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Anna View Drop Down
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    Posted: 18 July 2007 at 7:39am
I know it may seem that I only come on here to whinge and ask for help but I really do appreciate all the help round here!!

Kaia has been disgnosed with silent reflux and has been on losec for a month. It took soooooooo long to get a decent disgnosis and get someone to listen but I am still not convinced this is right.

She is better, but I still have a lot of the same problems with her but they are ... not as bad as they were.

My question is for those mummas with kidlets on losec, did you/do you find that it makes everything better or does it make the symptoms a little bit better?

And if it does make them all better then what avenues can I explore next? I was thinking food intolerances or allergies but the doc a couple of days ago basically told me that was rubbish and wrote out the script for losec...
Anna

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Anna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Anna Quote  Post ReplyReply Direct Link To This Post Posted: 18 July 2007 at 7:40am
When i say not AS bad I mean, she stills hollers for hours on end but instead of it being every day it is only two or three times a week. She is still the crappest sleeper but that may be habit now?

She still seems uncomfortable, just not as bad as she used to?

Am I making any sense?!
Anna

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AlyAyde View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AlyAyde Quote  Post ReplyReply Direct Link To This Post Posted: 18 July 2007 at 8:14am
losec was not the be all and end all for us but we are a rare case.

Usually if you are still having problems its to do with getting the doseage right. Do you have an appt with your paed soon?

Before going on losec ranitidine etc it is reccommended that you try and rule out the food intolerences. top of the list being dairy, then gluten and wheat.

Hope something starts to work for you soon


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Anna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Anna Quote  Post ReplyReply Direct Link To This Post Posted: 18 July 2007 at 8:48am
Thanks Maria!!

It is so frustrating 'cause the doctor on Monday basically told me it is not worth trying to take diary, wheat or gluten out of her diet! It has never been suggested to me that it oculd be allergies or food intolerances, I only came to that conclusion cause I am getting desperate!

Perhaps it is time I went on the hunt for yet another doctor to help me!

Is there a dairy free formula available from the supermarket?
Anna

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AlyAyde View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AlyAyde Quote  Post ReplyReply Direct Link To This Post Posted: 18 July 2007 at 9:26am
No theres not. but if you have a good gp or practise nurse they can phone nutricia for you and they will post you out some sample tins of either neocate or pepti jnr


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Post Options Post Options   Thanks (0) Thanks(0)   Quote FionaS Quote  Post ReplyReply Direct Link To This Post Posted: 18 July 2007 at 11:17am
Hi Anna. Does she have any other symptoms of allergy e.g. ezcema, funny stools etc?

You could consider getting an allergy / intolerance test done by a naturopath. Rebekah Paddy from Mother-well is excellent. A cranial osteopath would also be a good idea...Elle improved a bit after seeing one (she is still unsettled and prone to tears but she is not as tense and no longer holds her fists clenched etc).

My girl sounds a lot like yours. We too tried a number of reflux meds but none really helped so we still don't really know if reflux is an issue or not. She also has patches of inconsolable crying but our osteo etc thinks it's migraine headaches which run in the family. We've tried many many many avenues with our girl but it looks like it is just some odd combo if minor discomforts (not sure what) + temperament and hence we just have to wait it out and she will eventually come right - that is what they say anyway. I have known a few little ones who are similar and they seem to get a lot better once they are on their feet walking.

Keep perservering though as it is definately worth pursuing every possible avenue with doctors etc to ensure there is nothing "medical" that can be helped.

Hugs!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Peace Quote  Post ReplyReply Direct Link To This Post Posted: 18 July 2007 at 12:57pm
Hi Anna
I am a reflux mummy as well!
First of well I want to say YAY for getting your wee one diagnosed. It can be a hard road. Second of all I want to say that it took Olivia around 7 weeks to get used to the Losec. She had a lot of damage done by her reflux and that had to take some time to heal before we saw any 100% type progress. In saying that though, Olivia did seem much better the next day within starting Losec. I think the crappy day sleeping habits that sadly come with this disease are just that - habits.
Not happy to see you are "just on it for the month" and that they haven't given you some infant Gaviscon to help thicken the contents of baby's tummy so the reflux reflex is less. I honestly think that they faster the recovery is from the damage that reflux does to the oesophagus, the better off our wee muffin's are.
Well best of luck on your reflux journey
DD1 May 2006
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Bombshell View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bombshell Quote  Post ReplyReply Direct Link To This Post Posted: 18 July 2007 at 8:11pm
it sounds to me like your doctor is using silent reflux as a cop out excuse for not knowing what is going on....in reading a lot on here and other sites it seems like silent reflux is becoming more common and in some cases may be a wy of giving mums an answer to make them go away and think they know what is wrong with their child....same as ADD was a few years back etc....

can you see another doc or pediatrician etc???
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Maya View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Maya Quote  Post ReplyReply Direct Link To This Post Posted: 19 July 2007 at 9:04am
I agree with BS Anna that seeing a paed might be a good idea, just to get another perspective. Definitely try gaviscon coz it may help and can be used with the Losec.
You could try switching Kaia to Karicare HA which is an extensively hydrolysed formula available from supermarkets/pharmacies so if it is a dairy intolerance that should give you some results. It's expensive but if it does help you can go back to your doc and get a script/funding number organised for Pepti Jnr which is similar and available much cheaper on prescription.
I must come visit soon and offload the baby legs!
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