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blondy
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Joined: 19 November 2007
Location: West Auckland
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Posted: 29 July 2010 at 8:39pm |
Kim - in the end I simply asked for a referral to see an allergy specialist, as I felt I wasn't being listened to  It did mean we had to pay to go private, but you could also be referred to go on the public list, but would have to wait.
You can insist for a referral, and if your GP doesn't want to do it, then go see another GP.
GP's can order the tests, but might need some convincing  I think the trick is going in confident, having done your homework, and being clear about what you want to happen
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AuntieSarah
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Joined: 19 April 2007
Location: Hastings
Points: 1442
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Posted: 30 July 2010 at 4:27pm |
Kim we've seen a specialist too which was great - because even though I have an awesome GP who is really onto it she could only order a few blood tests, whereas the specialist ordered a whole heap of them. (they cost lots so the GP didn't feel she could order too many without getting told off lol). If you have health insurance that covers your bub that should cover the specialist - our Southern Cross policy does
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Kimnthekids
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Joined: 25 February 2010
Location: Waitakere
Points: 893
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Posted: 30 July 2010 at 7:55pm |
Ah we do have health insurance, might drag out the policy tomorrow and have a read, never thought of that!
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AandCsmum
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Joined: 13 May 2008
Location: Palmerston North
Points: 8432
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Posted: 30 July 2010 at 8:23pm |
This may be blunt, I don't know !
If your child has ezcema. They ARE having a reaction to SOMETHING.
What that something is, is up to you to figure out. Drs aren't that great on food intolerances.
Firstly cut out dairy. Maybe then cut out Soy & wheat. Introduce back in those things and see if there is a reaction.
If this makes no difference you then have something to go to your Dr with.
You can make your childs life easier than what you had. You have the knowledge that was lacking 15-20 year ago.
It is not normal for your child to have eczema, it is not easy to work out what is wrong. I'm still trying to figure it out myself.
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Kel
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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HuntersMama
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Joined: 09 November 2008
Location: Auckland
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Posted: 31 July 2010 at 10:33am |
I finally got a specialist referral by demanding my GP make a referral. He knows I work in the health field too, so doesnt usually muck me around. We had been quite a few times before that though.
I was sick of people saying the childhood ezcema is common blah blah blah. Hopefully we will get our appointment soon.
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MamaT
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Joined: 07 November 2008
Location: Nelson
Points: 3149
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Posted: 31 July 2010 at 2:18pm |
DS excema is not improving any at all and its starting to bother him, he's constantly scratching at his head and back and anywhere else he can reach.
I have decided to cut wheat out of diet and see what (if any) difference that makes and will then see my doc. Last time I saw him about it he gave me the "normal baby excema" line too, I tend to find with my Doctor that if I do all the research first and go in telling him what I think he usually agrees.
Now to find dairy and wheat free foods
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yermasyada
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Joined: 01 November 2008
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Posted: 01 August 2010 at 9:31am |
Poor wee Roo's face is really bad this morning  Weeping all over the place
I think I'm going to try going gluten free for a week to see if that make any difference. Is a week long enough to be able to see any change? I know with dairy you've got to give it at least 6 weeks. Is it the same with gluten?
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blondy
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Joined: 19 November 2007
Location: West Auckland
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Posted: 01 August 2010 at 3:29pm |
Milliemoo - I don't think one week would probably be enough, I know it took 3 weeks for the dairy/egg to get out of my system with Nat. By 6 weeks, you could have gone to a specialist and got the testing done, and know for sure whether it is gluten or not. I hope that doesn't sound too mean!  It really is worth pushing your GP a bit further to get testing done, or refer you.....otherwise you could be doing a huge diet change for no reason.....and then if it's not dairy or gluten, it could be egg, soy etc etc.
Once again, JM2C and hope I don't sound too harsh, but trying to cut things out without really knowing if it will make a difference might only make life harder for you all! Big hugs though, it's such a drama to go through regardless.
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yermasyada
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Posted: 01 August 2010 at 5:24pm |
TBH, I'm still pretty much with the school of thought that it's just one of those things he'll grow out of  It's just this morning it looked so bad I felt I should try something else.
