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Andie
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Topic: Allergies. Hmph. Posted: 20 August 2007 at 11:27am |
In pondering what sort of cake to make Ella for her birthday, I figured any dairy-free, wheat-free, soy-free, egg-free cake is likely to taste FOUL. If you've tasted rice-flour in baking you'll know how gross it is! Thing is, we know for sure that Ella's highly allergic to all things dairy. Excluding wheat, soy, nuts, eggs, seafood (the usual suspects for severe food allergies) is what we've been told to to in case she's allergic to them, given that her reaction to the dairy was life-threatening. I'm so bloody sick of not being able to offer her most foods (not that she's really eating her solids these days), given that most of it is 'just in case...'. We were told she could have tests done at a year old to see what else she may be allergic to. But I'm wondering how some babies get theirs done earlier? It has been done... how'd you get it done earlier? I guess this topic is mostly for Emma, Aimee and Kellz, but there's others out there who've also had the tests done and I'd love to hear from you all. Honestly, I'm considering just rubbing a piece of (dairy-free) white bread on a patch of Ella's skin a few times, then just offering her some if she has no probs with the skin. Sick of the public health system!
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Andie
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busymum
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Posted: 20 August 2007 at 11:56am |
As you know I don't have much experience with allergies but you don't have to have birthday cake you know. Can she have marshmallows? Arrange them into a 1 and put candles in each. Maybe put some icing blobs on top for colour. Get creative!!!
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Kellz
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Posted: 20 August 2007 at 12:21pm |
 Andie. Yeah Im finding the health system frustrating too. The Paed said he just wants us to wait 3 months to re-do the RAST blood test, and didnt see any value in doing a skin prick test,...how about the fact that it will make it a lot easier for us to feed her?
Because Isla's first RAST test at 5 months came back negative, the Paed said we were ok to slowing try her on some of the "high risk" food. So she has wheat stuff fine now. If u can call having eczema all over her "fine"
Sorry I cant be much help, but I do feel for you. Why cant babies be simple?!
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Maya
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Posted: 20 August 2007 at 1:35pm |
Stamp your feet hard and they'll do what you want Andie. And if it helps, I can come with you to the doctor when I'm down there. I got so messed around with Maya and it was completely unfair on me, but also on her coz there was so much trial and error that she ended up with gastric bleeding
I'd trial her with wheat if I was you. Just a little bit of bread with olivani or something. If she can tolerate wheat it opens up a whole new world of things. I found being egg/nut/dairy/soy free relatively easy and I have some great recipes I can send you, but when we were avoiding wheat with the gremlins it was dynamite.
Start out with just a tiny bit, say a crust of bread or something, then gradually increase the amount offered over the course of a week and after 7-10 days you should know if anything is going to happen. Of course if she has an immediate reaction you'll know, but intolerances are a little slower to shw up.
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 Maya Grace (28/02/03)
 (02/01/06)
  The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
 Lil miss:Chiara Louise Chloe (09/07/08)
 Her ladyship:Rosalia Sophie Anais (18/06/12)
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aimeejoy
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Posted: 20 August 2007 at 1:38pm |
Do you have a good GP who understands allergies? Ask them for a lab form to get a RAST (blood test) done. The RAST test is more expensive (not for us to pay tho!) but is more accurate than a skin prick in littlies. Plus you would prob need to have the skin prick done at the hospital cos Ella is high risk for anaphylaxis again.
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Aimee
Hannah 22/10/05
Greer 11/02/08
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Anna
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Posted: 20 August 2007 at 1:41pm |
Andie, I wish I could help ya but my doc is cr@p at helping out and I know nothing about allegies! Maybe just do what Emma would do and keep on harassing them til they help you out (go Emma! That is meant in a nice way!)
And even if she can't have a typical birthday cake I am sure she won't care! She'll get spoiled anyway!
Also, I found this when I was looking for an eeverything-free cake recipe? Haven't tried it but maybe worth a shot?
Cake recipe
Edited by Anna
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Anna
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aimeejoy
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Posted: 20 August 2007 at 1:45pm |
Come over to our playgroup on Friday 7 September. Will probably just be at my house with 2 or 3 others. Laura should be able to help you out with the baking cakes and you can look through my cookbook.
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Aimee
Hannah 22/10/05
Greer 11/02/08
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aimeejoy
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Posted: 20 August 2007 at 1:49pm |
I agree about trying wheat. You know what to look out for with an immediate reaction (which may happen on first or second taste) and like Emma said, its much easier being able to have wheat. The classic foods that little kids are life threateningly (is that a word?) allergic to are milk, eggs and nuts. Though some do get an anaphylactic reaction to the others as well, but not as many. Good luck.
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Aimee
Hannah 22/10/05
Greer 11/02/08
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Andie
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Posted: 20 August 2007 at 3:35pm |
I was going to PM you and say I'd make it to next month's meet too... count me in! (yaaaayyyyyy for meeeeee). I hadn't realised the GP could order a RAST - thanks, I'll ask (beg/demand) for that next time. We were told that any skin prick ones and any food trials would have to be done in hospital  . To be honest, it just doesn't 'feel' right to keep her away from all things wheat - I just don't think she has an allergy to it (call it a gut instinct thing). But then I'm cautious, because I never saw the milk allergy coming so had no hesitition in giving her that one bottle of formula. So you just don't know. But then - there is that piece of research that says that for parents with a child with anaphylaxis, the deterioration in their family's quality of life is more because of the perceived risk of the allergy and the steps that have to be taken to prevent the child becoming sick, rather than the health effects of the allergy itself. Anyway, I'm thinking out loud so I'll stop now, and check out that link to Anna's recipe
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Andie
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Andie
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Posted: 20 August 2007 at 3:38pm |
mmm... cake... Wicked site... thanks!
Actually I make this yummy choc cake for Jono (he takes some to work every day and isn't sick of it yet!) with vinegar in it - sounds like an odd mix but mmm is it good. Not dairy or wheat free, but delish.
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Andie
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aimeejoy
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Posted: 20 August 2007 at 3:52pm |
Yay! Will pm you with the details a bit closer to the time  And you are so right about the quality of life thing
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Aimee
Hannah 22/10/05
Greer 11/02/08
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Anna
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Posted: 20 August 2007 at 6:39pm |
Also, I am sure you know this but when I was baking allergy free I found out you could sub olivio spread for butter and get egg replacements? Just another thought, sure you know these things already!
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Anna
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Posted: 20 August 2007 at 6:49pm |
Emma gave us a recipe for a everything free cake and we used it for his 1st b'day.
We are waiting to have the skin prick test done, had to delay it a week as my wee man is sick again! I stamped my feet to be referred to a paed as his blood test came back negative and gp said he is fine...so try mik etc and he had a huge reaction.
I now really believe in mother instinct! It pays off at the end of the day.
Sorry not much help, but I hope it all works out for you!
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aimeejoy
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Posted: 20 August 2007 at 9:04pm |
Andie I had a lookthrough some recipes tonight and found a few cakes and things that are wheat, dairy, egg and nut free but dont use the non-wheat flours. There was a nice sounding apple cake. If you want them before you come over, I can photocopy and send over.
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Aimee
Hannah 22/10/05
Greer 11/02/08
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Andie
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Posted: 21 August 2007 at 9:34am |
Thanks - no rush though, I'll grab em when I see you next  . I'll trial Ella on some bread some time before I launch into baking for her, because knowing whether or not she's wheat tolerant would make a BIG difference to pretty much every baking recipe out there! ...not that the child eats much anyway!
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Andie
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