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Forum LockedBailey might have autism! :-(

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BaAsKa View Drop Down
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    Posted: 08 December 2007 at 12:54pm
I have had many people comment over the years that Bailey showed signs of autism but it has recently been getting worse so i have looked into it a bit and i think i may have to take him to get checked out! - under the symptoms for babies with autism he had ALL of the 10 or so symptoms and under the child list he has around 70% of them

Does anyone else have a child with autism or have any info that you can share with me please...

TIA
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ElfsMum View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote ElfsMum Quote  Post ReplyReply Direct Link To This Post Posted: 08 December 2007 at 1:33pm
there are other people better qualified to answer..but if you are concerned i would talk to your doc who can refer him or ring up special education and get him self referred...it's a hard one because the autism spectrum is quite broad but mostly characterised by :

'All children with ASD demonstrate deficits in 1) social interaction, 2) verbal and nonverbal communication, and 3) repetitive behaviors or interests. In addition, they will often have unusual responses to sensory experiences, such as certain sounds or the way objects look. Each of these symptoms runs the gamut from mild to severe. They will present in each individual child differently. For instance, a child may have little trouble learning to read but exhibit extremely poor social interaction. Each child will display communication, social, and behavioral patterns that are individual but fit into the overall diagnosis of ASD.'

http://www.nimh.nih.gov/health/publications/autism/complete-publication.shtml

that is the link i got it from..easier than trying to explain in my own words.. obviously it's not what you hope for your child but if he does turn out to have it there are fabulous programmes to help now ... hope you get some answers soon..
Mum to two amazing boys!
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Bombshell View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bombshell Quote  Post ReplyReply Direct Link To This Post Posted: 08 December 2007 at 4:53pm
ask your doctor for a referral to a specialist. You come up a bit to auckland dont you? Can you get a referral to starship perhaps??? or via whirinaki (formerly campbell lodge?) now based in Otara / Otahuhu.

There are different degrees of autism too and different ways of handling the levels.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brenna Quote  Post ReplyReply Direct Link To This Post Posted: 08 December 2007 at 7:42pm
Autism varies a huge amount so I think it is best to see your doctor with your concerns. They will probably get you to complete development and behavioural questionaires about Bailey as this helps them do get an idea of how 'severe' his characteristics are. Autism does commonly affect boys more than girls. I have my fingers crossed for you that it turns out to be a false alarm, but if it is autism (or aspergers) then try not to worry too much as there are amazing people out there to help and support you. I've had experience with both autistic and aspergers children and I've got a fab book about it which explains it more clearly and gives lots of tips and strategies for coping. PM me if you want to have a read
My beautiful 2 girls...nearly 4 and 13 months
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BaAsKa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BaAsKa Quote  Post ReplyReply Direct Link To This Post Posted: 08 December 2007 at 8:16pm
i always wondered when he was a baby why he NEVER wanted to play with toys, he never moved (until he got up and walked at 10ish months!)he didnt roll at all; just layed there staring around, why he didnt like to interact with people or kids, why he ate hardly anything...and then a year ago his speech went back from having an advanced speaking level to not even being able to string a sentence together!!! and when i asked someone about this they said it was normal???, he also does the staring off into space thing, not being able to understand direction, when we call him he looks at us blankly and takes ages to register!...theres heaps more!!

The only thing is that he is not a "slow" kid intelectually he just has communication problems! and he is a somewhat cuddly child (autistic kids arnt cuddly)

I know i need to see a specialist and will be making an appointment on monday, but i just needed to vent and hear others opinions on the subject....
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Spudling Quote  Post ReplyReply Direct Link To This Post Posted: 08 December 2007 at 8:50pm
hey hon, my brother is Autistic and even though I wouldn't trade him in for 100000000 "normal" brothers I also wouldn't really wish the extra hard work he comes with. But man he has made me and anybody who has anything to do with him so much of a better person.
Good luck hon. The wonderful thing about living in the world these days is how much information and support there is available now. I bet there is a forum out there too just for Mums and Dads with kids with autism (not that I would imagine that the people would be half as fantastic as this lot of course, but maybe it would help to chat to people who are going through what you are going through right now)

xxx

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 3boys Quote  Post ReplyReply Direct Link To This Post Posted: 08 December 2007 at 9:47pm
Hi Hon,

Firstly big Hugs to you

My oldest son Josh has a syndrome that has a lot in common with Autism, but sister's son who is four now was diagnosed with Autism at age 2.

