Feeding Dilemmas.... again....

Hey, just sent you a PM. Forgot to say though that her weight is now in the 25th percentile and she is gaining about 300grms per week :)

How is his reflux being managed?

ETA: just looked at your Domperidone post. Has Jackson been seen by Paeds? If your LC is convinced it's reflux, then I would think that the issue is more with Jackson (and his sore wee tummy) than you and all the Domeperidone in the world isn't going to help the underlying issue - the reflux. Apologies if you've done this, but I would definitely push for a paeds referral to get his reflux checked and make sure there's nothing else going on that could be contributing to FTT.

Edited by Flissty

That's a reasonable dose, though according to Cryingoverspiltmilk, he can go higher.

Has he been to paeds?

I really feel for you - it's such a hard time when they're not growing but not eating, and you just don't know what the heck is going on

I'd go for another referral back to paeds for a clinic appointment where you can go through it all again.

Thanks. Hoping GP will feel the same today. There must be some way to get to the bottom of this - it just doens't seem normal.

But I think everyone just thinks I am a neurtoic mother. Which, is possibly partly true!!

It doesn't cause a sore tummy, but it causes pain in the throat and burning in the oesophagus (sp) so that can interrupt their feeding. Refluxers will often start the feed OK but then realise that they are in pain again and stop feeding.

I agree with Fliss, definitely get a referral to paeds and have him checked. It could be just that he is a small feeder, both gremlins were and ended up FTT but nothing we could do would make them take more, that was just normal for them. But it could also be something else underlying, Maya was also FTT but hers was related to allergies causing gastric bleeding.

I think the bottle/breast decision should be more about what is going to be least stressful and most manageable for you.Tubes, expressing all hours of the day and night and taking meds to help supply must all be pretty stressful. And yes, breastmilk is better for baby, but you've given him nearly 4 months of breastmilk which is more than a lot of women are able to do. Plus, as Flissty said, it's not an all or nothing. What about if you stopped expressing and just breastfed and then topped him up with formula as and when required. In my experience with the gremlins, expressing can be completely soul destroying and all consuming.

Big hugs and best of luck. We all know how hard you have tried and are trying and regardless of what you decide from here on out no one can ever say that you didn't do everything you possibly could in Jackson's best interests.

I have a referral to the paeds at Wellington Hospital. Which is good.

Doctor really feels that something is not right.

Does anyone know what the wait is like through the Wellington Public system?

If he's dipped below the 3rd centile I'd say they'll make it a high priority referral, but I'm not sure what the wait is like in Wellington. Lil miss had a non urgent referral for her heart check and we had to wait about six weeks I think.

The gremlins started to catch up with their weight when they were about 17-18mths but it's really only the last 2 months or so that they have been truly well with no ear infections, colds etc. so we're enjoying having two happy, healthy girls for once instead of two grizzly, sick ones. They eat like horses now too which helps! Tonight they ate a whole pizza between them and Maya followed by a scoop of ice cream and two whole peaches each .

Don't worry about being a neurotic mother, I often feel that way but a doctor once said to me - better a paranoid mother with a well baby than a laid back one with a sick baby - and that stuck in my mind. It's so true. We really do know our babies best.

Good luck hun hope you get some anwers, must be so stressful for you and Jackson. Heart breaking too that he his in pain :-(

Good luck with the PH probe tomorrow - hope it gives you some answers!