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kiwigal View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kiwigal Quote  Post ReplyReply Direct Link To This Post Posted: 07 April 2009 at 9:43pm

My son has mild autism and non-verbal with very little speech. Things went downhill after the 15 month jabs and was diagnosed at 22 months. We kept in daycare until he started school last year and it has helped him to interact. He has ORRS funding which you can apply for depending on much help they need and a disability allowance through winz. Jacob's disability is so minor that you can't even tell at times. He is a very affectionate boy and loves doing what other kids are doing.

Even after 4 years I still cry and wish things were different for him as he desperately wants to talk but can't get the words out.

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BaAsKa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BaAsKa Quote  Post ReplyReply Direct Link To This Post Posted: 07 April 2009 at 10:04pm
Hi Kiwigal, i too thought daycare would do Bay the world of good (we started him right when we started pinpointed the austism) and it really did do him good!! of course he had his problems but it brought him out of his shell alot more!!

Some people will say that they never realised Bay had anything a miss (if i can put it that way) and others say they knew straight away!!

I didnt realise that he could get a disability alowance... can i ask what they would give that for?

I ask because we got it for Astin to cover his food expense with all his alergies and neocate formula...
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Babe View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Babe Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 8:22am
The Child Disability Allowance is there for any parents with a child that has needs that require special care. Jake has it for his reflux/dairy intolerance (even though hes off formula now and we don't actually have to buy him anything special other than lactose-free milk which is $4 a week). You should be able to get it for Bay and if Astin still has allergies for him too. Its not income-tested and its per child not per family.
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Aquarius View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Aquarius Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 8:30am
hey once again...great if you have the diagnosis! that is your ticket to the following.
WINZ...the basic disability allowance is around $80 a fortnight. it will go up if he has medical needs or any additional costs eg: nappies, bed wetter (laundry costs or even a dryer), allergies or unusal eating needs. they may ask for proof of costs.
we are lucky in the sense that our boy doesnt need the extras so we get $80 fortnightly....no questions asked with proof.

ORRS...through ministry of education...very hard to get/keep which is a shame as it is sooooo important! bloody government!...you will get assigned a special education coordinator who will do all the assessment for you (some are better than others!!!) this will get the child a teacher aide to work one on one with him at kindy/school...they will help him get ajusted and cope..you may not get one to cover all the time , depending on severity. we got ORRS funding for 4 years covering his first year of kindy and first 3 years of school. (only for half a day though)

Respite....yes you can pay your mum to look after him and get reimbursed at the end of the year.or your mum can look after him and if you cant afford to pay up front she will get reimbursed at the end of the year...you choose. the rate is around $73.00 per day. so if you get allocation of 20 days a year...you do the math...

any more questions...i'm more than happy to help.

mum to mr 16 & mr 10
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Babe View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Babe Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 8:44am
Question - has anybody looked into what jim carreys girlfriend did for her son?? The blonde chick I can't remember her name...
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BaAsKa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BaAsKa Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 9:25am
I think his girlfriends name is Jenny McCarthy?? dunno what she did for him though??.

wow there is alot of help out there!!!

I must ring winz and respite then. We were under the impression that respite was something where a stranger came and took your child overnight!!

thanks for all the info ladies!! its greatly appreciated!!!
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Aquarius View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Aquarius Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 11:38am
i thought the same of respite too and almost declined the idea! so go for it... all of the above does take a bit of setting up and what have you but its worth it i think...
Jenny Mccarthy is from the camp of 'Autism can be cured".....i'm not so sure. i think someone will always be autistic but that in no way means they cant learn and improve.
My son now 8 is light years ahead of where we were when he was diagnosed at 2. we were similar to you kiwigal, in that he had hardly no speech at all for a few years but he has great basic skills now and can be quite independant around the home...its out in public that i hate as it is much more noticable, and as they look completely 'normal' people notice alot quicker...he appears soo naughty.
what i think helped us alot........
1. i left work when he was diagnosed. no, we couldnt afford to but he was more important.
2. we accepted his condition with open arms and rather than try and change him, we changed.
3. we have learnt to laugh (yes there were tears)the things he does are amazing. we learn from him.hes honest, straightfoward, takes no crap and doesnt bet around the bush! things alot of us adults need to do.
4. try all suggestions! hey, none may work but ONE might.
5. love the people that love and understand and have time for them. it will dwindle down to very few ..fast.
6.Got to be done as a family.stand strong TOGETHER. i would be a mess and it just wouldnt work if i didnt have Karl (the dad) and Mr 14 (big brother)..we all play important roles and when one of us is not up to it, the others usally are.

others please add some more....

mum to mr 16 & mr 10
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Bizzy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bizzy Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 11:52am
jenny mccarthy used diet - among other things - to help change her son.

i had always been under the impression that asbergers was a mild form of autism (hubbys son was thought to have it) and i am sure that once you all understand it better things will improve. will say too that i hope your SIL bucks up her ideas and she shouldnt be discussing your son with anyone! that would make my blood boil... and with regard to the outburst the other night my thought would be he obviously has been hearing some adult conversations that he shouldnt which has enabled him to use that info in a hurtful way...so maybe now is a good time to watch what you say and when you say and who is in hearing range - something all parents have to learn, as i am finding out (ms potty mouth that i am).

oh and have you been in touch with the autism sociey yet? (thats just me being nosey now).
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BaAsKa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BaAsKa Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 12:08pm
Im not sure if i believe the whole "autism can be cured" thing.....

Im with you Aquarius - i dread going out in public (mostly just the big groups of people!) because that is where Bay will either freak out and hide and go the other extreme and jump around yelling and screaming and im sure to others it does look like hes simply naughty and uncontrolable!!

Bizzy - his words the other night didnt come so much from what we had said "around him" but i tend to joke with the inlaws about things like joking about each of us (mainly MIL and I) being pains in the bums to each other BUT i wasnt thinking about the fact that Bay takes things very litterally and doesnt understand joking so to him it was serious.....something that obviously wont be said around him anymore!!!

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Aquarius View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Aquarius Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 12:09pm
hey we all know what a good diet can do...work wonders for all of us
i tried with Enson and it was the worse and most expensive two weeks yet...he eats like a bird and of course what he did eat was on the no-no list...
i do try and get omege3 fish oil in him (they can come in nice tasting little gel caps) but he is so clever at sniffing and inspecting all that passes his lips! this is known to supplement what might not be the best diet and if any nutrient is the most important it is bound to be this one, as it aids brain function and thinking.
so if casein and gluten free diets are just not gonna happen (especially with the cost of feeding a family these days) try just adding this one supplement.

mum to mr 16 & mr 10
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Babe View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Babe Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 6:03pm
Yep fish oil is great!! I don't know about gluten-free diets as it didn't figure for us (that was over 20 years ago when real farmers didn't do diets lol) but I would absolutely definitely absolutely cut out processed, flavoured food and coloured crap. I can actually dig out the list my parents used and PM you if you like.
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BaAsKa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BaAsKa Quote  Post ReplyReply Direct Link To This Post Posted: 08 April 2009 at 7:19pm
yes i could do with that list!!. We avoid coloured fizzies, cordials etc because it makes him super hypo and unruley!!
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