Another question....

I am full of them!

Jackson's bottle feeds always start off well in the morning, and get progressively worse. When I say worse, I am talking both amount and behaviour.

By the time we have his 10pm feed he is arching and crying and will often only have a little bit. Which of course means he wakes a few hours later in the night.

Is this typical for reflux baby? He was having his meds split into three doses a day, but I recently made it two. I think I will go back to the three, although the amount hasn't changed.

I don't think it is wind, as he always gets good burps up, but maybe it is? He has Infacol before all his feeds.

I'd really like to know why he gets so upset about feeding toward the end of the day? Perhaps it is related to his upset when going to sleep later in the day that I posted about too?

Sounds quite refluxy. Try going back to the 3 doses and see how you go.

Are you having any follow up with paeds?

Hi

I have a reflux baby also. We are on losec and I give it to her once a day with 1/2 a teaspoon of pureed pear, we were trying to get it down on its own but she got so distressed. I try and wait as long as I can before feeding but sometimes I just have to feed her, as I have been told all the crying can just make things worse for a reflux baby. Are you giving the granules in anything or just dry?

Also I ended up stopping the infacol as I wondered if that was upsetting her and I now just add it to the bottle of formula she has before bed after a BF and this seems to have made a big difference to her also (not having the infacol during the day)

Sorry not much help, but I also wanted to say that I take my hat off to you! You are obviously going through a real ordeal with Jacksons feeding and you are doing the most amazing job. I think its great that you ask questions!!!

Just wanted to say good luck!!
both the boys had omaprezole, but they hated it, and kept spitting it out when it was with their milk or without! so if you can get ur lil man to take it, my hat is off to you!!

I found the same thing as Peanut with the Infacol drops, Isobelle would scream for about and hour and there was no hope of getting her to feed once she had the drops.

Hugs to you Laurie!

I really hope your doc listens and gets you seen by a Paed ASAP!!! I would feel exactly the same as you do. I so hope that things get sorted and you get answers and solutions.

Maybe you should record what Jackson does at his night time feeds so that you can show the doc and then the Paed, sometimes it takes black & white evidence to convince these people to take action!

Good idea about recording - I've resorted to that on occasion. Also, have you tried feeding him in the bath - I remember hearing something about babies being more relaxed in warm water.

I really hope you get seen ASAP - I'm amazed they didn't schedule followup v soon after the pH study.

Yeah, have tried the upright thing. No luck.

I am convinced that there is soemthing going on with his gut. Undoubtedly he has reflux too, but with all the rumbling, straining, farting, tummy crunching along with the lack of obvious reflux symptoms between feeds.... well, it's just what I think.

DH and I made a video of his feed last night. I was very upset! We are also keeping a food diary with the amounts he eats, as well as comments on his behaviour.

Thanks for letting me vent!!

Thanks for the hugs!

Yeah, we have thought of all of those things. We do so much thinking and theorising, but it's all just that... theories.

Until we see someone and get tests done, we're just guessing. THAT is what makes it so frustrating and upsetting. Why is it us having to think all this - why is there noone in the medical profession doing this thinking for us?

Oh well, it is what it is I guess.

We switched to HA formula today. I don't think he has a dairy allergy, but he could well have an intolerance. The HA formula is supposed to be easier for babies to digest, without losing any nutritional value like soy etc. He's constipated on the AR formula, so we thought this might be the way to go. Easier digestion has got to be a good thing!

Because it is not so thick, he has already had two feeds of 200ml today, without fussing, and only taking 15 minutes! Yesterday on the AR formula he drank just 600ml all day. We've had to switch to Karicare HA (as S-26 doesn't do HA) but I was pleased to see that, unlike the normal Karicare, there wasn't all the nasty bubbles that seem to cause the wind. In fact it looked way less bubbly than the S-26.

**HIGH HOPES**

Hope the HA continues to go well - good drinking Jackson! I'm so pleased that those feeds have gone well.

I find it somewhat scary that if you weren't a motivated, concerned, active parent, your kid's health would potentially suffer. We had the exact same thing with Daniel - if I wasn't a 'paranoid' parent who had ignored Plunket, we wouldn't have him any more. That why I always encourage people to get it checked out (again and again) if they are concerned. Yep, lots of times it will be nothing, but better nothing and a red face than a very ill child.