Had it up to HERE with reflux

Alex is on the maxiumum dose of Losec, and his reflux symptoms have come back

(Silent reflux, no spilling just lots of screaming).

I do EVERYTHING I can to manage it - elevated bed/changetable etc, keeping him upright after feeds, cut acidic foods out of my diet, put him on AR formula, everything recommended by cryingoverspiltmilk.co.nz.

There just doesn't seem to be anything anyone can do about it. I even had him in Starship for 4 days last week, and they didn't do a damn thing to make him better, and in the end just sent us home as is.

I have him booked into a paediatrician (Michael Watts??) next week, but I'm not holding out much hope there either.

Has anyone had a baby with apparently untreatable reflux before? How do I deal with this?

Edited by Mikaela

Sorry, should have said - it's silent reflux, so no spilling, just lots and lots of screaming

Sarah Beth, are you able to PM me the name of your friend's paediatrician?

Kellz, he's 10 weeks old.

It's good to know they grow out of it! In the meantime it's pretty rough though, I just feel awful that I can't make him feel better. I'm his mum, I'm meant to be able to fix things that make him feel bad

Daniel has silent reflux but I've been able to completely wean him off his ranitidine. Going dairy free usually helps lots of bubbas, so does cutting wheat out apparently.

i have no advice but sending big hugs and i hope this doc will be albe to help you soon

Yes i had a silent refluxer. We tried everything. gaviscon, ranitidine, losec. In the end it came down to something in her anatomy maturing. I think we had weaned off all meds by the time she was 14months. there is a natural product that i found a bit helpful called Rhuger a pharmacist makes it. Its ment to get the gut working properly phone number is either 08002rugher 0r 08004rugher.

Our daughter still is very refluxy and off her food (silent reflux as well) when she is sick or teething.

I second what Peace said re the pepti or neocate. Just express while you are trialling these for a week or two and see if they make a difference. If not you can always go back to breast feeding.

Also the dieticians at nutrica are fantastic and even though you arnt a bottle mum they can offer all sorts of helpful advice.

Did you know that There is probably a coffee group in your area that you can attend with other reflux mums?

I hope that you find something that works soon. It is no fun to see our little ones in such pain and not being able to do anything about it. Also it seems that the health profession cant either.

Our main trouble was with feeding and she didnt want to eat. And we did have some respite with feeding via a naso gastric tube.

My blog in those days is still on my bebo page. it was a very dark time in our lives. But things do get better and now i cant believe that our nearly 3 year old is the same girl.

Take care and feel free to PM me

Aw chick, hang in there.  Like Kellz said, it's blimmin hard work having a high-needs baby and reflux like that sure sounds like high needs to me.  Go easy on yourself as much as possible!  I hope the Paediatrician can offer some help.  Ella is on Ranitidine for her reflux (which isn't silent) and it works well for her.  but like people have said, different meds work (or don't) for different babies.  Also, could it be colic giving him trouble as well?  Maybe a few colic 'remedies' are worth a try on top of the reflux treatments?  A friend of mine got relief from colic symptoms by taking her baby to the osteopath.