High Downs Risk
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Category: Pregnant
Forum Name: Pregnancy
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URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=28421
Printed Date: 27 August 2025 at 4:20am
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Topic: High Downs Risk
Posted By: Alanismum
Subject: High Downs Risk
Date Posted: 29 August 2009 at 6:16pm
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I am 40 and pregnant with my second baby.
My Down's risk was 1:7 going by age alone. After the scan it came right down to 1:1289. Then I had the triple blood test done at 15 weeks, now my risk is back up to 1:310 which is considered hight risk. Now I have to decide what to do. Go for an amnio and risk a miscarriage or just hope for the best. Anybody been in a similar situation and can tell me what they did? Thanks. ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Replies:
Posted By: BlaBla_152
Date Posted: 29 August 2009 at 7:17pm
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I haven't been through what your going through as i'm only 19 with 1 child but I think it depends whether in your mind if you knew bubs was going to be downs would you keep it anyway, I would!
If you wouldn't then you may choose to risk it to find out as it could be the same out come or if you would keep it anyway then haveing the test done won't make any difference and there for it would be a risk tat wouldn't be worth taking. At the end of the day will you love your baby even if he's different?, I know people with downs who live very happy lives with the right support and some of then have the most touching smiles. let me know if this has helped and what you are thinking. |
Posted By: Chickaboo
Date Posted: 29 August 2009 at 8:07pm
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went I went for nuchal fold scan i was automatically 1:175 risk cause of age (36) and then after scan went to 1:810. I decided to still go ahead with our plan of amnio and results came back clear.
although we had discussed it in depth and decided if bubs was downs or something like that we would terminate. Thank goodness we didn't have to make that final decision! I agree with blabla - it all depends if the amnio results would make any difference whether you would have child or not.Not an easy decision at all. ------------- http://lilypie.com">  
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Posted By: ElfsMum
Date Posted: 29 August 2009 at 8:17pm
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i agree with the others.. if you would terminate then yes i would do the amnio... although we probably wouldnt and would probably still do the amnio as for me the worry would be worse.. 1:310 is still pretty low in percentage though? (i think amnio is 1:200 risk)
I wondered about the bloods as hardly anyone i know got them done...mw said usually makes the number bigger not smaller..?:( anyway hugs to you and whatever you decide to do. ------------- Mum to two amazing boys! |
Posted By: RinTinTin
Date Posted: 29 August 2009 at 9:50pm
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Yeah I'm with everyone on this.
If bubs had downs, would you keep it? If the answer is yes then there is no need to test any further, just prepare yourself.
If the answer is no then I would say have the further testing done and see what comes of it. ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: lilfatty
Date Posted: 30 August 2009 at 12:24am
I had a high probability (because of age), however I wouldn't have terminated so I didn't do any tests as I didn't want to have the worry that a high risk factor result would bring (I figure there is enough things to worry about)
 ------------- Mummy to Issy (3) and Elias (18 months) I did it .. 41 kgs gone! From flab to fab in under a year  http://www.femininefitness.co.nz/category/blog - LFs weight blog
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Posted By: HuntersMama
Date Posted: 30 August 2009 at 8:21am
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And also with the amnio it is only showing the risk, its not 100% accurate whether baby has downs or not. I read somewhere on this forum about a mum whos risk was really high, had the amnio and had baby and he was absolutely fine. ------------- http://lilypie.com"> 
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Posted By: Paws
Date Posted: 30 August 2009 at 8:40am
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I think the others have summed it up very well, if you would terminate based on the possible risk or if you just want to be prepared, then sure go for the amnio.
For me personally the tests would make no difference to us keeping the baby so I wouldn't bother with extra tests. As someone said, it also only shows the risk, it's not a 100% result. I'm already leaning strongly towards skipping the triple blood tests myself. Good luck with your decision. ------------- http://lilypie.com"> 
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Posted By: crafty1
Date Posted: 30 August 2009 at 10:26am
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That's a tough call and i agree with the others about whether it will affect what you decide to do. If it won't then maybe don't take the risk, especially if it's not going to tell you one way or another.
If you were to terminate, you're already 16 weeks pregnant now and by the time you get amnio and make any decisions you're going to be looking at another few weeks and then you're talking about a late abortion. You also have to think about how that decision will affect you too, because it does. Hugs to you and hubby cos it's a tough call that only the two of you can make. ------------- http://lilypie.com">  
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Posted By: fire_engine
Date Posted: 30 August 2009 at 10:50am
Um, that's not right. Amnio involves a genes test and will see if there is a trisomy 21 (which is what people with Downs have). The risk with amnio is about 1:100 but it does depend on who is doing it. I can understand both sides of the equation. For me, I wouldn't terminate but I would want to know so I could prepare myself and get all the supports in place (esp with an older child). BUT, when it came down to it, I don't know that I would be comfortable doing an amnio that has a much higher risk rate - it is 3x more likely that there will be a miscarriage than the baby having Downs. But that is just me. Have you got a good GP/MW that you can talk it through with??  ------------- Mum to two wee boys |
em26 wrote:Posted By: T_Rex
Date Posted: 30 August 2009 at 10:59am
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I thought the amnio was 100% conclusive? The scan and blood tests just indicate a risk, but the amnio is 100%.
