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Kels View Drop Down
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    Posted: 15 January 2008 at 10:28pm

Alize's rast test results came in today and the GP rang me at work (which was nice of him) anyway turns out Alize is severe allergy to eggs. He is also moderately allergic to peanuts, cows milk and wheat He isnt allow any of the above with egg exposure being life threatening. So my question for any of the others mothers with allergys. Do you have any tips for buying food for him? ANy ideas on meals? Are healthy food shops good for "different" types of food? I have no idea where to start. At least he can have fruit and veges but I cant give  him that for bfast, luch and dinner everyday he will get sick of it. Please help, any info will do.


Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs
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cuppatea View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 15 January 2008 at 10:33pm
http://www.mfd.co.nz/

http://www.actagainstallergy.co.uk/aaa_couk/1734-parents-home.html

These two websites were recommended to me, hope they help

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Jennz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jennz Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 3:23am
Poor Alize!

You will need to become a label reader (allow and extra 15 mins for grocery shopping at least until you start to know the things you can buy)- its a pain in the A but you get used to it. Some things will list the allergens they contain but it still pays to read the entire ingredient list- with egg quite often they list egg white powder in brackets right in the middle of the list for some reason!- its often hard to spot. Even if you think something will be safe it pays to always read the label- I have bought a lettuce that said 'may contain traces of nuts'!!!

I know you're not a keen baker but it certainly helps get a little variety if you can bake things at home. They have this stuff called no-egg (at health/organic stores) that you can use to replace eggs in cakes and biscuits as its really hard to find either of these without egg or peanut or traces etc

I used to buy a few bits from health food shops but I would spend a fortune on peanut/egg free things and she always hated them- they were taste free as well! From what I can remember they had little snack pack rice cakes (BBQ flavour only) that were egg free, they were either kept with the rice cakes or chips. Wheelies biscuits were egg and nut free (like Oreos). Some of the Uncle Tobys fruit bars were ok but you'll have to double check the labels. Those, fruit, yoghurts and raisins were pretty much the only 'snack' things I could buy- everything else I had to make or bake myself.

As for meals, most ready made meals and sauces are out (thats if you're avoiding peanut/egg traces as well??)- Charlotte mostly gets a good kiwi meal of meat or salmon and 3 vege at night I pretty much make everything she eats- unfortunately she won't eat my lasange/mac n cheese/bolognaise/cassaroles etc so she gets stuck with the same ol' every night, fuss pot.

Good luck with it all Its when they can't have the birthday cake/lollies that all the other kids are having that its the hardest!
Jen, Charlotte 7 & Kate 3

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Kellz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 7:02am
Poor Alize. It is hard at the beginning, but it will definatly get easier. If you can, do the food shopping alone the first few times, so you can concentrate on label reading! I know about avoiding everything u mentioned except wheat.

The allergy nz website is good, and www.mfd.co.nz has lists of brands of food that dont contain certain allergens.
Allergy nz also have a cookbook you can get from Whitcoulls, called The NZ food allergy cookbook. We have just got it, its $40, but Aimee uses it loads and says its good.

Organ brand make cake mixes, biscuits, etc that are all egg, dairy, wheat, nut, soy free! The even have kids choc shaped biscuits! Health shops have them, and some supermarkets, but not all! I went to 5 in Auck, and gcouldnt get any! But new world in Whakatane had loads, so maybe try a new world.

Also 'eatright' brand make date and apple cookies that Isla loves that are everything free, and 'naturally good' make yummy things too- mmm Ginger gem cookies! Got all of them from New world!

You can also get Soy cheese, cream cheese, yogurt.

He will be intitaled to a child disability allowance of $40 a week- non-income tested from WINZ too. Ph their 0800 number, and ask them to send you the forms. Your GP then signs to say that he has a serious illness that means he requires more care than another child of same age. The pay it fortnightly.

Hmmm,..thats all I can think of at the mo! Good luck! Aimee, Emma and Andie will prob be more help!

