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Andie View Drop Down
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    Posted: 21 February 2006 at 12:16pm
Hi,
I'm new to these forums and so far find them pretty interesting. I'd like to hear from other women who have M.E. (Myalgic Encephalomyelitis, a.k.a Chronic Fatigue Syndrome), and have combined this with PREGNANCY. I am 8 weeks into my first pregnancy, and it is about 5 years since I most unfortunately developed M.E. - I haven't been well over any of that time. I have had one significant relapse (almost back to square one) over this time, and am still in the long process of recovering from that, however I somehow feel 'better' since just before conceiving this baby (despite the sudden aversion to all foods but carbs... there goes my 5+ a day kind of diet for now!). I would love to hear from any other women with a similar experience, or with the wisdom of hindsight from a similar road that I'm walking.
Andie
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daikini View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote daikini Quote  Post ReplyReply Direct Link To This Post Posted: 21 February 2006 at 12:22pm
Hi Andie, welcome to Oh Baby.

I'm Becca, I have 2 children - a girl, Kiya, who's nearly 5; and a boy, Josiah, who's 9 months. If you go to General Chat, there's a topic called Let me introduce myself where you'll meet the regulars.

Sorry, can't help with the ME, but I wish you all the best!
Becca, mum of 2 girls & 3 boys
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BikeBaby View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BikeBaby Quote  Post ReplyReply Direct Link To This Post Posted: 11 April 2011 at 7:05pm
Hi Andie
I know this is an old post, it came up when I did a google search for ME/CFS forum. How did your pregnancy go with ME? I would be really interested in how you got on as I am 24weeks pregnant with first child and also have ME/CFS and to be honest starting to get a little worried I won't be able to cope with a baby and how I will cope with birth. Would also just be nice to be in touch with someone who has ME and understands it.
Would be great to hear from you!
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RachFizz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RachFizz Quote  Post ReplyReply Direct Link To This Post Posted: 12 April 2011 at 3:04am

Hi Bikebaby, I started a thread in general chat a while ago about dealing with CFS/fibro (I have fibro) it wasn't specifically about pregnancy but there may have been some helpful comments in there.. I'm sure any of those ladies would be happy to talk to you about how they coped/are coping with pregnancy & children. AFM, I've only just jumped on the TTC wagon, but when I am pregnant I would love to have people to talk to who have this problem to cope with on top of pregnancy!

Sometimes I think I'm crazy for wanting to try when I'm already so fatigued, but I feel like it'll be easier as this age than later on..

Best of luck with the rest of ur pregnancy

TTC#1 since Apr11
On hold for study!

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Chickoin Quote  Post ReplyReply Direct Link To This Post Posted: 12 April 2011 at 11:29am
I don't have personal experience but my best friend had ME for many years. After she had #1 she was heaps better. She even got a cold and it lasted a few days instead of a few months! She didn't really get ME sick/tired during both of her pregnancies, although I think the 2nd one was a bit more tiring as she got morning sickness (and had a toddler to chase all day)
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Andie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Andie Quote  Post ReplyReply Direct Link To This Post Posted: 12 April 2011 at 4:24pm

Hi Bikebaby!

(*and big thanks to Kelda for letting me know there was a question on here!).  I'm not on this forum these days, but boy, did I find a ton of support on here back in the days when I was!  So I'm very grateful to the site for introducing me to some very cool ladies. 

I think that was my very first post on here!  I was terrified then, I've got to tell you.  Since you have ME, you'll know just how sick it can make you, and how you really do worry that you won't actually be able to care for baby if it gets worse.  It worked out really well for me (and I hear of others who've had similar experiences) - I was unwell through the whole pregnancy, but something about the birth triggered a big change.  It makes me wonder how much of the illness is hormone-triggered.  Not only did I get through a very long labour, but a few weeks after my daughter's arrival I noticed I was still tired (who isn't with a newborn?!), but had no leg pain, the permanently swollen glands in my neck were smaller, my throat didn't hurt, and I could go on a walk without that pounding-heart light-headed need to lie down afterwards.  When my baby started sleeping through the night, the brain-fog that'd annoyed me for years lifted.  I hope this encourages you, 'cause honestly, it can work out really well! 

After my second baby a couple of years later, I caught virus after virus over the space of a year, and the ME relapsed.  I remember lying on the bed quite literally unable to lift a limb at one stage - I'd been there before, but not with kids!  Argh!  My husband spent a week at home (which is a big deal when you're self-employed!) looking after the kids and I, and outside of that week he did everything he could to help out.  I had friends who had my toddler to visit for afternoons here & there, and eventually I got well enough again to look after me and mine.  I'm not 100% even now - you probably know what I mean about winter germs knocking you out of action for weeks, etc; and can't handle late nights, but I'm well enough that life is GREAT.  I think that once you've lost your health, you learn just how grand life is when you had it, so you don't take it for granted if you're able to work, socialise, run your household, and all, even if you're not 100%.  You kinda learn in a hurry that it's the things you CAN do that matter, not the things you can't, eh.  Anyway, if you want to chat about where you're at and the grizzly business of being sick when you've got a baby on the way, feel free to PM me and I'll send you my e-mail address.  I don't frequent this forum anymore, but I'm always happy to have a chat with someone in the same boat. 



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Andie
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BikeBaby View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BikeBaby Quote  Post ReplyReply Direct Link To This Post Posted: 12 April 2011 at 7:14pm
Hi
Thanks so much for your replies, feel better already knowing there are others out there. Sometimes ME/CFS is a very lonely thing.

RachFizz - Good luck with TTC! My logic when we decided to try was that I have been sick for many years, with no guarentee I would ever get better so how long do you wait? You can't put life off forever! I will admit that I am worried about how I will cope but I think fit healthy mum to be's do too! Fingers are crossed you get preggers soon :)

Thanks :)
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