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LCP Neocate

Printed From: OHbaby!
Category: Support
Forum Name: Reflux and Allergy Support
Forum Description: Struggling with a refluxy baby? Looking for tips to deal with allergies? Share your experiences here.
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35351
Printed Date: 28 March 2020 at 5:33pm
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Topic: LCP Neocate
Posted By: Kimnthekids
Subject: LCP Neocate
Date Posted: 20 August 2010 at 1:05pm
Just wondering if anyone on here is on it at the moment,

Just some questions about starting it and tricks and how hard is it heh

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http://lilypie.com"> http://lilypie.com">



Replies:
Posted By: Peanut
Date Posted: 20 August 2010 at 2:21pm
We are on it at the moment with my 9 month old.

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Posted By: BriAndOlisMum
Date Posted: 20 August 2010 at 2:39pm
we are on it with my 6 month old.

He took to it straight away. I find if i make it up to the strength on the can he gets bad constipation tho so i only make it 3/4 strength.

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http://www.myfitnesspal.com/weight-loss-ticker">


Posted By: Kimnthekids
Date Posted: 20 August 2010 at 3:10pm
We were at the specialist today and was given some to start on. My problem is atm our daughter is exclusively breastfed and doesnt like taking the bottle - so we are about to have that battle, as well as the formula (which he said tastes terrible compared to the shelf stuff)

How long did it take before they were taking it happily? (Briand OlisMum - was he breastfed prior or on regular formula?)
Did either of you try with the golden syrup if things were bad?
Does the subsidy make it affordable? (We were only told the actual price of a tin but that you can get subsidised)

Cheers guys - we're planning on pumping till she'll take a bottle then starting so FX she wont just refuse to feed

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http://lilypie.com"> http://lilypie.com">


Posted By: BriAndOlisMum
Date Posted: 20 August 2010 at 3:55pm
hi kim he was breastfed for the first 2 and a half months exclusively but i made sure to give him a bottle of ebm at least once a week so that i knew he would have a bottle. then he went to regular dairy formula top ups in the evening which he reacted badly to so we swapped to soy which smelt real bad but he didn't seem to mind it at all. he also reacted to that so we went to neocate. by this time my milk had dried up. he didn't seem to mind the watered down neocate. we started on half strength.

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http://www.myfitnesspal.com/weight-loss-ticker">


Posted By: nikitarose
Date Posted: 20 August 2010 at 5:17pm
Hi we used golden syrup, to get miss use to it, she was bf until 6 months,but it was all to stressful low weight gains etc. We were lucky she took bottle fine,so dont have much advice on taking bottle sorry, good luck it may take a bit of time just be patient you will get there.


Posted By: blondy
Date Posted: 20 August 2010 at 6:04pm
unfortunately it took ages for DD to take a decent amount of it! (but she has a huge bottle now - of the next stage Neocate). We started offering at maybe 7 months, and it took till 12 months for her to have an ok amount. Vanilla essence worked ok for us, it helps to disguise the tatse a little.

Exclusively BF babies may take quite a while to adjust to bottles, and typically they won't drink as much as bottle fed babies, as they're used to only drinking what they need at the time. When DD started, 30mL was a good amount! Just do it at the same time every day, and keep offering.... but don't get stressed about it, as we found any time we tried to 'force' the bottle on her, it just backfired.

the tins work out at about $7 a tin, but only 400g tins, so the cost will really depend on how much she's having. If WINZ are still co-operating you may be eligible for a child disability allowance if your DD has moderate+ allergies (I'm assuming that's maybe why she's on neocate?)

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Posted By: Kimnthekids
Date Posted: 20 August 2010 at 6:31pm
thanks for your replies!
Its not quite what we were expecting, more to go down the road of me eliminating all sorts of food for my diet but looks like that plain wont be enough. So a shock to me and her having to stop BFing, but whatever works best for her in the end!

That actually is a good price considering theyre like $150. That nearly floored me! Pretty similar to supermarket prices i suppose for normal stuff.