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AandCsmum
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Joined: 13 May 2008
Location: Palmerston North
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Posted: 01 August 2010 at 8:10pm |
When we cut wheat out with C, I noticed within a day or two that his rash wasn't increasing. It took around a week to start healing. 3 weeks later he's still not right but man is his skin far far better.
The problem with tests, is that they might show nothing. C has skin pricks and nothing showed up yet by removing the main allergens he improved. This means it's either non Ig-E allergy or Food intolerances.
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Kel
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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AandCsmum
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Posted: 01 August 2010 at 8:12pm |
Also if you want to get the gluten testing done, gluten needs to be in the diet.
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Kel
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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blondy
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Joined: 19 November 2007
Location: West Auckland
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Posted: 01 August 2010 at 9:21pm |
fair call about the testing  I guess we were lucky in that it was relatively 'simple' that her allergies were related to dairy and egg, and within 3 weeks of me cutting those out, the eczema and everything else had gone.
The only reason I was pushing the testing so much is that we spent months with no answers (and the gp fobbing us off with creams etc), and had I gone to the specialist and got testing done earlier, for Nat that would have been an 'easy' answer so much sooner.... but I do know that the answers aren't always that easy.
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AandCsmum
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Posted: 01 August 2010 at 10:32pm |
It was weird Blondy I tried pushing for testing with the Paed & I was fobbed off. Mind you at that point I'd mostly "Fixed" him, until we started to introduce more solids which brought on another round of reactions.
Best thing to do Milliemoo, what ever way you go. Take in evidence of research. Then they can't fob you off.
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Kel
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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AuntieSarah
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Location: Hastings
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Posted: 02 August 2010 at 12:43pm |
Ooh also, a great tip I got was to take photos of the eczema and any other reactions so that you can show the doctor/specialist. (especially if it's cleared a bit by the time you get to the specialist!)
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yermasyada
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Posted: 02 August 2010 at 1:10pm |
ooohhhh good idea about taking photos
OK, so I've decided not to bother with the gluten free thing just yet. His skin was sooooooooo much better this morning. It's just so random. Anyhooo I've picked up some new cream from the chemist and I'm really hopeful. It's the first cream that I've tried on him where *my* hands have felt super soft afterwards (I have skin like cheese graters  ) So fingers crossed
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yermasyada
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Posted: 03 August 2010 at 9:39am |
OK, I woke the boy this morning and I nearly burst into tears his skin was so bad I just don't understand it. Yesterday it was really clearing up and I was convinced that this morning it would look great I've got a new theory I'm testing today, which seems completely mad to me, but also makes sense I'm wondering if it's the organic muslins that I use ? I say this because he's gotten a lot worse since sleeping in his cot, which is when I started to put a muslin under his head to sleep. So he has contact with the muslin for min 16hrs per day if we're at home. On top of that, I use the muslins as a wee cushion when he's feeding, so again more direct contact. Yesterday, we we're out all morning, so very little contact with the muslin, and thinking about it, his skin does always seem a lot better on days when we've been out and about in the pram ie: not sleeping on the muslin.
So I'm trialling not using the muslins to see if that helps. If it doesn't, I'm going straight back to the docs and demanding some allergy tests
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Anonymous55
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Joined: 28 January 2010
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Posted: 03 August 2010 at 9:47am |
Mmoo, even tho it is totally not the same but Nina has her constant bum rash and it's soooo random as well. I really can't work it out.
It's different each nappy change! And it doesn't seem to matter how much fresh air, what cream etc
It's quite eczma-yish as well.
I know it's not ideal but have you been offered a hydrocortison cream by the doc? It's not really a solution especially as you're unsure what's causing it. It might give him a bit off a break tho if he's bothered by it at all??
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blondy
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Posted: 03 August 2010 at 9:49am |
You poor thing (and poor wee boy too!) Could it be the type of washing powder etc used on the muslins? The face tends to be more sensitive to these things, so may be reacting when the rest of his body doesn't (assuming clothes etc washed the same way).
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