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FionaS View Drop Down
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    Posted: 23 January 2009 at 4:16am
Most of the regulars on here know my daughter has had severe sleep problems for about a year.

Today, she has been awake for just over 18 hours. It is 4am Fri and she has essentially not slept since 8am yesterday (Thurs) morning.

Here is how it started. Her usual time awake is 1am to 5am each night.   She is super happy and loud when awake, lying flat on her back imagining goodness only knows what and being very noisey. She will eventually go back to sleep with no calling to us or crying. The last few nights she's been awake from 4.30am to 7 then wanting to sleep in for a few hours. I have to wake her every day to keep any form of routine. If left, she'd sleep until 9.30am, nap for 3+ hours in the day and be awake again all night.

Yesterday I woke her at 8. She was tired, sucking her muslin, rubbing her eyes etc all morning. Went down for a nap at 12.30. Only slept 40mins - usually, if left will do 3 hours. By 7 was a mess so went to bed. Slept 40mins then woke screaming thanks to night terrors from being over tired. Settled her, she slept 30mins then woke super super happy. She has been wide awake, flat on her back squealing and giggling insanely and singing from 10pm to now...4am. This is her worst night yet.

She has sometimes slept through the ngiht for up to 2 weeks in a row and yet this insomnia always returns and each time it is worse. Careful record keeping of her activities, food etc shows no reason for the times she sleeps through. She really seems to have a body clock / circadian rhythm disfunction. She is just not sleepy at night.

I've been awake all night and hardly slept the last few nights due to her noise. I hear her through earplgs. I have to go away today to cater for 30 people at a camp this weekend...I can not pull out. I am 12 weeks pregnant on top of it all. I'm scared!!

Doctors have always just laughed it off or shrugged their shoulders. She used to cope quite well with the insomnia but now she is very tired during the day. This can mean wanting to sit and suck her muslin lots, having dark circles and/or being very short-fused. Other than that, and being particularly strong willed and imaginative, she is perfectly normal during the day.

Surely this lack of sleep of hers is getting excessive? Surely SOMEONE needs to listen to us now? In the past docs, paeds, sleep specialists have all just strugged their shoulders and told us they don't know. Sedatives have been refused due to her age (phenergan doesn't work). Where do I turn? Surey this can not go on...surely it will affect her development??

Sorry to rant.
Mummy to Gabrielle and Ashley
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ellen View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote ellen Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 6:57am
I'm no help - was gonna suggest sedatives for yourself but see you're pregnant. I just couldn't read your post without replying - big hugs - you sound like you're doing an awesome job but it can't be easy. Sleep deprivation is the pits!

Hope she settles back into some sort of routine. Have you got anyone that can help out through the day so you get some sleep?
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james View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote james Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 7:10am
aww hun i relly had hope her sleep props had worked themseleves out big hun
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LeahandJoel View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LeahandJoel Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 8:56am

Wow, I really feel for you, I thought it was bad enough in our house but you would think it was great here compared to what you have. Phenergan does nothing here either, although someone did suggest to me to try giving it in little doses throughout the day instead of one big dose at bedtime, apparently thats what worked for them.

 Big hugs for you, I hope you are able to get some rest yourself soon.


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baalamb View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote baalamb Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 9:07am
Is there anything natural/herbal that is a sleep remedy? I mean, anything is worth a try at this rate. Sorry you're having to go through this without getting any answers.
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Snappy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Snappy Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 9:59am
Have you tried a homeopath/naturopath? They are about $95 a visit but Im sure it would be well worth it.
My aunt took my cousin to one because she was demanding, grizzly and not sleeping well and she was given a remedy that worked a treat.

I really feel for you
Mummy to two beauties... Formerly Kaiz.
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kiwikid View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kiwikid Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 10:36am
I have nothing helpful to offer but just wanted to say **hugs** I think you are amazing, if Hayden does more than one wake up I feel shattered the next day, hard work!!!!

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noisybaby View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote noisybaby Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 11:17am
I don't know where you live but have you tried a Craniosacral Therapist. Have a look on line at the yellow pages website or in your phone book. We went to one for our wee girl who had trouble getting to sleep and was a real sensitive baby but it helped. Or like someone else mentioned a homeopath or naturapath could be worth a try. Go to a local health food shop and ask if they recommend anyone
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jaz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jaz Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 11:58am
How much physical activity is she getting during the day?

Brooke never needed much sleep and the only way I could get her to sleep more than about eight hours in a 24 hour period from about a year old was to physically wear her out.

I recall at about 18 months thinking nothing of taking her for a 1km walk after dinner, with her walking that whole distance. In addition she had a long period of time at the playground or similar each day and as we have good indoor/outdoor flow she could easily go outside and use the swing, slide, seesaw, sandpit, ride her trike or just run around.