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http://lilypie.com"> http://lilypie.com">


Posted By: BriAndOlisMum
Date Posted: 20 August 2010 at 6:39pm
Kim have you been to see a pead about it? what did he say, or your gp?

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http://www.myfitnesspal.com/weight-loss-ticker">


Posted By: AandCsmum
Date Posted: 20 August 2010 at 8:15pm
Just to let you know my experience, I was on a strict elimination diet for a long time & that obviously for us still didn't cut it.

We've just given up on breastfeeding & after 4 days got massive withdrawals/detox from B/M, refusing food & bottles!! But a couple of days later he was gutsing down the neocate & gaining weight again. Was a bit hair raising but he's so much happier and skin and bowels good. Wish I'd done it a long time ago, but the process we went through meant that we didn't til a few weeks ago.

We also started on LCP at half strength and worked up to full strength. I tried icing sugar and then brown sugar did the trick to get him to like it. This is while still having breast milk. I also topped up with rice milk but that is a BAD idea as he then reacted to it so had to go to the brown sugar. I would try blending with breast milk, it's to get that funky taste in with something sweet. I'm not sure if it's recommended to blend with breast milk though. We then got a script for advanced so had to wean over to that. The idea is to change one scoop a day, I did it a bit faster than that, I guess it depends on how sensitive your bub is when you come to that point. We are now on 7/8th strength. Full strength is too much for him.

So what I'm sorta saying is start at half way. So half the recommended scoops for that amount of water. Once that is being drunk happily then increase the amount of scoops per bottle. You might need to increase this at one scoop a day or you could get away with one a bottle. Your bub might never get to full strength in a bottle but will get the correct amount of scoops per day over slightly more bottles.

We pay $6.15 a can & am going through a can every 2 1/4 days!

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: Kimnthekids
Date Posted: 20 August 2010 at 10:33pm
BriAnd OlisMum: Yeah we were referred to a pediatric skin specialist and he was the one to make the call. But he gave sound reasoning, and 100% knew his stuff and was passionate talking about it, so felt good coming away from him, even if it wasnt what we'd planned.

Wow sounds like can be an adventure getting it happening - will research to see if i can mix with BM to start - i read that u can with other formula but with BM who knows!

A+Cs mum: I'm glad you got there in the end, wowzers the can doesnt sound like it lasts , might have to get selling more stuff on TM (lol)

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http://lilypie.com"> http://lilypie.com">


Posted By: AandCsmum
Date Posted: 21 August 2010 at 11:16am
Kim, I think the overall price is comparable to store bought formula. Most of them are $12-14 for a 900gm can.

But yes can be an added expense when you thought that you'd breastfeed.

Good luck, let us know how you are getting on. There is a neocate kids chat group on yahoo groups if you want more back up & support.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: Peanut
Date Posted: 21 August 2010 at 7:26pm
I find it amszing how everyone pays a different price for their tims. We pay $3.50 per tin so its a bargain!

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Posted By: AandCsmum
Date Posted: 21 August 2010 at 9:11pm
I think we have the courier charge factored in from the Sth Island. Do you get them direct from Thermo Fisher?

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: Kimnthekids
Date Posted: 22 August 2010 at 8:06pm
Well just as an update, we decided to try her on a bottle of it Saturday night as she'd taken to the bottles of BM reasonably well, and she just drunk it. So we've switched and so far so good, altho we've done normal strength which im now a little concerned about. Lets hope she poops huh?

Now just to wait and see if things all clear up, then we'll be asking for our subsidy number or whatever it is too!

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http://lilypie.com"> http://lilypie.com">


Posted By: BriAndOlisMum
Date Posted: 22 August 2010 at 8:35pm
thats great Kim, so good to hear she is drinking it with no problems.

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http://www.myfitnesspal.com/weight-loss-ticker">


Posted By: blondy
Date Posted: 22 August 2010 at 9:12pm
Yay Kim we never diluted the neocate down - Nat always had it at full strength (although she was a little older than your DD and on solids when we started).

