QuoteReplyTopic: Scaphocephaly Posted: 04 July 2011 at 9:37pm
Hi, just wondering if anyone has heard of this? my baby has just been diagnosed with it and we have been told that there will be an operation coming up but otherwise clueless as to what will happen to him, during after and into the future. Please can you make contact if you know about this condition, how long healing takes, is bruising bad, how long you can expect to stay in hospital etc. We were diagnosed three long weeks ago and are still waiting to hear what happens next, follow up sems to be taking forever, I have tried ringing various spcialist and hopsitals, but they just keep saying, we will be in contact with details, im geting anxious.
look forward to hearing from someone
Sammy
I'm so sorry, I don't have any experience with this condition, but I hope everything goes well with your son's procedure. It's really awful having news dumped on you like that and then being made to wait with no support or information
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