Has anybodys baby have Billiary Atersia

My baby is 18 weeks old and he has Billiary Atersia he was born without a gall bladder or bile ducts they did his first major surgery on the 2 nd Feb 2012 called a Kasai i would really like to get in touch with some other parents and so far im finding it hard and so lonely knowing anyone with this condition. He will eventually need a liver Transplant

Edited by Guest_74646

http://www.classkids.org/forum/forumdisplay.php?f=35

How did the op go?
My daughter (3m old one) has something wrong with her liver, they have ruled out BA though, but have just been up to starship our our 2nd biopsy (which is being sent to london )
I found this FB group helpful https://www.facebook.com/groups/158326670869599/ check them out, they are a BA/liver transplant page. At the moment it looks like our daughter may need a transplant in the future but not any time soon (if she continues to go the way she is now)
Its so hard to spend so much time away from your other kids isnt it? And living out of a suitcase sucks! We are lucky that we have only spent about a month in hosp, but i always have a bag packed just in case!