DH and I had decided we'd get the amnio if we were high risk, but fortunately we weren't. No doubt we'd have had second thoughts if it actually came down to it though. ------------- http://lilypie.com">  http://lilypie.com">
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Posted By: kebakat
Date Posted: 30 August 2009 at 11:06am
| It's a tough one. I know I would abort if I found out my child had downs so I would want to know, but that in itself is a very hard decision and process to go through. |
Posted By: Chickaboo
Date Posted: 30 August 2009 at 11:29am
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I was going to come on here and say Amnio is 100% correct - it test the babies DNA and so it knows from the cormosones if its a yes or no answer!
And I think flissty and T rex said this too. ------------- http://lilypie.com">
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Posted By: Alanismum
Date Posted: 30 August 2009 at 1:39pm
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Thanks ladies for all your comments. It's a very hard call to make. I am not sure if we could deal with a Down's baby and it would be very hard for DD as well with a Down's baby most probabely needing heaps more attention.
On the other hand, I can feel this baby moving already and I can't imagine killing it. Also if something happened at the amnio and I would mc, I prob would never forgive myself. And I don't think I would try to get pregnant again. So I'm pretty much stuck in the middle. However, I read some stuff about the blood test on the net and apparently one of the reasons why it will be replaced by a new one in October is that there are too many false positive risk factors. If that is true, I won't even bother and go with my low risk of 1:1289. So I have lots of questions for my MW. ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: CuriousG
Date Posted: 30 August 2009 at 1:53pm
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Whatever decision you do make, you know we will be behind you 100% - its such a personal one to make and I can see both sides of the argument.
I went through an amnio as my risk was 1:55 with my first child. We knew we would have aborted. So the risk of m/c wasn't a concern as such. I hope your mw can help you answer some of the questions you have. Hugs... ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: JD
Date Posted: 30 August 2009 at 2:52pm
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I had a very high risk with DS 1:18 and i was 29 when I was pregnant with him.
We wouldn't have terminated so DH didn't want any more testing done. I agreed with him so we didn't test any further. I sort of thought, there is 1:100 risk of miscarrying so what has the higher rist? In your case the amnio has the higher risk... The other thing is...if you aren't planning on terminating...the 20 week scan will be able to tell you alot more about your baby. Apparently downs babies are highly likely to have heart problems and they will pick this up at that scan. Also, there size is a bit different. If you can wait another couple of weeks, you could see what your scan has to say. I wouldn't have said that you had a high risk based on your age and the results you had. Good luck with whatever you choose. BTW we had a perfectly healthy little boy ------------- http://lilypie.com"> 
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Posted By: ElfsMum
Date Posted: 30 August 2009 at 6:18pm
ah ok..just my old mw said 1:200 for amnio and 1:100 for CVS but pretty similar i guess. ------------- Mum to two amazing boys! |
Posted By: ElfsMum
Date Posted: 30 August 2009 at 6:20pm
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as far as the blood test... it's only just come in doing it in chc so they are changing it?
anyway hugs in whatever you decide it's a hard decision! ------------- Mum to two amazing boys! |
Posted By: Rachael21
Date Posted: 30 August 2009 at 8:11pm
Actually it is not 100% you have to remember there is always room for error and so nothing is ever 100%. There are cases where they have got it wrong. Just be aware that amnio is a lot more conclusive than the scan and blood test but still not 100%. |
Posted By: HuntersMama
Date Posted: 31 August 2009 at 10:37am
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Thanks Rachand Jack!
Sorry if I was mistaken, only repeating what I have heard  ------------- http://lilypie.com">
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Posted By: Rachael21
Date Posted: 31 August 2009 at 8:44pm
| All good man its a common misconception, I'm currently writing an essay on antenatal screening so its fresh in my head lol |
Posted By: tarns
Date Posted: 07 September 2009 at 8:58pm
I had an amnio as I would have terminated had my baby had Downs. Fortunately all was well and the absolute WORST part was not the amnio itself which took approx 30 seconds but waiting for the results as it fell during the Xmas period....I finally got my clearance at 4pm on NY's eve ------------- 
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Posted By: tarns
Date Posted: 07 September 2009 at 9:01pm
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Four eyes...the 1:200 thing for amnio is the risk of miscarriage from having the test -------------
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Posted By: ElfsMum
Date Posted: 07 September 2009 at 9:21pm
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yeah i just got told 1:200 for amnio and 1:100 for CVS(cause i was going to have to have CVS)
------------- Mum to two amazing boys! |
Posted By: SammyA
Date Posted: 08 September 2009 at 5:18pm
Hi there, I think I have already said this in another thread. My 8 year old brother has Down syndrome and my mum did the amnio and it told her that my brother 100% did not have Down syndrome. It certainly is not 100% correct  ------------- http://lilypie.com"> 
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Posted By: Chickaboo
Date Posted: 08 September 2009 at 8:06pm
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yup SammyA i was corrected by another person - I guess there is that room for error with everything and i should say 99% (gives that one persent for those who it did get it wrong for)
My point was that it is not a risk estimate its somethintg you have to give you a yes or no answer (even if there is that error) Must of been a great big shock for you mum. ------------- http://lilypie.com">
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