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Konagirl View Drop Down
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    Posted: 30 July 2008 at 8:15am
Hi everyone,

I went in to have surgery on a painful ovarian cyst last week and it turns out I have endo. The cyst was from it as well as areas of scarring around area including a blocked right tube. I'm so damn sore right now but also of course a little worried about weather we'll have a preg without IVF. The doc thought our best chance will be in the next few months. So just wondering who else is is a similar position and any suggestions you might have. I think I'll post this in the preg forum as well as it'd be interesting to see if anyone has managed to get preg with endo.
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MrsMojo View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MrsMojo Quote  Post ReplyReply Direct Link To This Post Posted: 30 July 2008 at 8:28am

Hi Konagirl,

I don't have endo myself but my older sister does and she has 3 sons

The first was born before she was diagnosed and the younger 2 were born several years later after her operation to remove the endo. 

From what I understand (and I might not have been listening properly so someone else should confirm this) is that your endo won't grow back when you're pregnant.

I have other friends with endo too that found a low gluten diet (ie. avoiding wheat, rye, barley or oats) helped them and according to my mum my sis was basically following a gluten free diet when she concieved her first child, which is why she didn't have a hard time TTC like she did with the next one (and also why her endo wasn't picked up earlier).

Good luck!

 

ETA: all of her babies were concieved naturally.

 

 



Edited by MrsMojo
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ginger View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote ginger Quote  Post ReplyReply Direct Link To This Post Posted: 30 July 2008 at 8:34am
Believe it or not, endometriosis only affects fertility in around 20% of women - I found this out at a fertility seminar a couple of years ago.

For myself, I have endo and No. 9 is an IVF baby BUT we had male factor infertility to contend with as well. My specialist believed that without the male factor, we would have been ok (and vice versa too of course - without my endo, the male factor may not have been such an issue).

All the best!!

(P.S. Make sure you don't leave TTC for more than 6 months after the endo surgery - I hate to say it, but if you have problems you need to get the ball rolling as quickly as possible)
Cuinn Lachlan 23.1.09 - 22:00
Antonia Helene 4.8.11 - 09:41
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Konagirl View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Konagirl Quote  Post ReplyReply Direct Link To This Post Posted: 30 July 2008 at 8:40am
We also have the male factor as he's subfertile. We've been trying for the last 18months and will continuing to try. Once I can actually walk again. Gosh it's been sore!
Thanks guys, nice to have some positive news. Interesting about the gulten free diet, we're also seeing a herbalist/nutritionist and she is coming over today so I'll talk to her about it.
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jack_&_charli View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jack_&_charli Quote  Post ReplyReply Direct Link To This Post Posted: 30 July 2008 at 8:43am
hey there......i hope your resting up after your surgery...i've had 2 now and they are more painful than a c/s!

i have endo and PCOS and was told if i didn't conceive after 6mths of trying, then to go back to the specialist and they'd help...........but both my kids were 'first night trying' babies!!

so try not to worry, just yet.....wait and see what happens, you may not have any problems at all




Edited by jack_&_charli

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denny25 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote denny25 Quote  Post ReplyReply Direct Link To This Post Posted: 30 July 2008 at 11:59am
Hey, I've had 2 operations for endometriosis - the last lot they removed was the size of a grapefruit! I was told to try and conceive before i was 30 and that they weren't sure how it would affect my fertility but we got pregnant first try!
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Maya View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Maya Quote  Post ReplyReply Direct Link To This Post Posted: 30 July 2008 at 12:09pm
My mum had severe endo and had no difficulties getting pregnant. She did have her last 3 babies (out of 4) prematurely which may or may not have been endo related.
Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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babyg View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote babyg Quote  Post ReplyReply Direct Link To This Post Posted: 30 July 2008 at 12:32pm
Interesting Emma - how prem were your siblings? My doc has believed I've had endo for many years but we decided not to do anything about it until after I've finished my family (or until I feel the need to hurt someone because of the pain ). Just interested, as Carys was early and we have no medical reasoning as to why (one day I will give up trying to figure it out, I promise)
Ev, Mum to:
Carys Ruby - 4 October 2007
Spencer James - 2 July 2010
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LittleBug View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LittleBug Quote  Post ReplyReply Direct Link To This Post Posted: 30 July 2008 at 2:10pm
I've had one surgery for Endo a few years ago, and my DH was meant to be infertile because of steroids he's on (he has Addison's disease) and we got preggers within 4 months of trying!! Not only that but we were using condoms after the birth of our little girl and managed to get preg again already *by accident*. LOL. So there is definitely hope.

I think it depends on the severity though, my sister had endo but had it terribly bad and had to have a hysterectomy when she was only 24

But don't count your chickens, I had it mildly (they thought it might be cysts too) and I didn't have any trouble getting preg!

ETA: I was on a low GI diet too but for blood sugar probs... I was under the impression it was more of a factor with ovarian cysts but may help with endo, *shrug*

Edited by LittleBug
Chloe (4 years) and Oliver (3 years).
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Konagirl View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Konagirl Quote  Post ReplyReply Direct Link To This Post Posted: 31 July 2008 at 11:47am
Thanks for all the information, really good to hear lots of you managed to get preg with endo.
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