I was the first to notice that something was different and supported my sister through the diagnosis.

The best thing to do is to get it checked out as you say, sometimes people can be well meaning with comments but often they can be wrong. Take it one step at a time, check it out and go from there.

I would recommend seeing your GP as a first point of call as they can refer you to a funded specialist in your area. You need the referral to obtain funded specialist services.

I could go on and on here, but won't, if you need someone to talk to just PM me. I would also be happy to put you in touch with my sister as well.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote aimeejoy Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 7:09am
chicky, nothing else to add but I hope the doctor is helpful and you get some answers soon.
Aimee

Hannah 22/10/05
Greer 11/02/08
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susieq View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote susieq Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 9:01am
big Hugs and phone your nearest branch of a group called Parent2Parent they should be able to put u in touch with Mums of autistic children and there are autistic associations in most cities
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 9:25am
Hi my sister is going through this with her 4 year old at the moment he is showing autism signs but it a very cuddly boy, they have had no definite answers yet but it has been suggested that he could have ADD or ADHD rather than autism they are on the waiting list (in the UK) to see a specialist.

I hope you get some answers soon, the not knowing is the terrible part once you know what you are dealing with i'm sure you will feel more in control etc (hope you know what i'm getting at.)

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bizzy Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 9:55am
dont think the worst till you have facts... Lots of kids display lots of aspects of autism but it doesnt mean he has autism. get it checked by a professional and put your mind at ease.

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AnnC View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AnnC Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 11:37am
I can find out your local austism branch if you want to PM me the nearest (or where you live0 not 100% where you are...

I don't want to say too much as I am sure Josh wouldn't want me to (in 'public) but He has aspergers - which is on the spectrum of autisum - we found out when he was 6 years old. Like you always knew there was something 'different' but couldn't put finger on it till the RTLB at primary school mentioned it. thought the worst and felt sorry for both myself and Josh. Now just so you know there is a light - I LOVE josh the way he is - he is the best teenager you can ask for and I wouldn't trade him for the world.

So PM me and we can talk more

Oh and does Bailey go to Kindy - as have a talk with the teachers there cause they can refer you.
Ann


Also Mum to Josh (15) and Brooke (10)
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My son was diagnosed with autism at 22 months.He was a very content baby always smiling and laughing.After receiving the MMR and the meningoccal vaccine at 15 months his whole attitude changed and he will just scream and head butt I still think that the MMR had something to do a lot of chmeicals going into his body and he couldn't handle it.Later on we learnt changing his diet to gluten free has made him a lot better person although we do give him a bit of gluten.At 4 years and 8 months he says a few words like Uh-Oh, Dad/Dadda, Look, Bye, Ball, That One, That Way and Bob(as in Bob The Builder) and has said a few at daycare.He understands everything nothing gets past him, he has a very loving care nature and if you ask him to give so and so a cuddle he will go up to them.He has been going to daycare since he was 21 months old and it has certainly helped with his socialising and he just loves the attention.

Best thing is to take him to a developmental pediatrician or get in contact with the ministry of education.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote kiwigal Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 12:05pm
Signs of autism

Failure to respond when his/her name is called.
- Inability to communicate his/her needs or wants verbally.
- Delays in verbal communication skills and repeating words or phrases instead of normal speech.
- Failure to follow directions.
- Occasionally appears to be deaf even though hearing test results are normal.
- Doesn’t point at objects of interest.
- Doesn’t wave good-bye or hello.
- Stops speaking.
- Unusually forceful tantrums and unusual emotional responses.
- Strange patterns of movement.
- Hyperactive, obstinate, or defiant. Can display overly aggressive behavior or tendencies to self-harm.
- Appears not to know how to play with toys.
- Fails to smile when smiled at.
- Doesn’t make or maintain appropriate eye contact.
- Performs repetitive motions or routines. Wants to have the same daily routine and dislikes change.
- Prefers playing alone.
- Thinks only to get things for him/herself and not others.
- Exhibits more independence than is normal for his/her age.
- Early performance of activities.
- Ignoring or tuning out people. May not like to be hugged or have physical contact.
- Shows no interest in peers and may be scared of crowds.
- Tiptoe walking.
- Will only eat certain foods and have many food allergies.
- General ongoing digestion problems.
- Unusual sensitivity to normal noises, smells and an over or underdeveloped sensitivity to pain.
- Unresponsive to normal teaching methods
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AnnC View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AnnC Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 1:09pm
kiwigal I hear you on the MMR BUt I also think that up until that age they are like "Normal" children its when they get to around 2 that signs show up. I did hear that they had done lots of tests into the MMR and came up with that that didn't cause Autisum - and that Austism is created in the wonb in the first trimester... although most test are always unconclusive and futher studies will be done.
Ann