The approval number can take a couple to a few weeks to come through, so hopefully your specialist is onto it already?

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Posted By: Kimnthekids
Date Posted: 22 August 2010 at 10:18pm
ewk blondy, nope he just gave us 3 tins to start on and said to contact him once it started to make a difference. Didnt think it could take that long

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http://lilypie.com"> http://lilypie.com">


Posted By: AandCsmum
Date Posted: 22 August 2010 at 11:42pm
Awesome that she takes it full strength

Some of us just have super sensitive bubs that need it dilute.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: ElfsMum
Date Posted: 23 August 2010 at 1:43pm
Originally posted by Kimnthekids Kimnthekids wrote:

We were at the specialist today and was given some to start on. My problem is atm our daughter is exclusively breastfed and doesnt like taking the bottle - so we are about to have that battle, as well as the formula (which he said tastes terrible compared to the shelf stuff)

How long did it take before they were taking it happily? (Briand OlisMum - was he breastfed prior or on regular formula?)
Did either of you try with the golden syrup if things were bad?
Does the subsidy make it affordable? (We were only told the actual price of a tin but that you can get subsidised)

Cheers guys - we're planning on pumping till she'll take a bottle then starting so FX she wont just refuse to feed


i am in the same boat..my 6 month old will take it but not in bottle..or cup..so only on spoon..he wont even take an EBM bottle...i really was against trying brown sugar or golden syrup but i tried both and nothing.. so hope you have better luck than me.. my older son took it no issues.. i havent read further but i am assuming the others have told you bout the subsidy etc

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Mum to two amazing boys!


Posted By: ElfsMum
Date Posted: 23 August 2010 at 1:46pm
yeah im the same as peanut...3.49 a tin here in chch..

and yeah the paed applies for the special number and you use that to order....so then you buy either 1 or 3 months at a time...so it was only 100 something for 30 tins for us.. so glad she took the bottle...

blondy Liam will only take 30 mls..so that is a good thing..lol glad he isnt the only one who has issues:(!! I'm going quite mental with people telling me to starve him:(

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Mum to two amazing boys!


Posted By: Peanut
Date Posted: 23 August 2010 at 2:51pm
Def get onto your pead re the special authority number as mine took close to 2 weeks to come thru and we had gone thru 5 tins in the time. The paed gave as 2 tins and I had to ring for 2 more, then a friend gave us a tin too. Def worth following up on sonner rtaher than later.

Yeah, I get it direct from Thermo Fisher and its free delivery. Do you get it just couriered to your home or is the chemist putting a mark up on it for processing?

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Posted By: Kimnthekids
Date Posted: 23 August 2010 at 8:06pm
Just called specialist today, they seem to think theyll have a number by the end of the week - but we'll see heh.

Elfsmum: only takes 30mls at a feed?

Do they seem to take less neocate than a different formula? The most C will take is 120mls, and normally around 90mls in a feed - whereas i know people with their children of the same age on 'normal' formula who are all taking 200-250mls?

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http://lilypie.com"> http://lilypie.com">


Posted By: blondy
Date Posted: 23 August 2010 at 9:24pm
kim - it's a volume thing that comes from BF babies... they're used to drinking only as much as they need. It does change though, just slowly - Nat now guzzles back 300mL in one go

It might be partly the taste too - if it tastes half as as it smells.... you wouldn't get me drinking it!

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Posted By: AandCsmum
Date Posted: 23 August 2010 at 10:06pm
Cooper is now sucking back at least 160ml on a small feed. Earlier on though he would only take 100ml. I think B/F babies need their tummy capacity built up.

I might give Thermo fisher a call I'd love to not have to pay so much! I am only getting it in box qty's at the moment.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: BriAndOlisMum
Date Posted: 24 August 2010 at 8:09am
Oliver has 210ML each feed, but sometimes before bed at night he will want more so i make him another 100 ML. He has it half strength tho.