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Kellz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 8:04am
Oh, and the 15 month MMR vaccine contains egg (although you prob know that already!).
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aimeejoy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote aimeejoy Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 8:17am
Apparently there should be no issues with the egg base in MMR as it doesnt contain the actual protein, if that makes sense. We didnt know Han was also allergic to eggs when she had her MMR and she was fine. But you will prob know more about that stuff anyway

I havent got a lot of time at the moment to write much, but have a search for allergies iin the old topics as there has been a few with heaps of helpful info.

It really does suck to have kids with severe allergies, but it does get heaps easier once you know what they can and cant have. It also gets harder as they get older and KNOW they are missing out on what their little friends are having But thats just life. The way I look at it, is if this is the worst that we have to deal with health wise I am happy - even if she doesnt outgrow them.
Aimee

Hannah 22/10/05
Greer 11/02/08
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aimeejoy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote aimeejoy Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 8:18am
Oh and that means you need an EpiPen right? Will post more about that later too, about getting them cheaper and stuff.
Aimee

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aimeejoy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote aimeejoy Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 8:20am
And... cos he has multiple food allergies you should see a dietician (make sure its a paediatric one!) esp with the cows milk allergy. Sorry just keep thinking of things.
Aimee

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Redbedrock View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Redbedrock Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 8:32am
Yeah i was going to ask about epipens and stuff too Kels. I guess at least you know now what to exclude, you seemed to have a good idea on Friday. No advice, help here as I have minimal experience of allergies, my brother was allergic to fish and dairy when we were kids, but that's it.
Take care
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The_Stuarts View Drop Down
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Hi Kels

We have some pretty severe intolerances in our family too (I was diagnosed coeliac a few years ago so can't eat wheat, rye & barley and oats are a bit suspect).

I found commonsense organics (in town across from where the warehouse used to be and also in lower hutt near the new world) and homestead health in cuba mall they do wheat free, egg free etc. There are also heaps of online stores that will deliver to you my fav is www.ieproduce.co.nz. The online MFD list that cuppatea mentioned is invaluable and I've also found a lot of supermarkets (woolworths, pak'n'save and new world) that stock a good range of allergy free food. Check out the health food and international food eisles and sometimes above the freezers.

It's pretty hard adjusting at first but you'll be whipping up allergy free food in no time.   
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The_Stuarts View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote The_Stuarts Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 9:59am
P.S. Kels. Forgot to mention allergy free food can be pretty expensive but you'll probably qualify for a child disability allowance to help pay for it. My sister gets an extra $120 (per week or fortnight not sure which) for food for her two kids who are also coeliac.
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miss View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote miss Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 4:11pm
Kels, ther eis an awesome support network for allergies on EBB - www.everybody.co.nz then find the communities site.

hey, can I ask if you avoided peanuts in pregnancy or anything and when you started solids? Just interested to see if people who did those thigns are still finding severe allergies.
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Kellz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 4:59pm
I avoided all nuts, and anything containing them from the time I was ttc, and still feel weird eating them now even tho Im not bf anymore! Isla started on solids at 5 months. I suspected a dairy allergy when i was told by plunket to increase my own milk intake and to have complain to help with my milk suppy when Isla was 4 months old, incase this was the reason she was so unsettled. When i did that she started throwing up, and never had before. It was several months, and a lot of perservance and a lot of pain and exzema and an allergic reaction later, until she was diagnosed with silent reflux and an allergy to dairy. She seems also to be intollerent to soy and egg, and has not yet had anything containing nuts, despite a negative result to this on her rast test, we are way to scared to try!

Sorry to thread jack Kels,...but maybe a little story sharing could help someone else!
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cuppatea View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 5:14pm
Hey miss, I didn't restrict peanuts etc from my diet when pg as neither me nor DH or our family members have any allergies. Spencers was picked up finally at 4.5 months, he got symptons at 3months when we switched from bf to bottle feeding. We started solids at 4 months cos he was showing signs and because we had no idea he had an allergy. When we saw paedatrician he said as we had started no point stopping but we are being very precautious with what we give him. So obviously no diary, but also will not be giving soy, eggs, wheat, berries, nuts, etc until 12+months to be on the safe side. Am hoping he won't have other allergies and he, fingers crossed, should grow out of the cow's milk one. I also think that he has silent reflux but that it wasn't picked up cos of everything else that went on but thankfully that seems to have calmed down a lot now anyway.