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Post Options Post Options   Thanks (0) Thanks(0)   Quote susieq Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 1:16pm
Yes AnnC I agree with you that autisum cannot be blamed on the MMR.
I have a friend whose son is aspergers and through the special needs support group I am in with my 21 year old there are quite a few autistic kids.
I also think my daughter has signs of autisum
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BaAsKa Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 2:11pm
thanks ladies! its great to know that i can come on here and get advice and support with stuff like this!

I went through the list of symptoms kiwigal listed and marked the ones Bay displays... (YES - he has the symp and NO - no he doesnt)


Failure to respond when his/her name is called. (YES)
- Inability to communicate his/her needs or wants verbally. (HALF AND HALF)
- Delays in verbal communication skills and repeating words or phrases instead of normal speech. (NO)
- Failure to follow directions. (YES)
- Occasionally appears to be deaf even though hearing test results are normal. (MOST DEFINATELY YES!)
- Doesn’t point at objects of interest. (YES)
- Doesn’t wave good-bye or hello. (NOT SURE ACTUALLY??)
- Stops speaking. (YES!)
- Unusually forceful tantrums and unusual emotional responses. (YES)
- Strange patterns of movement. (YES)
- Hyperactive, obstinate, or defiant. Can display overly aggressive behavior or tendencies to self-harm. (HES ONLY DEFIANT OUT OF THESE ONES)
- Appears not to know how to play with toys. (WAS MOSTLY LIKE THIS AS A BABY)
- Fails to smile when smiled at. (NO)
- Doesn’t make or maintain appropriate eye contact. (NO)
- Performs repetitive motions or routines. Wants to have the same daily routine and dislikes change. (SOMETIMES)
- Prefers playing alone. (YES)
- Thinks only to get things for him/herself and not others. (NO)
- Exhibits more independence than is normal for his/her age. (YES!)
- Early performance of activities. (YES)
- Ignoring or tuning out people. May not like to be hugged or have physical contact. (YES BUT HE IS A CUDDLY BOY BUT ONLY WITH IMMEDIATE FAMILY)
- Shows no interest in peers and may be scared of crowds. (YES, MOSTLY MORE NOW THAT HES OLDER)
- Tiptoe walking. (NO)
- Will only eat certain foods and have many food allergies. (YES)
- General ongoing digestion problems. (YES!)
- Unusual sensitivity to normal noises, smells and an over or underdeveloped sensitivity to pain. (HE CAN TOLERATE PAIN ALOT MORE THAN I WOULD EXPECT HIM TO)
- Unresponsive to normal teaching methods (YES)

some of those things that i marked YES i wonder if its just because he a boy!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 3boys Quote  Post ReplyReply Direct Link To This Post Posted: 09 December 2007 at 8:20pm
Could be,

My second son is not Autistic and he does some of these things, like the 1/2 tantrum we had this afternoon

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Post Options Post Options   Thanks (0) Thanks(0)   Quote emz Quote  Post ReplyReply Direct Link To This Post Posted: 10 December 2007 at 10:59am
I know it's hard, but I wouldn't jump to conclusions, I think a lot of kids could have a number of those things. DH was referred to a psych when he was little because he barely communicated and didn't socialise or play with others and he was fine. The psych said that he just wasn't a socialite. And still isn't!

As for the non-cuddly thing, if you were to go down the autism route, aspergers children are more likely to be quite cuddly. Actual autism is quite severe, but there are a lot of things on the autism scale.

I hope you get some answers soon for your own piece of mind
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Post Options Post Options   Thanks (0) Thanks(0)   Quote ElfsMum Quote  Post ReplyReply Direct Link To This Post Posted: 10 December 2007 at 12:16pm
i was just going to say that.. i have been looking after a girl with autism and she is very cuddly..but she is on the high functioning end of the scale.. as the others say its something that needs to be looked at by qualified people !
Mum to two amazing boys!
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