Parenting a child with special needs - Osteogenesis Imperfecta. (Brittle Bones)

Print Page | Close Window

Osteogenesis Imperfecta. (Brittle Bones)

Printed From: OHbaby!
Category: Support
Forum Name: Parenting a child with special needs
Forum Description: A place for those parenting children with special needs to find support and share their thoughts
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=39807
Printed Date: 14 May 2024 at 8:21pm
Software Version: Web Wiz Forums 12.05 - http://www.webwizforums.com

Topic: Osteogenesis Imperfecta. (Brittle Bones)

Posted By: Western_Lights_Studio
Subject: Osteogenesis Imperfecta. (Brittle Bones)
Date Posted: 05 July 2011 at 2:43pm

Hi there, I just thought I'd create a topic around this fairly unusual Genetic Condition if there are any of you out there that have children with OI (Brittle Bones) or if you had any questions about it.

My background and experience with the condition is:
1) That I have it and come from a family pre-disposed to the condition.
2) I have a 5 Year old Daughter with it.

I would be more than happy to discuss any issues or questions you might have about living with it or what to do if you find out your child has it.

Cheers
Russell

-------------
Hi, My name is Russell,
Dad to 2 wonderful kiddies (4 & 5yrs) and lead photographer for http://www.westernlights.co.nz - Western Lights Studio