lady in Chicago and her story has a good ending, must make you feel good.
I think you are just amazing. Look forward to catching up with you both next week, although think its high time we left our kids with their dads and had a good catch up one evening involving some wine ------------- 
]  [/URL]
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Posted By: FreeSpirit
Date Posted: 18 August 2009 at 5:17pm
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735mls is HUGE! That is just awesome! AND some cheese and a taste off your spoon, it sounds like a great step in the right direction. Sorry to hear he isn't very well today, but on the bright side he's taken another bottle so at least he's getting some liquid into him while he's sick. I'm so happy you're starting to feel a bit more positive about this. Fingers and toes crossed for you that he continues to drink well and keeps tasting a little bit of food for you. ------------- http://www.babysfirstsite.com">
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Posted By: kiwisj
Date Posted: 18 August 2009 at 5:57pm
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Wow GO JACKSON!!!! 735ml is fantastic and the cheese and food off your spoon just add to the excitement So stoked for you Laurie that Jackson is making progress. Hope he knocks this bug on the head asap, great that he had a decent sized bottle this morning, what a good start to the day
Sounds like you're also making good progress Laurie, getting the email coaching and chatting with the lady in Chicago. Maybe next year it will be you reaching out to someone in this situation and reassuring them all will be well. ------------- SJ Callum - Dec 2008 Daniel - Oct 2010 |
Posted By: susieq
Date Posted: 18 August 2009 at 5:57pm
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Fantastic news go Jackson ------------- susie |
Posted By: LovelyMummy
Date Posted: 18 August 2009 at 6:21pm
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Laurie, that is fantastic news!! Way to go Jackson, keep it up lil guy
Jackson is such a lil cutie! Love his photos in your signature
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Posted By: james
Date Posted: 18 August 2009 at 6:44pm
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gooo jackson ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: sally belly
Date Posted: 12 September 2009 at 3:51pm
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Hi Laurie,
How are things going with Jackson's eating lately? Have been thinking of you both x -------------
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Posted By: KiwiL
Date Posted: 12 September 2009 at 9:32pm
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Hi Sally,
Thanks SO much for thinking of us! To be honest, things really aren't going well. We had some improvement for a week or so when we came off the tube, but for some reason we went the other way again. At the moment we are working hard to get about 500ml per day into Jackson... by working hard I mean we just have to have bottle/sippy cup available constantly and he snacks on it only. Drinks about 40ml at a time - it's terribly frustrating! I don't know why he's changed... he used to do 120 - 150ml at a time, with a 200ml feed in the morning. We've tried not letting him snack but it doesn't work. As for solids, he still won't open his mouth for the spoon so we give him finger food, which he chews and spits out. We still have a terrible problem with his gag reflex... not sure if it is because he has never had enough practice, or there really is a problem. But every time he has a gag/vomit he is put off swallowing for several more days. Tonight it was a pea... one pea... that he tried to swallow with disastrous effect. Immediately he stopped trying to swallow. It's so frustrating! I am actually going to just do a post shortly about that. I just don't know what to do. At the moment, Jackson is holding his weight. He's lost heaps (about 700g) but for the last few weeks he's stayed static. So, all the extra calories being added to the milk is doing something, thankfully. But, he needs to pick up on the food to start gaining, which is not happening at the moment. :-( He's eating even less at Day Care too... we had hoped that seeing lots of kids eating would help. The carers find him very, very perplexing. The most annoying thing is that we just can't keep him well. I don't know if it's poor nutrition, or just being a baby in winter, but he's been constantly sick for months. He's had a rattly cough for about 8 weeks. And then there is the teething too - he's cutting his two upper molars and his two second front teeth. And I am sure some bottom ones must be coming too. None of this helps. It makes it incredibly hard. He's just started day care, and at the end of the first week he's woken up with a temperature... today it spiked at 39.7 degrees! (I was very freaked out!). There's lots more I could tell you! We're being coached by email by the directing professor at Graz (the Austrian tube weaning clinic featured on 20/20), and she's given some amazing support, but we still haven't cracked Jackson's code. I wish I had $40k to travel there. The specialist help would be amazing. The threat of the tube going back in looms very large. I am having a rough time and feel sick in my stomach any time I think too hard about things. I cry a lot!! Going back to work has helped somewhat - I miss Jackson like crazy, but we did need a break from each other and I needed a break from the relentless worrying. So, that's the short version! I continue to have hope that things will improve soon, but sometimes it's hard to see the light at the end of the tunnel. Thanks for your concern! |
Posted By: mummyofprinces
Date Posted: 13 September 2009 at 2:22pm
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Oh Laurie, hugs! I meant to ask when you responding to my post how things were going tube free. Will keep everything crossed that Jackson's eating picks up soon and you can avoid having the tube put back in. -------------   
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Posted By: WestiesGirl
Date Posted: 13 September 2009 at 4:13pm
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Aww hun Im thinking of you. Fingers crossed Jackson wont need to go back to tube feeding ------------- Our Angel July 08 Gone but not forgotten
And to complete our family, our princess has arrived 
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Posted By: yummymummy
Date Posted: 13 September 2009 at 9:27pm
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Big hugs
I too had been thinking of you guys, sorry to hear things are not going all that well As for daycare, both my little girls picked up heaps of bugs when they first started and seemed to be sick heaps ------------- http://lilypie.com"> http://lilypie.com">
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Posted By: sally belly
Date Posted: 14 September 2009 at 10:19am
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Thanks for your update Laurie but I'm sorry to hear things aren't going as well as you'd like.
I'm sure being back at work is a good thing for both of you, as you mention. I really hope things improve with a bit more time -------------
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