Is there an age restriction for that benefit?

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Kellz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 5:40pm
A child with a serious medical condition or disability is intitalled to the Child disability allowance up until age 16 years,...or I think its possibly a wee bit older if the are still at school etc. Its non- income tested too. You have to go for an interview at WINZ tho once u have rung and got the forms from them, and had them completed by GP or Paed.
Some of the info in the brocheres is slightly confusing, cos in some parts in doesnt mention serios medical condition, only disability. But a child with a dairy allergy is definatley allergible. The Dr only wrote that she was allergic to dairy, and didnt even mention her reflux or eczema or other intollerences, as it was the allergy we were claiming it for, but the person at winz asked us, cos she read it on a letter written by her Paed that we had taken along as further evedence incase they asked for it.
We have just been through the process with Isla in Dec. Its $37.50 a week paid fortnightly.

The main criteria is the child must have a condition that means they require more care than another child of similar age, and same sex would require. That is stated on the application form.

You have to take ID for yourself, and your childs birth cert to the interview.

Edited by Kellz
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Kels View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kels Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 8:47pm

Thankyou all sooo much for all the information. It is such a daunting thing to try and get used to and having you all give me ideas has given me an awesome basis of where to start and what to do.

Kellz, I already get a disability allowance for Alize for his asthma. He was diagnosed at just on 10mths and put on preventer, while at the visit the GP gave me the forms already filled out and said drop these into WINZ as you are eligible to receive this otherwise I never would have known.

Now the GP thinks his asthma is related to his allergies and once they are well controlled we are going to try him off his beclazone, I cant wait!!

 


Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs
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Kellz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 9:05pm
Yep asthma and eczema can be related to food allergies. Its amazing how beauitful Isla's skin has been in the last few weeks after having had eczema for so long. It improved so much when I gave up bf at 10 months, but she has still had the odd patch. She has had bad flair ups when we tried soy yogurt, and a tiny bit of a fritter with egg in too.
I thought marshmellows were safe, but apparently some have egg protien whhich isnt actually labelled as that,...her Nana loves giving them to her as a treat, since she cant have most biscuits, ice cream, choc etc,.....but now we have stopped her having them too her skin is perfect! At times I couldnt imagine it disapperaing.

Really hoping that Alize's asthma will improve as much as Isla's eczema has.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote aimeejoy Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 9:06pm
Originally posted by BellaBabysMum BellaBabysMum wrote:

Ella has an allergy to dairy and soy and we suspect an egg allergy but for now until we can get her tested she drinks rice milk with some milo in it and LOVES it, its been awesome for her.


Jess you know theres milk solids in milo aye? Its the second ingredient on the list so theres probably quite a bit...

Kellz, we never had to go through all that to get the CDA. GP filled out, just said severe allergies, and I dropped it into WINZ and it was done. Even got backdated to when I picked the forms up to be signed!
Aimee

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Post Options Post Options   Thanks (0) Thanks(0)   Quote lizzle Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 9:11pm
Just wanted to add for you allergy kids, ezibuy is making really cool clothing and bag stickers that say "don't feed me, I'm allergic" and stuff like that. might be handy to have. in the latest catalogue
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Post Options Post Options   Thanks (0) Thanks(0)   Quote yummymummy Quote  Post ReplyReply Direct Link To This Post Posted: 16 January 2008 at 9:39pm
I have quite a few food intolerances (nothing like allergies though) and know what a pain restricted eating is. Most of what I wanted to say has already been said, I'll just second the advice to read lables really carefully and also check that none of the additives identified by numbers on packets contain either egg, peanuts, cows milk or wheat.
Big big hugs - hope the change in diet helps Alize with the asthma
    
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