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Kazzle View Drop Down
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    Posted: 12 December 2009 at 11:10am
Does anyone here use them, i have a couple of questions.

Cory has come back with reactions to egg, wheat, rye and peanuts and we also know he is intolerant ot dairy (hence going onto neocate).

So i have come across orgran which states they are competely egg, wheat, and dairy free which would suit us.

BUT

are they expensive?
are their products good?
Do their products have a nice taste?

And where is the best place to get their products (given im in wellington).


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blondy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote blondy Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 11:29am
We have only used a couple of the products and they seem to taste pretty good (well, given they are lacking in dairy, egg, wheat etc etc ). They are more expensive, but as it's only Natalie eating the food, it lasts longer than you'd expect. We just get ours from the supermarket - normally in the organic isle or similar.
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Kazzle View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kazzle Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 11:52am
yeah it will only be Cory eating this stuff...so im not worried about the cost as such, as i know it will last a while


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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 12:43pm
Yeah we used some of their stuff, the outback crackers are delicious, it use to be 1 for Spencer 3 for mummy I'm not in Wellington, but down here woolworths, countdown, pak n save and new world all stock some of their stuff (with different supermarkets being better at it than others), generally any supermarket with a good gluten free sections seems to stock them well. Organic shops also have them but they tend to be marked up higher. Binn inn have a huge gluten free range but I can't remember if they have the orgran stuff, they might have some other stuff that suits though. A lot of organic stuff is dairy free. Oh and their is a rice bread you can buy, most supermarkets stock that, I use to freeze and a get a slice out at a time cos it doesn't last long otherwise. I thought it tasted gross but Spencer never had an issue eating it cos he'd never had real bread to compare it to.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote squoggs Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 1:40pm
I have used Orgran products over the years as im gluten & dairy intolerant. I find their pasta quite gluggy - if I do use it I find it is bit better if i rinse it in boiling water immediately after cooking.

Yip all those products are pricey - usually around $4-5 for a small pack of pasta. But they are a godsend if you have a restricted diet, ten years ago I couldn't get anything - now there's lots of stuff.

Usually get from the supermarket - when I lived in wgtn I got them from Woolworths in Jville. Pak'n'save usually have quite a good range too.


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tishy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tishy Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 2:24pm
We use Orgran.
Personally, I prefer their pasta over other brands. They do a spaghetti noodle which is perfect for little kids.

From what I recall, New World at Porirua has a good selection of GF and Orgran products.
My local Pak n Save at Kilbirnie has only recently improved its selection so maybe the PnS out there has too.

Oh and they also do some 'Crisp Bites' (mini cruskits) that are yummy and perfect size for wee hands.
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Kellz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 2:59pm
You should be able to get a child disability allowance for him, if u dont already, which will help towards the extra costs of special foods.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Guests Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 6:59pm
The orgran ta is really good and second the crisp bites yum yum

Also if you check out www.mfd.co.nz
They have lists of "normal"foods that are gluten/wheat/egg/dairy free etc.

freedom foods do a lot good cereals too
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cuppatea View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 7:14pm
Originally posted by Kellz Kellz wrote:

You should be able to get a child disability allowance for him, if u dont already, which will help towards the extra costs of special foods.


They've stopped doing that pretty much, they refused to renew mine (this was last year) and my friend whose little girl is anaphalactic to eggs hers was not renewed either. We don't need it now anyway but it was handy to pay for the extra cost of special foods and paed appointments.

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blondy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote blondy Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 7:19pm
We were still approved the CDA, and that was earlier this year, so it seems a bit hit or miss as to whether they approve it for allergies? The specialist did write on the form that they were severe - wonder if that made a difference?
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cuppatea View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 7:27pm
Maybe it just depends which winz office it goes through? I found it a bit annoying but then on the other hand he wasn't actually disabled so I figured we were lucky to have it for the first year. My friend was told if her girl carried an epi pen she would get it, however they have never given her eggs, the specialist is pretty confident what the reaction would be without testing it so that to me seems a bit dumb cos it's not like she is less allergic cos she doesn't have the pen yet (and hopefully never will)

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blondy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote blondy Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 7:33pm
It is a bit random! We did have to go in and have a meeting about the whole thing, so maybe it's a bit of personal discretion on the part of the WINZ staff member you get? In theory, if the specialist considers the allergies are severe enough to qualify, then WINZ shouldn't have any problems with it (and if they do, they have their own medical professionals to check things out). But obviously not the way it works!

And I do feel a bit bad too, because the allergies are manageable, but on the other hand it does get expensive with food (and it was food for me while I was BFing too), plus the costs of the specialist apts in the first place (even though most is covered by our insurance), and the extra doctor trips and prescription surcharges. Actually, maybe I don't feel bad about it!

Sorry for slight threadjacking Kazzle!
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Kellz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 7:52pm
Last Dec we only had to get the GP to sign the yearly R/V form and still got the CDA even tho Isla had outgrown her actual dairy allergy (still intollerant), and was no longer being medicated for reflux, or needing frequent visits for her excema.
I guess they have got tougher now tho, and that was a review, not the first appt to get it in the first place.
That sucks tho, it was really useful for us.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AandCsmum Quote  Post ReplyReply Direct Link To This Post Posted: 12 December 2009 at 8:06pm
Yay for answers & we use some of their stuff. The rice & something spagetti is really nice
Kel


A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Muz Quote  Post ReplyReply Direct Link To This Post Posted: 13 December 2009 at 9:51am
We use the pasta too - for miss 5 1/2, she loves it, i tried it and thought it was very average!! But choicesare limited. Is the san remo GF pasta any good for you? That pasta is really nice - almost 'normal'

We are just going thru the process for the child disability allowance - Dr Ford said he had never had so many denied as he as this year (she has Coeliac) so we will wait and see.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MrsMojo Quote  Post ReplyReply Direct Link To This Post Posted: 14 December 2009 at 7:50pm

Check with your doc Kaz as you may qualify to get orgran pasta's and horley's flours on prescription.  If you buy in bulk (to make up the cost fo the prescription fee) it brings the cost down to about what you'd pay for wheat products. 

Personally I buy the san remo pasta's and healtheries baking mix and bread mix (these are all gluten and dairy free too).  I use LSA in my bread because it gives it a lovely soft consistency but if I really want a nice soft white sandwich I buy the Basco bread mix. 

You'll find most supermarkets have a selection of specialty foods.  By far the best selections in the area are at North City New World and Johnsonville Woolworths. 

Once you start looking you'll be surprised how much is actually ok for him to eat and when you're used to it baking is just as easy, in fact after years of baking everything gluten free I made a fruit crumble in the weekend for DH and DD using wheat flour and was told it wasn't nearly as nice as the gluten free one I usually make

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