When you have a townhouse and the living area is upstairs you don't get a lot of opportunity to wear yourself out.

Just a thought!
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jazzy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jazzy Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 7:51pm
Hi FionaS, don't know if I will be any help, but have you looked at her diet, and set her sleep times to suit you, may take awhile.
Get her up at the time you want and cut down day sleeps, wear her out at end of day, nice bath, quiet time no toys blah blah, then into bed & thats where she stays till morning. Also does she have toys or lights in her room, that may hinder sleep?

Time to get tough, as you will be having another soon and need a good routine so you dont get to tired.

I learnt things the hard way, & had two close together so know how stressfull it can be.

I also went to plunket they had a centre where you can go & put baby to bed & have a sleep & they help with suggestions on sleep patterens, not all easy to do. But the more info you have the more choices you have. And always make the best one for you.

Good luck you will get it sorted, hopefully before 4 hr feeds with baby.
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LJsmum View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LJsmum Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 8:02pm
Hi i really feel for you.... have you tried a naturolapth you may have already. I'm not sure where you are in Auckland but there is a naturolath at mother well in mt eden who is excellent. Check out their web site www. mother-well.co.nz

Mother -well specialise in woman and children's health. Maybe a herbal or mineral supplement could help.???

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Kellz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 8:47pm
Yeah I would suggest a naturopath. All the guy did was ask me total history from beginning of my preg onwards through Isla's life ( I took her at 21 months), and he gave us a diet to try, no supllements or any other therapy just diet changes and she was like a differnt kid in 2 weeks- we went for her recurrent skin infections in her eczema as the main reason, but her unsettledness and terrible sleep settled dramatically too.
Apparently cheese and pork are bad for night terrors/nightmares.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote weegee Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 10:59pm
Hugs Fiona, you must be at your wits end. I know you've tried dozens of things so really hope the professionals can give you some answers.

And I hope she crashed today!

Mum to JJ, 4 July 2008 & Addie, 28 July 2010
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Bobbie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bobbie Quote  Post ReplyReply Direct Link To This Post Posted: 23 January 2009 at 11:15pm
Aww Fiona IIRC you've tried pretty much every avenue haven't you?


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Post Options Post Options   Thanks (0) Thanks(0)   Quote beachbum Quote  Post ReplyReply Direct Link To This Post Posted: 24 January 2009 at 12:10am
Oh you poor thing.

I haven't had huge sleep problems but I like others suggest a naturopath or Bach flowers.
YOU might need a special Bach flower rememdy so you feel you can cope better with it, believe me it helps. I had 2 toddlers and myself on them at one stage.

Do you think she can lie still enough for some Osteo?

You definately don't need this while you are pg.

It'sa huge shame that "experts" are less than helpful.
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FionaS View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote FionaS Quote  Post ReplyReply Direct Link To This Post Posted: 24 January 2009 at 8:31pm
Thank ladies. Yes we have tried naturopath, cranial osteopath...everything! And yes jazzy we have a really good routine, always have had. And yeap Jaz she gets loads of physical exercise, we go out twice a day to parks etc and when at home she plays with the boys up the back in their big yard...and we are about to move into a big house with a big backyard.

My GP phoned the on call Psychiatric Paed and she immediately said that she has a sleep-wake dysfunction / reversal. Sometimes linked with ADHD, sometimes just a problem in it's own right. She will need to go through a very odd sleep programme through the hospital to try and re-set her clock. Very odd but hopefully it will work (and hopefully it's not part of adhd!)
Mummy to Gabrielle and Ashley
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LeahandJoel Quote  Post ReplyReply Direct Link To This Post Posted: 24 January 2009 at 8:57pm

Hopefully that will help sort the problems out, and I hope you can get it done before the baby comes too. Good luck to both of you, I hope it works


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jazzy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jazzy Quote  Post ReplyReply Direct Link To This Post Posted: 24 January 2009 at 9:03pm
Happy to hear someone is helping you out. Good luck to you & your family & for the new bubby.
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ellen View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote ellen Quote  Post ReplyReply Direct Link To This Post Posted: 25 January 2009 at 8:15am
That's great that you've had a referral and hopefully the sleep programme will do the trick. I think anyone who manages to function on continued broken sleep is amazing as I sure can't - so big ups to you. Good luck.
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fire_engine View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote fire_engine Quote  Post ReplyReply Direct Link To This Post Posted: 25 January 2009 at 11:05am
Great that you've got the referral now Fiona - hope that it works and you can get some decent sleep yourself. You've done amazingly well to survive.
Mum to two wee boys
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