Then he has another 210ML during the night and another at 5am. The only problem with this is he pees so much and I am having real problems finding a nappy that will see us through the night, thats sposies and cloth :(

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http://www.myfitnesspal.com/weight-loss-ticker">


Posted By: AandCsmum
Date Posted: 24 August 2010 at 11:38am
I am the same Tania, although the amount of wee has settled down a bit now that we're back to 5 or 6 bottles a day 8-10 was doing my head in!

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: AandCsmum
Date Posted: 24 August 2010 at 11:49am
I just rang Thermo Fisher /Biolab & she refered me to Nutricia who said it's $13.96 per tin. So far cheaper off the Pharmacy!

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: Kimnthekids
Date Posted: 24 August 2010 at 12:50pm
Briand Olismum: so far the only nappy that's seen us through the night is huggies - worth the extra $ rather than all the outfit and bed changes we were doing lol. Lets see if it continues being a star



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http://lilypie.com"> http://lilypie.com">


Posted By: BriAndOlisMum
Date Posted: 24 August 2010 at 2:15pm
I've tried huggies, even went up to the next size up to see if that worked but nah still had a wet bed and clothes to change in the morning. Last night I even tried putting 2 sposies on him, and the night before he had 2 prefolds on and still leaked. I'm kinda used to it now tho lol.

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http://www.myfitnesspal.com/weight-loss-ticker">


Posted By: ElfsMum
Date Posted: 24 August 2010 at 5:17pm
Originally posted by Kimnthekids Kimnthekids wrote:

Just called specialist today, they seem to think theyll have a number by the end of the week - but we'll see heh.

Elfsmum: only takes 30mls at a feed?

Do they seem to take less neocate than a different formula? The most C will take is 120mls, and normally around 90mls in a feed - whereas i know people with their children of the same age on 'normal' formula who are all taking 200-250mls?


yeah only enough to quench his thirst:( E went straigth from normal formula and he went right onto heaps but he was only 2 months...

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Mum to two amazing boys!


Posted By: ElfsMum
Date Posted: 24 August 2010 at 5:19pm
wow bri and oli....that sucks:( yeah we use only huggies too...


i still dont get why it costs more away from chch.. they definitely only charge 3.50 a tin and have it delivered to your door here.. weird.. !

I have tried Liam on every teat and with everything in it or not in it..... and sippy cup and most he will take is 30mls..doing my freaking head in.:(!!!!!!!!!!!!!!!!!

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Mum to two amazing boys!


Posted By: Kimnthekids
Date Posted: 24 August 2010 at 8:01pm
Briand OlisMum: one word - buggger!!!

ElfsMum: that must be really hard :( Does it mean he's feeding kinda all the time? Feel for you!!!

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http://lilypie.com"> http://lilypie.com">


Posted By: doffrey
Date Posted: 26 August 2010 at 11:49pm
try cranial for reflux certainly helps


Posted By: BriAndOlisMum
Date Posted: 27 August 2010 at 7:48am
WOW i just paid for 4 tins yesterday and it was $31 so thats $7.75 a tin.

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http://www.myfitnesspal.com/weight-loss-ticker">


Posted By: ElfsMum
Date Posted: 27 August 2010 at 8:08am
Originally posted by Kimnthekids Kimnthekids wrote:

Briand OlisMum: one word - buggger!!!

ElfsMum: that must be really hard :( Does it mean he's feeding kinda all the time? Feel for you!!!


bri and oli..i checked..def 3.49 here...very weird!

i gave up a while ago trying to get him to take the bottle after many many different tries and two lots of all day squeezing it in to him or trying to get him to take it.. i just dont know what to do and being sleep deprived isnt helping either!:(


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Mum to two amazing boys!


Posted By: AandCsmum
Date Posted: 27 August 2010 at 5:57pm
Who did you get it through KA? I didn't say where I was when I rang both Thermofisher & Nutricia. I'd be super keen to get it cheaper cause of how fast we are going through it.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: Peanut
Date Posted: 27 August 2010 at 7:57pm
KA gets it from the same place as me.

So we only pay $3.49 a tin and free delivery.

The only things I can think off and I may be completely off track with these things are:

1) Its my understanding that is funded so may depend on level of funding by your DHB?

