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aimeejoy 
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 Topic: Greer Update
Posted: 25 May 2009 at 8:42pm |
The other thread was getting a bit long...
Got MRI preliminary results today - there was nothing major left, just a layer that is right next to the spinal cord, which is what they were expecting. They think they got 90 something percent of it. Now we need to talk to the oncologist and decide when to start chemo, which will happen here at Starship, not Wellington. If we get a wee break before chemo, we might get home for a bit which would be great.
She is doing really well from a surgical point of view, other than a few feeding issues (vomiting up her nasogastric feeds and no interest in taking bottle). Main thing now is lots of physio cos she is very floppy and needs to relearn how to hold her up, sit, possibly walk etc...
But all in all, going pretty well at the moment 
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Aimee
Hannah 22/10/05
Greer 11/02/08
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Babe
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Posted: 25 May 2009 at 8:58pm |
Hey Aimee glad to hear Greer is holding up ok. Sorry they didn't get all the tumour but glad things are looking hopeful
Hugs to you all  our prayers are still with you and Greer as you face the next step!
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Bobbie
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Posted: 25 May 2009 at 9:26pm |
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That sounds pretty positive. I hope you guys do get a chance to go back home before starting the chemo.
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fire_engine
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Posted: 25 May 2009 at 10:02pm |
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Aimee, fantastic that they got most of it and that the surgery went as well as it could. I really hope you can have some great time together as a family before the chemo starts. Fingers crossed for an events-free trip home.
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Mum to two wee boys
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missy_girl
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Posted: 25 May 2009 at 10:52pm |
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Thanks for the update, I'm please the surgery has gone well.
I hope you get a chance to head back home before chemo.
Always in my thoughts,
Michelle
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Michelle
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mummy_becks
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Posted: 25 May 2009 at 10:53pm |
That is great news. Let me know if you do head home before the weekend.
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I was a puree feeder, forward facing, cot sleeping, pram pushing kind of Mum... and my kids survived!
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ellen
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Posted: 26 May 2009 at 6:33am |
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Have been following your journey and couldn't read and run. Just wanted to let you know about a National Travel Assistance Fund through the Ministry of Health where you can get help with travel and accommodation costs. Would be worth checking out if you don't already know about it. We recently used it but no-one told us about it.
All the best for Greer's recovery. You sound like a very strong mum - it can't be easy watching your baby go through these procedures.
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lizzle
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Posted: 26 May 2009 at 8:28am |
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sounds great! hope you guys do get home for a break - can't be easy for the family. how is Hannah? thanks for the updates too. Hey, if you get a chance, flick me your address - i have a parcel here, but not sure if you are at ronald mcdonald house or not.
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BugTeeny
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Posted: 26 May 2009 at 8:47am |
Aimee, that's great news
I hope you can all get home for a time before starting chemo.
It's all sounding really positive though.
I'm keeping you guys in my thoughts
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peanut butter
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Posted: 26 May 2009 at 9:04am |
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Fantastic news! SHe will amaze you with how quickly she bounces back.....adults wouldnt but kids do it just like that.
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EmDee
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Posted: 26 May 2009 at 10:13am |
Great news! I really hope you get to spend some time at home as a family before the chemo starts
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My3Sons
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Posted: 26 May 2009 at 10:52am |
Yay Aimee that all sounds really positive, what an amazing little fighter your wee girl is!! I hope you get to spend a bit of time at home before the chemo and Greer does well with the physio. Think of her lots!
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my2angels
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Posted: 26 May 2009 at 11:30am |
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Yay Greer, what a brave wee girl you are. Hope chemo goes as well as it can and you are home with your family as soon as possible.
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jack_&_charli
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Posted: 26 May 2009 at 11:37am |
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MrsMojo
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Posted: 26 May 2009 at 11:39am |
Great news Aimee. It must be such a relief that they managed to get so much. I hope you all get a rest before the chemo starts.
Good luck, you're continually in my thoughts and prayers.
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kiwisj
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Posted: 26 May 2009 at 12:13pm |
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Thanks for the update Aimee. Good to hear the op went well and that things are positive. I hope you get to have some time at home before chemo starts. Go Greer!
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SJ
Callum - Dec 2008
Daniel - Oct 2010
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Glow
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Posted: 26 May 2009 at 1:56pm |
Thats great Aimee, Im pleased. Thanks for the update
Always thinking of you, Greer & your family
Keep strong
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cuppatea
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Posted: 26 May 2009 at 8:41pm |
That's awesome news 
Thinking of you guys and hoping the next stage of her recovery goes well
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Rachael21
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Posted: 26 May 2009 at 9:27pm |
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Thats great Aimee, thanks for updating us. Thinking of you guys a lot xoxo
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aimeejoy
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Posted: 26 May 2009 at 9:43pm |
Thanks everyone
Just wanted to mention how fantastic the National Travel Assistance Scheme is.... Daniel has gone home today to work so we actually have some money! But he gets a return flight per week paid for by this scheme, and all he has to do is ring up the co-ordinator and she books the flight he wants. Its great cos it means he can go back home and work 4 or 5 days, and then fly up here for the weekend. I would get very lonely otherwise The social workers have been great about getting it sorted for us.
And I have managed to find a positive in having to do chemo - we will get to stay on the brand new oncology ward that opened here less than 2 weeks ago. Apparently its very flash!
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Aimee
Hannah 22/10/05
Greer 11/02/08
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Greer Update
