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FionaS 
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Location: Auckland
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 Posted: 17 March 2008 at 4:59pm |
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We saw my doc today. She said she has known other kids who play in the night and most of them (i think she said ALL of them) ended up being on the autistic spectrum...not severe but enough for them to have over-exaggerated self-soothing habits and various other social quirks. She said she wasn't suggesting Elle is on the spectrum though and said they won't know until she is 3 or 4.
Other than that she suggested phenergan at 10.30pm to see if she can be sedated through the waking patch.
Seeing sleep specialist next week so here's hoping he is a solution and some GOOD news that doens't involve the autistic spectrum! She is very very social and intuitive and has great language so even if it is something on the spectrum signs are good that it's not severe.
Sigh. It's a hard road!
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Mummy to Gabrielle and Ashley
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FionaS
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Location: Auckland
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Posted: 17 March 2008 at 5:09pm |
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I don't think they necessarily do a sleep monitoring thing but if they do it is in our home. The appt is in the dr's office and we'll be going through her history, routine, health etc etc.
And yeap, we have the spiritual side covered. The team are church are great.
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Mummy to Gabrielle and Ashley
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The_Stuarts
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Posted: 17 March 2008 at 8:51pm |
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Are you going to try the phenergyn tonight? I hope it works well.
I'm thinking of you and praying that you have a good night tonight and that the appointment next week goes well.
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Bizzy
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Posted: 17 March 2008 at 9:29pm |
fiona fiona fiona... sack your silly doctor cause he just seems to like giving you bad news...
as i told you pauls brothers both used to do it..neither of them are anywhere on the autistic spectrum - just ordinary average guys.
and they both did it till about 3...they used to do it so hard they broke the cot...!!! eek.
I think that the problem is you are so worried that you cant sleep and lack of sleep can make you imagine all sorts or things...and you really do need your sleep.
ok - thats just my opinion....
and i wish i had a way to help you sleep. all i can suggest is a warm bath, milky chamomile tea and and try and switch off before you go to bed...
oh and if she is on the spectrum there is nothing you can do anyway till you find out for sure when she is older so try not to worry about that either ---- i know easier said than done.
 love ya!!!!
Edited by Bizzy
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Rachael21
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Posted: 17 March 2008 at 9:45pm |
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I just had a though, I remember one of the guys from antenatal saying he has about 4 -5 hours sleep a night and has since he was small. He just doesn't need sleep like everyone else. Hes really nice and nothing wrong with him at all so maybe shes like that?
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meow
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Posted: 17 March 2008 at 9:53pm |
I wish there was an easy answer for you! 
It must be so frustrating not knowing what is going on, or how to stop it!
Have you tried just for one day not letting her nap/not for as long?
Probably wouldn't help, but worth a try anyway?
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Bombshell
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Posted: 17 March 2008 at 9:56pm |
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please get that horrid doctor of yours to refer you to the people i suggested....they deal with autistic kids every day at all levels - THEY will fill you in on what is and isnt wrong with Gabrielle.
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FionaS
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Posted: 18 March 2008 at 11:50am |
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I know my doc sounds bad but she isn't...honestly, she is really good.
I may go down that path bombshell but before I look at the behavioural side, we are going to the sleep doc (who is a GP and paed as well) and a kinesiolist who our friends have had amazing results with. If neither of those work we'll check out that other option.
She slept until 3am so I got 4.5 hours of sleep in one go!!! Woohooooooooooooooooooo. She was only awake for an hour and because I had finally had some deep sleep I just dozed while she was awake rather than fully waking :) YAY! If only she could do that every night.
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arohanui
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Posted: 18 March 2008 at 12:08pm |
Hoping for you guys that the sleep expert can give you some answers. It must be so hard surviving on so little sleep and worrying too. Good thing you got a bit more sleep last night!
I reckon it's probably worth videoing it so you can take it to the appointment and the sleep guy can see for himself what's going down.
I think your doc is perhaps jumping to conclusions too quickly about the autistic spectrum. Although in saying that, my friends and I joke that most people are somewhere on the spectrum! If anyone is in any way a bit socially odd or has a little quirk like lining shoes up in size order by the door (yes I admit to that one  ) then they're "on the spectrum"!
I feel like I wanna say don't worry but I know if it was me I would... so hang in there, sounds like you're doing all you can to try and figure this one out
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Mama to DS1 (5 years), DS2 (3 years) and... 
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FionaS
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Posted: 18 March 2008 at 12:21pm |
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I agree arohanui...we are all somewhere on the spectrum as we all have quirks. Thats the prob with labels...they are best avoided. We are all just totally individual.
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3boys
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Posted: 18 March 2008 at 12:37pm |
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Hey Fiona,
It sounds to me like she just gets a lot of enjoyment out of it. Those cots can really make some great noises when you get them going.
Have you considered putting her a a single bed early. I know it sounds a bit scary so young, but maybe the change will help her with this habit. You could still use the cot for her day naps so she doesn't get up and play but try a bed at night with the safety sleep. If she gets up and rocks in that it may not be as satisfying.
Otherwise the only other thing I could suggest would be putting her in with you fro a cuddle - anything to stop the habit, but this may be hard since you are expecting.
Sometimes I think a short sharp change can be all that is needed to curb a habit - and that is all it sounsd like to me, not autisic but just a habit that she enjoys.
The best of luck to you.
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FionaS
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Posted: 18 March 2008 at 12:41pm |
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Yes I have considered the single bed idea. Will wait and see what the doc says. My only reservation is that she still hasn't learned to get down (e.g. can't crawl down stairs etc) so wouldn't want her to fall.
At least rocking in a bed would be quieter!
I agree...she does seem to love it.
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Mummy to Gabrielle and Ashley
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.Mel
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Posted: 18 March 2008 at 1:32pm |
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The single bed idea is a good one. You can get those bed guard things from The Warehouse.
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Mr Mellow (16)
Miss Attitude (8)
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caraMel
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Posted: 18 March 2008 at 1:58pm |
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Or a safeTsleep. I used one with Ella when she first moved into a big bed. just safety pinned it shut and did it us loose so she could still turn over but it kept her from falling out.
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Mel, Mummy to E: 6, B: 4 and:
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ANY ideas at all...
