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sweets View Drop Down
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    Posted: 21 May 2012 at 3:38pm

Hi

Have any of you been through a pregnancy with Factor Five Leiden?

I went through my first pregnany having daily clexane injections through to 8 weeks post baby but I would like to hear from any others who have been through pregnancy with the same thing.

We are going to start trying towards the end of the year and I want to find out what would be best for me to do before/during/after pregnancy as after my son was born my MW told me she had talked to an OB who said that the injections I had may not have been necassary.

I have a big family history with this effecting a cousin of mine and her 2nd born son to a big degree so I want to make sure I give myself the best chance possible.

Would love to hear any stories of those who know anything about this.

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susieq View Drop Down
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Points: 3771 		Post Options Post Options   Thanks (0) Thanks(0)   Quote susieq Quote  Post ReplyReply Direct Link To This Post Posted: 21 May 2012 at 3:54pm
I am a Nana and mother of TheKelly who occasionally post on here, we have factor five leiden in our family too,we have had blood tests to see if we are positive, I dont think we were, but I think an aunt is and other members of our family, know that it has something to do with blood clots, my dad died when I was 8 of a blood clot in his leg while marching but dont know if he had it
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Points: 187 		Post Options Post Options   Thanks (0) Thanks(0)   Quote gossamer Quote  Post ReplyReply Direct Link To This Post Posted: 22 May 2012 at 10:06am
Hi, I have Factor Five Leiden but I am heterozygous, I don't know if you know which you are? I found out when I was about 17 or 18 when I was changing contraceptive pill and I told them about my grandfather dying of a blood clot and they decided to screen by blood just to check..how did you find out? Sorry to be so nosy but I have always thought since then there must be quite a few people out there with it who don't know, and it can be risky!

Anyway with my first baby I saw heaps of specialists just to make a care plan and stuff but they all decided all I needed was the daily clexane for 5-6 days after the birth and then I was on warfarin for 6 weeks post birth.

With baby number two I saw a specialist once just to confirm the plan, he said he didnt think he really needed to see me as the plan wasnt going to change, so I did the same thing with the clexane and warfarin.

Im 17 weeks with number three now and I dont even worry about it, I havent even thought about it yet to be honest as I just figure we will be doing the same thing again.

Im not sure if your factor five leiden is the same as mine though, if its the homozygous type you might need more care than me?



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sweets View Drop Down
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Points: 818 		Post Options Post Options   Thanks (0) Thanks(0)   Quote sweets Quote  Post ReplyReply Direct Link To This Post Posted: 22 May 2012 at 10:33am

Hi, thanks so much for both of your replies

goassamer I also found out when I was starting contraceptive when I had just turned 16. Because I knew other family members had it I asked to be tested, I then had an appointment with a specialist in Auckland and he explained it all to me BUT I never wrote it down or anything like that so I don't actually know if I am heterozygous, homozygous or both. I can't imagine it would be both as my Dad is from the Islands and there is a very slim chance he would carry a mutated gene.

I'm not really sure who I need to talk to about it and even how to go about getting a referal or anything like that to talk to someone about it. My GP maybe?

I've read through other forums online (most seem to be in America) and there seems to be so many different plans given to different woman I'm not sure what/who to believe. It doesn't seem like there has been a whole lot of research into FVL and pregnancy.

My cousin who also has FVL has such a horrible near death experience with her 2nd child, and they believe that it was caused by a clot in the cord. This scares the hell out of me and makes me wonder if I should just do it the same the 2nd time around.

Conrats btw on your current pregnancy

 



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