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minik8e
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Topic: Specialist Appt Posted: 07 November 2008 at 6:17pm |
Hiya, I guess I kind of belong in here at the moment, but then, I really don't know. I had a specialist appt today, and these were the results (sorry, cut and pasted from TTC thread)....
My specialist appt was...hrmm. Disheartening. I am an extraordinarily high risk for miscarriage, both first and second trimester. I got full bloods done, DF has to have some done, and I have to go back next week and have some more, and then more the week after, as well as an ultrasound as I may have a funny shaped uterus. I have clubbed fallopian tubes, my endo is high grade, my cervix increases the risk of second trimester miscarriage, my laparoscopy last year wasn't done properly....do I go on? It's highly likely I have to have another laparoscopy to remove my endo, and I have to get a stitch put into my cervix to try to reduce the risk of second tri m/c. Put simply, from the second I get a BFP I will be under a high risk team with numerous blood tests and scans and even then there's no telling. I've been put on 5mg of folic acid (the recommended dose is 0.8mg for people TTC and pg) and will probably have to start low dose aspirin soon also. So all in all, not a great result because I'm so high risk there's sooooo many things that can go wrong. The lady who took my blood was astounded - my tests meant that she took more blood out of me at one time than she ever has to a person before.
Put simply, our best options for a successful pregnancy are surrogacy or adoption. So all in all, very very very gutting. Suffice it to say, I want lots of cuddles tonight and I'm not cooking.
Fingers crossed we win something in Lotto this weekend, so we can get the laparoscopy done privately instead of having to wait on the public list as well
I don't seem to have a problem with getting pg, I have a big problem with getting them to stick. I dunno, I'm just really gutted at the moment.
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mummy_becks
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Posted: 07 November 2008 at 6:19pm |
Kate that totally bites. I hope you do get your BFP and it sticks. I can't believe they stuffed up your op last year. That is so not good of the surgeon.
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I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived!
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minik8e
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Posted: 07 November 2008 at 6:26pm |
No, the Dr didn't sound thrilled either. The report that followed the surgery was seriously lacking in detail, she needs to know if they did a dye as from the notes it "seems" that my fallopian tubes were actually blocked, as well as being clubbed, but all they did was have a look, write a couple of sentences of notes and then close me back up.
It makes you feel so useless
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busymum
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Posted: 07 November 2008 at 6:47pm |
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VioletStar
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Posted: 07 November 2008 at 8:33pm |
Lots of Kate!
Wow, what a hard day you must've had!
Fingers crossed you get your little miracle from your next BFP
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Formerly Wishin41
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Bree1977
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Posted: 07 November 2008 at 9:48pm |
Kate I really feel for you. I understand your frustrations. It is soo unfair. I really hope a BFP for you. I am on Baby Asprin to prevent MC but still ttc since starting Asprin. This is a huge emotional rollarcoaster for all of us and this forum is a great release. I trust you get some answers and some good news very soon. Big hugs
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EmDee
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Posted: 07 November 2008 at 10:20pm |
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DS 8 DD 6 DS 4 DD 2
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T_Rex
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Posted: 08 November 2008 at 1:22pm |
Kate I'm so sorry that it wasn't better news. My heart goes out to you and your DH.
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Vanillabean
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Posted: 09 November 2008 at 10:12am |
Kate, from what you've said it seems to me it was pretty premature to say that your best chance for children is surrogacy or adoption. It sounds like most of your blood tests aren't even back yet (apparently they always take heaps when investigating recurrent mc cos there's so many different possible causes). Also from what I've heard endo generally causes problems with getting pregnant but not with recurrent mc - so the good news is the endo isn't stopping you from getting pg. I'm guessing the issue with your fallopian tubes is that it makes you at higher risk of having an ectopic? so obviously that is pretty stressful along with having a weak cervix. However, I would have thought that although this makes you high risk, you would still have a good chance of carrying a pregnancy to term if you have the cerclage.
So sorry things are so stressful for you right now - I know how crappy it is to have repeated losses and right now I am feeling really afraid that I am never going to be able to have a live birth but I do beleive there is hope for both of us.
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5x mc, Jan 08, June 08, Nov 08, May 09, April 11
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minik8e
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Posted: 09 November 2008 at 3:33pm |
Hiya VB....yes I understand what you're saying. I think it's just because of the amount and types of different problems I have (there are more than just the ones I have typed up, including family history as I have found out, but have said the main ones), that the chances for m/c are so massively high...not just in the first trimester, but also second, and none of the treatments are 100% effective - as always. The issues just pile up one on top of the other really. And yes, the blood tests have been done, although I still have 2 more to go in the next couple of weeks.
I am lucky that my endo doesn't prevent me getting pg. My specialist has said that endo DOES in fact increase the chances of m/c though - so although I am lucky as it doesn't affect me typically in one sense, it does in the other.
I like to think there is hope....DF's Grandma said yesterday that sometimes there is just a sticky one that happens for no rhyme or reason.....but where do you draw the line? How many losses do you put yourself and your partner through, before "possibly" having that sticky one? I don't know that I am strong enough to repeatedly get pg and have m/c - I would rather investigate surrogacy or adoption. I know that my mum was unable to carry boys due to a chromosomal issue, maybe that's the case with me also - that's being tested at the moment.
I dunno if that makes sense?
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Vanillabean
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Posted: 09 November 2008 at 7:52pm |
I totally know what you mean about wondering how many losses you can go through. This is an issue for me right now too. And it really sux that things can't be easier. I can understand how finding multiple problems can be disheartening. I wish you the best for getting your much deserved child however that may be.
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5x mc, Jan 08, June 08, Nov 08, May 09, April 11
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minik8e
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Posted: 09 November 2008 at 9:28pm |
Wouldn't it be nice if we could just flick a switch and we were pregnant and that was not so fraught with worry...or that there was a limit on the amount of m/c a person could have. I've been reading some books about m/c etc. today that I finally felt strong enough to get from the library and read. They were really good.
The worst thing is that everywhere I look, there are pregnant women, or babies. I was supposed to go to a baby shower for a friend yesterday, but I just couldn't. I guess one day it must get slightly easier.
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mummymegs
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Posted: 15 November 2008 at 3:27pm |
aaawww, minik8e that is awful and I don't kno what to say. I know what you mean about pg woman everywhere.
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