2) Again, I think up north etc its sent to a pharmacy who dispense it to you - maybe check what you are paying for there services?

Did you call 0800 933 966? I have never been put thru to Nutricia so maybe just try to talk to someone within Thermofisher that seems to know what they are talking about.



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Posted By: AandCsmum
Date Posted: 27 August 2010 at 9:01pm
Yep I rang that number & I asked for details on ordering neocate & they said that nutricia deals with that now & gave me their 0800 #. I tried to say but I thought you guys did it & she said no that neocate is no longer with them & I have to deal with nutricia.

I think it pays to shop around to get the best price at pharmacy's. Another one said he'd price match for me to the current pharmacy & he also said that he'd get my whole script in & hold it, not like at the moment where I get a box of 4 every week & have to order it over night.

eta - his price was dearer.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: Kimnthekids
Date Posted: 28 August 2010 at 10:37am
We're $6.60 a tin, and i called around about 6 places to get prices lol. But i did ask, and pharmacies aren't supposed to add anything on to the price.
A+Cs mum: all the places i called said they got it in 1 month at a time (so for us 3 boxes) and can order in the morning to get it that afternoon.

Interesting isnt it how they're all so different. Wow cant believe some is only $3 something a tin! May well be the type of funding you are given.

Well we're a bit blocked up here bother it all, but hoping things resolve themselves soon!

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http://lilypie.com"> http://lilypie.com">


Posted By: Kimnthekids
Date Posted: 04 September 2010 at 9:22pm
haha me again with a question - anyone elses bubs get awful farts on this formula? My goodness DD happened to have some nappy off time and as i leant down to blow a raspberry on her tummy she blew off - woah hit my a sulphur smell so bad i nearly died!

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http://lilypie.com"> http://lilypie.com">


Posted By: Kazzle
Date Posted: 05 September 2010 at 7:43am
hahahahahaha that does get better...lol

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http://lilypie.com">

http://lilypie.com">


Posted By: HuntersMama
Date Posted: 09 September 2010 at 10:31am
hee hee hee! Oh dear, something to look forward to!

We just got a trial tin from the GP and are on a roundabout with the GP and Paed to get an authorisation code. Our next appt isnt until Nov, so Im not sure how we are meant to wait until then. I work for the same organisation as the paed so might try and contact him when Im back at work next week to get the code.

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http://lilypie.com">


Posted By: ElfsMum
Date Posted: 09 September 2010 at 11:10am
the problem is he has to get the authorisation number to him so unless they have given it to him he cant give it to you..i just saw egg white peanut and dairy? *hugs* how do you know it was whites? Liam only got tested for egg in general?

he never offered us rast tests but we have to go back 4 monthly for skin tests and i think they include environmental next time..

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Mum to two amazing boys!


Posted By: HuntersMama
Date Posted: 10 September 2010 at 8:36pm
Hmm, I wonder how long the whole thing takes? He is doing OK on the soy formula and I will start neocate Monday if he will take it.

Im not sure why they tested for egg white KA? I thought it was just egg in general, but on the test results it just says egg white. Odd, MIL has a severe allergy to egg yolk.

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http://lilypie.com">


Posted By: Kimnthekids
Date Posted: 16 September 2010 at 10:21pm
huntersmama: our specialist gave us 3 tins to try on the friday, i called him on the monday and said we had started already, and i had the number by thursday. So goes to show it can happen quickly. So push push push!


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http://lilypie.com"> http://lilypie.com">


Posted By: HuntersMama
Date Posted: 18 September 2010 at 10:23am
Thats good to know kim! He has refused it since taking it once so I might hold off for now. We are back on the soy but he is still reacting badly so I might just have to get tough with the neocate.

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http://lilypie.com">


Posted By: LeonDownie230694
Date Posted: 25 April 2018 at 1:02pm
Hi all could someone please tell me how you are getting the neocate lcp so cheap?

We are paying $90 for a 400g tin.. it seems so expensive!

Thanks



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