Orgran products
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URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=30453
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Topic: Orgran products
Posted By: Kazzle
Subject: Orgran products
Date Posted: 12 December 2009 at 11:10am
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Does anyone here use them, i have a couple of questions.
Cory has come back with reactions to egg, wheat, rye and peanuts and we also know he is intolerant ot dairy (hence going onto neocate). So i have come across orgran which states they are competely egg, wheat, and dairy free which would suit us. BUT are they expensive? are their products good? Do their products have a nice taste? And where is the best place to get their products (given im in wellington). ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Replies:
Posted By: blondy
Date Posted: 12 December 2009 at 11:29am
We have only used a couple of the products and they seem to taste pretty good (well, given they are lacking in dairy, egg, wheat etc etc  ). They are more expensive, but as it's only Natalie eating the food, it lasts longer than you'd expect. We just get ours from the supermarket - normally in the organic isle or similar.-------------  
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Posted By: Kazzle
Date Posted: 12 December 2009 at 11:52am
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yeah it will only be Cory eating this stuff...so im not worried about the cost as such, as i know it will last a while ------------- http://lilypie.com">
http://lilypie.com">
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Posted By: cuppatea
Date Posted: 12 December 2009 at 12:43pm
Yeah we used some of their stuff, the outback crackers are delicious, it use to be 1 for Spencer 3 for mummy I'm not in Wellington, but down here woolworths, countdown, pak n save and new world all stock some of their stuff (with different supermarkets being better at it than others), generally any supermarket with a good gluten free sections seems to stock them well. Organic shops also have them but they tend to be marked up higher. Binn inn have a huge gluten free range but I can't remember if they have the orgran stuff, they might have some other stuff that suits though. A lot of organic stuff is dairy free. Oh and their is a rice bread you can buy, most supermarkets stock that, I use to freeze and a get a slice out at a time cos it doesn't last long otherwise. I thought it tasted gross but Spencer never had an issue eating it cos he'd never had real bread to compare it to.------------- 
 
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Posted By: squoggs
Date Posted: 12 December 2009 at 1:40pm
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I have used Orgran products over the years as im gluten & dairy intolerant. I find their pasta quite gluggy - if I do use it I find it is bit better if i rinse it in boiling water immediately after cooking.
Yip all those products are pricey - usually around $4-5 for a small pack of pasta. But they are a godsend if you have a restricted diet, ten years ago I couldn't get anything - now there's lots of stuff. Usually get from the supermarket - when I lived in wgtn I got them from Woolworths in Jville. Pak'n'save usually have quite a good range too. ------------- http://lilypie.com"> 
http://lilypie.com"> 
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Posted By: tishy
Date Posted: 12 December 2009 at 2:24pm
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We use Orgran.
Personally, I prefer their pasta over other brands. They do a spaghetti noodle which is perfect for little kids. From what I recall, New World at Porirua has a good selection of GF and Orgran products. My local Pak n Save at Kilbirnie has only recently improved its selection so maybe the PnS out there has too. Oh and they also do some 'Crisp Bites' (mini cruskits) that are yummy and perfect size for wee hands. |
Posted By: Kellz
Date Posted: 12 December 2009 at 2:59pm
| You should be able to get a child disability allowance for him, if u dont already, which will help towards the extra costs of special foods. |
Posted By: Guests
Date Posted: 12 December 2009 at 6:59pm
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The orgran ta is really good and second the crisp bites yum yum
Also if you check out www.mfd.co.nz They have lists of "normal"foods that are gluten/wheat/egg/dairy free etc. freedom foods do a lot good cereals too |
Posted By: cuppatea
Date Posted: 12 December 2009 at 7:14pm
They've stopped doing that pretty much, they refused to renew mine (this was last year) and my friend whose little girl is anaphalactic to eggs hers was not renewed either. We don't need it now anyway but it was handy to pay for the extra cost of special foods and paed appointments. -------------
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Kellz wrote:Posted By: blondy
Date Posted: 12 December 2009 at 7:19pm
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We were still approved the CDA, and that was earlier this year, so it seems a bit hit or miss as to whether they approve it for allergies? The specialist did write on the form that they were severe - wonder if that made a difference? -------------
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Posted By: cuppatea
Date Posted: 12 December 2009 at 7:27pm
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Maybe it just depends which winz office it goes through? I found it a bit annoying but then on the other hand he wasn't actually disabled so I figured we were lucky to have it for the first year. My friend was told if her girl carried an epi pen she would get it, however they have never given her eggs, the specialist is pretty confident what the reaction would be without testing it so that to me seems a bit dumb cos it's not like she is less allergic cos she doesn't have the pen yet (and hopefully never will) -------------
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Posted By: blondy
Date Posted: 12 December 2009 at 7:33pm
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It is a bit random! We did have to go in and have a meeting about the whole thing, so maybe it's a bit of personal discretion on the part of the WINZ staff member you get? In theory, if the specialist considers the allergies are severe enough to qualify, then WINZ shouldn't have any problems with it (and if they do, they have their own medical professionals to check things out). But obviously not the way it works!
And I do feel a bit bad too, because the allergies are manageable, but on the other hand it does get expensive with food (and it was food for me while I was BFing too), plus the costs of the specialist apts in the first place (even though most is covered by our insurance), and the extra doctor trips and prescription surcharges. Actually, maybe I don't feel bad about it!
Sorry for slight threadjacking Kazzle!  -------------
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Posted By: Kellz
Date Posted: 12 December 2009 at 7:52pm
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Last Dec we only had to get the GP to sign the yearly R/V form and still got the CDA even tho Isla had outgrown her actual dairy allergy (still intollerant), and was no longer being medicated for reflux, or needing frequent visits for her excema.
I guess they have got tougher now tho, and that was a review, not the first appt to get it in the first place. That sucks tho, it was really useful for us. |
Posted By: AandCsmum
Date Posted: 12 December 2009 at 8:06pm
Yay for answers & we use some of their stuff. The rice & something spagetti is really nice  ------------- Kel http://lilypie.com"> 
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: Muz
Date Posted: 13 December 2009 at 9:51am
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We use the pasta too - for miss 5 1/2, she loves it, i tried it and thought it was very average!! But choicesare limited. Is the san remo GF pasta any good for you? That pasta is really nice - almost 'normal'
We are just going thru the process for the child disability allowance - Dr Ford said he had never had so many denied as he as this year (she has Coeliac) so we will wait and see. ------------- http://lilypie.com"> 
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Posted By: MrsMojo
Date Posted: 14 December 2009 at 7:50pm
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Check with your doc Kaz as you may qualify to get orgran pasta's and horley's flours on prescription. If you buy in bulk (to make up the cost fo the prescription fee) it brings the cost down to about what you'd pay for wheat products. Personally I buy the san remo pasta's and healtheries baking mix and bread mix (these are all gluten and dairy free too). I use LSA in my bread because it gives it a lovely soft consistency but if I really want a nice soft white sandwich I buy the Basco bread mix. You'll find most supermarkets have a selection of specialty foods. By far the best selections in the area are at North City New World and Johnsonville Woolworths. Once you start looking you'll be surprised how much is actually ok for him to eat and when you're used to it baking is just as easy, in fact after years of baking everything gluten free I made a fruit crumble in the weekend for DH and DD using wheat flour and was told it wasn't nearly as nice as the gluten free one I usually make -------------  
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