QuoteReplyTopic: ARPKD Baby loss Posted: 01 April 2014 at 8:35pm
Hi There, I'm currently searching for mums that have had &/or lost babies due to ARPKD in NZ. This is a very rare disease & from my research I believe that less than 5 babies die from his disease in NZ each year & my son is one of those babies. Since this is such a rare disease there is very limited information on it in NZ & I haven't been able to find anyone from NZ that has had to deal with this disease. If anyone has dealt with this disease I would love to hear from them. Thanks
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ARPKD Baby loss
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